Archive for the ‘Children’ Category

Cup of Coffee, Anyone?

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My son, Steven, has somewhat struck out on his own with his infant daughter. He moved far away from home…across the street to the small house my mom used to live in. It is a great use of the house as he has a “convenience store” across the street, OUR house, which is VERY convenient because he has neither money nor car.
Thinking as an adult, Steven bought a used Kuerig coffee maker. Using those little coffee cups to make coffee can be quite expensive for someone who has limited money. He came over the other morning, and looked at me with his puppy dog, young adult trying to be grown up, eyes. He was out of coffee! Could I help? Sure! I had about 10 jars of instant Maxwell House coffee that I’d purchased for $2.50 at the local Walgreens. Each jar made a zillion cups of coffee. He looked at it quizzically; for his Kuerig? Sure! I handed him a little coffee holder for his device, and showed him how to put a spoonful of coffee granules in it. Off he went happy, none the wiser that he could have made the same cup of coffee with boiling water instead! Someday, when I have a lot of money to buy coffee, I will explain the difference to him. In the meantime, grown up Steven can have his cup of coffee in the morning without it breaking the bank!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

Singing Do Wa Diddy Diddy Dum Diddy……..WHAT???????

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Driving around with my daughter, Marie, is always spirited fun, especially during the nice weather. She loves to “listen” to the radio by feeling the vibrations from the speaker when she leans her leg against the door. Today, with the windows rolled down, we were bopping away, tapping our hands on the car door, and shaking our bodies in time to the music. The music was not generally my “type”, but in a way it was, because any music that brings me and Marie together is my kind of music, even if she did the choosing, (and she choose based on the sound of the base vibrations.)

As we were bopping along with the windows down, I became self-conscious of the booming vibrations coming from the car. We were having fun, so what! THEN I became shocked when I heard a word in the song that should not be spoken…a word I didn’t even know the ASL sign for. Previously not even listening to the words, I started to pay attention. There were many words not suitable for family listening, as well as words that are not socially acceptable. I was MORTIFIED! Here was this sweet little, ole mom and her teenage daughter listening to urban (VERY urban) rap!

Marie didn’t understand my quick channel change, and I did manage to find some tamer, not as exciting base vibrations for us to bop to. I explained that the song had “dirty” words in it and it wasn’t appropriate to listen to. Marie said she couldn’t hear the words, anyway, so what did it matter? Thinking of all of those cars stopped next to us at red lights and in traffic throughout the day, I shuddered!

So this is an apology to anyone who was driving near us and heard the booming, top level, uncensored urban rap blasting from my car. I didn’t meant to do it…REALLY!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

Got My Hand Caught in the Cookie Jar

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As a busy mom, improvising is a way of life.

Have YOU ever used:

Aluminum foil as a scrubber when your cast iron pan is real dirty?

A hair dryer to warm the bent frame of your glasses so you can bend it back into position?

Butter to remove your wedding ring? OR to put on chapped lips?

A plastic fork to substitute for a hair pick?

Eyeliner as a pen?

Socks as mittens?

A bathing suit bottom to substitute for underwear?

52 pieces of paper, with appropriate hand drawn markings, to replicate a deck of cards?

Guilty of all of above. My biggest new “substitution” happened the other evening. Being on an everlasting diet, I try not to keep chocolate and candy in the house. After a hectic day, an overwhelming chocolate craving overcame me. Frantically searching the house for one last piece of Easter candy, (or even a Halloween candy that had fallen behind the seat cushions,) my search came up empty. Desperate, I expanded my search, standing on a kitchen chair to look high into the cupboards. AND THERE IT WAS!!!! Hiding behind the flour and the spices sat the jar hubby proudly used to make chocolate covered strawberries. CHOCOLATE!!!! So there I sat, on the kitchen floor, sticking my finger into the jar of chocolate and licking it off with great satisfaction. Sometimes, you just have to improvise!

Dad and Daughter shared Ice Cream

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My heart has been very heavy lately, which is a feeling that I am very unused to. The fact is, as my children age, some into young adulthood, their problems are more real life problems, not just a tantrum in the grocery store. 2 of my younger children, with as many good traits and skills that they do have, do not having the capacity to be fully self-sufficient as adults, including incapacity to maintain a paying job. Yes, SSI is a possibility when they are adults, but even that provides only poverty level income. They are my family and my financial responsibility, which necessitates looking at the ability of our extremely diminishing finances to care for them during their lifetimes.

Although hubby and I both work, often 6 days a week, and are considered solidly middle class, our bank account does not reflect this. Every time Marie has a PTSD episode, (every 6 weeks to 2 months,) the ambulance bill exceeds $1000, money that is not reimbursable. (She requires additional emergency personnel because restraining her safely requires at least six, strong professional emergency adults.) We have funded one college tuition, and are currently funding another at expensive colleges to best meet the special needs of my children, (for which they received no financial assistance because we are, after all, “middle class”…) In order to attempt to give them the best education to be able to succeed despite their disabilities, we subsequently have taken a large second mortgage on our home. And then a third… Hubby and I live “paycheck to paycheck”, as I am sure many parents of children with disabilities live.

But I digress…what I was saddest about is that Steven now has partial custody of a beautiful, vivacious daughter who is one year old. (Note to parents: make sure you talk OFTEN about birth control to your teenagers, especially your teenagers with disabilities…) He, and we, do not have any extra money to support her in the manner to which we are accustomed to supporting our children. With his Asperger’s (and extremely capable skills in caring for animals,) Steven is a doting dad. Not working, he has tons of time to spend with her and can generally be seen sitting on the floor of the living room playing with her interactively, rocking her for a nap, singing her nursery rhymes, or taking her in the large, fenced in back yard to swing and explore and play to her heart’s content. What he does not have is money to pay for her needs, and this breaks my heart. This morning, he asked if I have any “change” and if he can go look in the car if there are any quarters that have fallen behind the seat. At last count, he’d managed to scrape up $2.19.

Driving home today, I was stopped by the light near our house. On the corner is an ice cream stand where our family often used to take a walk for ice cream. The kiddos would giggle over whether they would get the chocolate jimmies or colored ones, (the sprinkles were free!) Today, I noticed the young man sitting on the picnic bench. Across from him was a stroller with a young girl in it. Both had tan skin and wild, curly black hair. Holding a small container of ice cream in his hand, he was using a spoon to feed her, laughing and playing the “airplane” game to put the ice cream in her mouth. She was giggling also, throwing her arms in the air as if to say “wheeeeeee!” after every spoonful. Steven exhibited pure happiness, that special kind of happiness a parent has for their child. They were joyful and the fact that she wore cheap diapers and wore hand me downs that didn’t always fit did not matter at all. Suddenly I felt a little bit better about not have any money, because Steven taught me today that money does not makes life purposeful, but it is love, which is free. Life is good!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

She Looks Just Like Me!

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My children who are adopted are of mixed races, which has instigated a lot of joking over the years about how much we are like each other.

Three of my children have brown eyes, just like me! Two have blue eyes, just like their dad! Amazing, just like each other!

All of us love ice cream, especially cookie dough! What are the odds?

Swimming is something we have in common, (mostly because we live on a lake.) Dinora was able to swim by the age of 18 months old. She used to jump off the side in the deep end of the community pool with me. Everyone kept saying it was dangerous being so deep. But she was so tiny that even if she jumped off the lower end she wouldn’t be able to touch the bottom, so what was the difference. All of my children are natural swimmers.

Three of my children are creature lovers, anything from earth worms to boa constrictors to the every day dog, cats and bunnies.

With the exception of me and their dad, everyone loves scary movies. (Don’t know where they got THAT from, I hide under the pillow and shake if I even hear an eerie chord.)

With all of these similarities, of COURSE we are related! And so we have built MY family…

Now they are building theirs. Francis has a one year old daughter who looks JUST LIKE HIM, (minus the vision impairment!) Dinora has a young daughter who looks JUST LIKE HER, (with the exception of reddish hair, taking after her Irish dad.) And now Steven has a baby daughter who looks JUST LIKE HIM! All of the similarities we fostered as a family cannot compare to the fact that their flesh and blood look similar to them. But that is not what they focus on. They continue to bond over similarities…Steven’s daughter really loves animals and strawberries, she MUST be his daughter! And Dinora’s daughter is a little diva, enjoying make-up and nail polish, (so much like her diva mom.) Francis’s daughter loves vanilla pudding! And MUSIC! Go figure!

The truth is, family is not what is built by flesh and blood, but by common interests, tastes, and a whole lot of love. Of COURSE we are all related, we are a family!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

That Disability Line Looked Awfully Tempting!

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Needing to get a picture ID, Marie and I went into the black hole named the Registry of Motor Vehicles. Despite many years of revamping, that place can still take 4 hours to navigate. It was with this background that I bring up the option of the line for people with disabilities. Actually, there WAS no line. Tempting. MMMMMMMM. Marie has a disability. Teaching her to be more independent, I was actually only accompanying her while showing her that SHE can maneuver through the system. Without parental assistance, she really DID have a disability. But I have raised my children not to see their disabilities but their abilities. She may not talk or hear, but, armed with all of the appropriate paperwork filled out and the certificates of existence she needed, (birth certificate and social security card,) she has the capabilities of writing what she wants to say and reading back what the other person writes to get her ID herself. She can function as fully as a non-deaf teenager in the registry. And that meant she was fully capable of waiting in line like everyone else.
There have been many times in life that a disability line looked tempting, especially handicapped parking. What parent of a child with a disability hasn’t dreamed of getting that front row spot. Granted, many parents of children with disabilities DESERVE that front row spot, but not us. My kiddos can walk fine. No need to park there, even if the only other spot was a half mile away. But it certainly was tempting…
Just like that line at the registry. After about an hour of snaking through the regular line, the disability line looked awfully lonely. Marie could just zip in there and be done with it. But Marie isn’t disabled. She can communicate fine, just differently than others. She does not need a special line.
And such is our life. To let the children think they can use a disability line to get through life would be unfair to them. They have been raised to know they can do everything anyone else can do, they just may have to do things differently. No disabilities here!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

Presented By a Cousin of Mine (what a great extended family I have!)

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