Archive for the ‘news’ Category

Mother’s Day and Delayed Rewards

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Mother’s Day is a wonderful time to appreciate moms, step-moms, birth moms, adoptive moms, wanna be moms and women who love children. Bless you for making a difference in a child’s life! Don’t you get joy from seeing the joy in a laughing child, the shy smile of a child with twinkling eyes, and the serene look on their faces when they are sleeping?  Ahhhhhh……..what sweet little rewards of being with a child…

Most of us know, however, that it is VERY difficult to be a mom and sometimes the REAL rewards are far apart….

When my son Steven was in nursery school, it was a real challenge because of his autistic and ADHD problems. He had been born addicted to cocaine and heroine and his nervous system was “messed up” (my professional diagnosis.) Bringing him was a real challenge as he would kick and scream and cry, yet I did it because he could not hide out safely at home for his entire life with me vacuuming around him. At first, he would  spend most of the time in school hiding out in the “quiet tent”, playing with his plastic reptiles, sometimes soaking in the information from the teacher. Eventually, he sauntered out of his safe space to see what was going on.  He did not join the other children, but he was with them…a huge improvement.  Eventually, nursery school became normalized for him; part of his routine.  He would come home with his little projects; a paper flower, a painted snake, a play dough alligator.  I had learned not to make a “fuss” over these things, but to quietly tell him they were wonderful while his head dropped to his chest, eyes closed.  (He was not a child who could tolerate excitement of any kind.)  He survived two years in that classroom, and I wondered how he would act on “graduation day”, a celebration seemingly out of his tolerance level.  All of the children stood there in their little paper graduation caps, tassels dangling in front of their noses so they had to keep blowing them away.  All of the children except Steven.  The children sang a song, and thanked their moms and generally wowed the crowd with their antics.  All of the children except Steven.  The children walked in a nice, straight line to get their nursery school diplomas; all except Steven.  When all but one diploma had been handed out, the teacher walked over to where Steven was hiding under a chair, butt facing outwards. (If I had been smart, I would have sewed a smiley face on the butt of his pants, but, alas, I had been unrealistically hoping that he would join the other children in the graduation ceremony.)  The teacher bent down with the document and Steven’s  little hand reached out to grab it.  He quickly pulled the diploma out of sight.  Calm and cool under the seat, he had made it! Steven had graduated from nursery school without a tantrum, yelling or screaming.  He graduated in the manner he felt most comfortable, but graduate he did!  What a reward that was for me; I was a proud mother, indeed!

Diagnosed in elementary school with Dissociative Identity Disorder, Angel, has been very carefully placed in specialized classrooms.  Although intelligent and able to do grade level work, he frequently changes “parts”, (his word for his alternate personalities.)  His teachers and teacher aids, bless their souls, understand him well, and manage to educate him, even if it means repeating the same lesson because a different “part” was out that day, or giving his the test over because the “part” that studied for the test is not the “part” that took the test!  He has a baby part which necessitates him to just “veg out” in a large mushroom chair.  On those days, nothing was learned.  His condition has been kept top secret and no unnecessary teachers or others in the school know about it. Fortunately, he has been living a very “normal” life.  I have found one surprising benefit…he has a “Game Show Host” part.  I work with a recreational group of adults with disabilities, and every now and then we play Bingo or Family Feud. Angel, as have all of my children, regularly comes with me.  One day, he asked to be the moderator for Family Feud and his “performance” was beyond hilarious.  Usually a reserved child with groups, all of a sudden he channeled Richard Dawson! He went down the rows of “contestants”, gave each of them a peck on the cheek, and, while holding their hands in his, asked their names and a little about themselves.  The older women, who probably have not had much attention in their lives, giggled and smiled and blushed.  Then, Angel read each question with gusto, and made a “ding” noise when they got it right, and a loud buzzer noise if they got it wrong.  It was sooooooooooo funny because it was so out of character of the Angel that they knew.  This group of adult with disabilities, many of whom live alone on a minimum income with this once a week outing their only time out of their houses, were laughing hysterically that evening. Ever since then, they look forward to Family Feud and “Gameshow Host” Angel! What a reward for me to see Angel’s  give such joy to these wonderful people!

As a graduation present, my daughter, Dinora, and I took a trip back to her birth country in Guatemala.  She had done fundraising to assist with the opening of a soup kitchen in Antigua, and we were there for “opening day”.  We went shopping that morning, taking a little “putt putt” (2 wheeled open air taxi) into the village, giggling all the way as it bounced along. We bought flowers of all bright shapes and sizes, which stuck out of the putt putt on the way back, narrowly bopping passers by on the head. We spread the flowers out in front of  the  alter where a mass was to be said in honor of the opening of the facility. An overflowing crowd of people filled the make-shift pews, and it was a beautiful, emotional mass. Even though it was all in Spanish I seemed to understand every word, and I could certainly feel the emotion in the songs which the Indigenous Guatemalans sang.  After mass, people lined up for the food in their brightly colored clothing. There was my daughter, a young adult, behind the counter, dark hair pulled back into a pony tail, serving food with a beaming smile on her face showing dimples I never knew she had, (or perhaps she had never smiled so brightly.)  She was old enough and cared enough to give back something and help “her people” as she called them. I will never forget the sight of her…sweat on her brow, wiping her hands on her apron, making pleasant conversation in Spanish while smiling that amazing smile…   How could that sight NOT be a reward for a mom after years of raising a difficult teen?

Raising Marie has been the most difficult because of her many serious challenges.  When she came to us, she was street smart at the age of seven.(See post “All She did Was Scream and Say No! No! No!) She had no thought of danger and no social skills.  Although this may sound silly, one of my concerns was the fact that she would litter.  Get a drink; throw the bottle on the ground.  Have a piece of gum; throw the wrapper on the ground. Popsicle; stick thrown in the grass.    Repeatedly, I would have her pick it up and throw it away, explaining that we don’t litter in our family.  Marie could not have cared less…she did not want to be in our family anyway…  It took many months with us before she learned not to litter.  That’s why it shocked me when we were at the mall one day and she casually flicked the paper from her straw onto the ground.  My eyes widened, and just as I was about to ask her to pick it up, she bent down and picked it up, signing to me “I was just teasing you!  I know we don’t litter in this family!”  What a reward it was to hear her say that!  Finally, she felt part of our family!

My most favorite reward I saved for last.  For all of you parents, especially parents with children with disabilities, I will share that there has been no greater reward in my life than seeing my son, Francis, become a successful adult. Despite being legally blind, he has a college degree, is very successful in a job which he loves and through which he is benefitting others, and he recently married a great woman who not only loves him for the wonderful person that he is, but can also drive a car so he won’t have to take public transit to work any more!  There IS no greater reward for a parent; to know that the problems, fun, hard work, love, difficulties and dispersed joys of childhood have come together in a positive way. My son has officially “made it” to adulthood.  Now he can look forward to the rewards he will experience in raising his own children. Then I get the extra rewards of grandchildren!

To all of you mothers and others out there, Happy Mother’s Day!  Beyond the handmade cards, the flowers, the breakfasts and dinners out, and the gifts of the day, so many more rewards await you.  Sometimes you just have to be patient…

It Was The Best Movie EVER, and It Had Nothing to Do with the Title…

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I apologize to those readers who have read this post from six months ago.  However, as I spend my weekends with Marie, this major development never ceases to thrill and amaze me, and it bears repeating…

Yesterday my daughter, Marie, and I went to the movies.  The name of the movie isn’t important, (except to say it was  a Pixar film.)  The reason it was so great was because, for the first time since we adopted her nine years ago, I finally got to sit and relax and enjoy the movies!

Marie is profoundly deaf and communicates in American Sign Language.  The movies we tend to see are movies such as Shrek, Finding Nemo, Ice Age, Madagascar and so forth. The negative thing about these wonderful movies is that there is no way Marie can lip read what the characters are saying.  ”I love you so much” can look like “Go jump in a dump.”  In order for her to enjoy the movies, we have long sat in the last row, underneath the single emergency light in the far left corner, and I have “signed” what the characters are saying.  Although my signing isn’t fluent, she laughs in all of the appropriate places, so I am happy.  (A happy child makes for a happy parent.)  The bad part of all of this is that I don’t get to really enjoy the movie.  I am so busy signing that I don’t get to see what is happening on screen. PLUS, (major disappointment…sob…sob….) I don’t ever get a break to eat any of the popcorn Marie happily munches away on.

Then came rear window captioning.  It sounds like a great idea. It is basically a screen of plexiglass that sits in the cup holder and it has to be positioned JUST RIGHT in order to reflect back the words that are coming off the projector at the far end of the auditorium.  The problem with Marie is that she also has ADHD.  She fiddles with it and fiddles with it until it is covered in popcorn butter and it is impossible to read the words. Plus, it must be damn annoying to the movie patrons sitting anywhere near us.

Well, yesterday the heavens opened up and dropped down a device only God could have made to relieve me of my signing duties…a small device that also sits in the cup holder but has closed captions.  Marie positioned it perfectly to fit her view of the screen the same as she watches closed captioning on television.  To her it was no miracle.  She’s used to closed captioning, and it probably didn’t mean all that much, because she gets to enjoy the movie either way.  But for me, it WAS a miracle. For the first time in NINE YEARS I finally got to enjoy that delicious (?) movie popcorn and I could watch the movie and actually enjoy it.  It was the BEST MOVIE EVER!!!!!

 

 

 

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I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

A Name a Ventriloquist Would Love…

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We had to put our  beloved dog, Brandy to sleep last summer, and our house has been empty, dog-wise at least, until Jody, a labrador/poodle mix came to live with us a month ago.  She is a sweet three month old, with a lot of energy and not much common sense.  Of course, she is still a baby and I guess babies themselves don’t have a lot of common sense, so I shouldn’t be so harsh.  After all, babies don’t come out of the womb knowing how to use the toilet, so why should I expect anything different from a puppy?  The problem is,  she is a fanatic about only peeing on a pile of newspaper.  We have to be very careful not to leave any paper lying around lest she pee on yesterday’s top story which I have not had a chance to read.  We have been desperately trying to get her to go outside, but she has developed this irrational fear of  going anywhere OTHER than on the newspaper.  She seems to be very stuck in her ways, because at the dog park she ran around and played with the other puppies for a few hours, and she did not leak so much as a drop of pee.  Have you ever heard of a dog that plays in an area where there are other dogs and it does NOT mark it’s territory, or at least leave a little fragrant sample for others?  Not Jody…she held it in until we come home, when she ran straight for the newspaper and peed a massive amount, like she has been holding it all in for hours, (which she clearly HAD.) Poor President Obama’s news would not get read that day.

I began to move the newspaper closer to the back door so she would get the idea that she should be doing  it outside.  She was getting there…closer and closer.  Finally, I eliminated the paper altogether and left the back door open for her to go outside whenever she wanted.  (Fortunately, it was not one of those days where we got a freak snow storm.)  She went outside to play.  She went outside to dig in the dirt.  She went outside to swat bugs from her face.  She went outside to chew on the branches of a nearby tree.  But she would not go outside to pee.  Sensing her distress, I did the only thing I could think of; I put a piece of newspaper outside. She ran straight as an arrow to use it.  Now, she goes to the door, barks, I let her out, and she pees on the newspaper.  If there is no paper, she looks at me with a forlorn expression, and just stands there…it appears that my newspaper subscription will have to be doubled!

Yesterday, I drove Jody up to visit with Marie, (who attends a  residential school for children who are deaf.) Marie loves animals, but they do not take to her too kindly because her semblance of speech is loud and guttural, (even scaring me if I was alone in a dark room and didn’t know she was there.) When she called the dog, she scared the poor puppy, which cowered. Marie looked at me with a great sadness. HOW could the puppy not LIKE her?  Then she called the dog again, but as I stood behind her, under my breath, I also called the dog, which came running to us.  Marie angrily turned and looked at me.  ”YOU called her,” she signed in ASL, “I saw your lips move”, obviously with the eyes she has in the back of her head.  She was devastated the dog would not come for her alone.  So, we tried it again.  This time, I put a large smile on my face and forced a cheery “Jody!!!” through my smile, not moving my lips.  The dog came running, Marie was happy that I had not called her, (?) and my lips didn’t move a bit!  (Try it….)  The fact that her friends and teachers to whom she introduced the dog were also deaf was also a lucky break on my part because they couldn’t squeal on me.

Okay, so it was a little bit dishonest on my part, but what parents don’t do things a little bit out of the ordinary to see their children happy?  Nothing feels better than the warm heart you get when you see your children smile, and Marie was smiling a lot that day.  Besides, the dog will soon learn to love Marie as we do, even though she can be a little loud and scary…

 

 

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I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

I Ate From All the Major Food Groups at the Buffet…the DESSERT Buffet…

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Before you “yell” at me, let me explain; my husband and I went to a buffet the other night and there was a long line for the regular buffet.  I was really hungry, AND I have been on a diet for YEARS, AND it was my birthday, AND did I mention I was very hungry?  As he grabbed a plate to wait in the loooooooooooong regular buffet line, I snuck over to the dessert buffet, perchance to find something healthy I could eat in lieu of waiting in the regular buffet line.  Lo and behold, I found desserts containing all of the major food  groups:

For protein, the custard and pecan pie (eggs and nuts) fit the bill.

The bread pudding counted as a grain.

For fruit, the strawberries with whipped cream and the blueberry cheesecake offered a sufficient amount of fruit, with the whipped cream and cheesecake also fulfilling the dairy requirement.

I had a little more trouble finding two servings of vegetables, but I solved that by choosing two pieces of carrot cake.  (A person’s got to do what a person’s got to do…)

I lined all of the pastries expertly up my arm and 3 fanned out in my hand like a diner waitress.  (Waitressing is a skill one never loses…)  I easily carried my little treasures back to the table, and chowed down. Mmmmmmm……..I hadn’t had desserts in so long it was SUCH a treat!  I savored each morsel, smiling on the inside as well as the outside.  I had managed to finish them all, had the waiter clear the table, and ordered a cup of tea before my husband came back from the regular buffet.  He was fuming at the long wait, and indicated there was a meat slicer who was obviously  new.  She took F O R E V E R to slice the prime rib and turkey and strategically place each piece daintily on each person’s plate. As he sat down, he looked at me, smiling, drinking my cup of tea. He asked “Aren’t you eating?” To which I replied, “I’m just sitting here enjoying my tea.  I think I will join you when you go up for dessert…”

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PS.  I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

Easter reminds me of the Easter Bunny and the Easter Bunny reminds me of Santa…

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Easter.  Ham.  Easter Eggs.  Jelly Beans.  Marshmallow peeps.  Chocolate Easter Bunnies, (see picture.) AND the EASTER BUNNY!!

(Spoiler Alert:  Do not let anyone under the age of 7? 9? 12? read any further.)

 

I am sure that most of us of a Christian faith believed in the light, magical myths of the Easter Bunny, the Tooth Fairy, and Santa Claus.  Bah Humbug!

My realization that there was no Santa Claus happened on the day before Easter when I was seven years old.  Friends and I were playing hide and seek in our house, and my hiding space of choice was my mother’s closet.  I opened the door and plopped in…right on top of a cellophane wrapped Easter basket!  I could feel the jelly beans fall out, trickling down my legs, and the weight of my body squishing the basket with a sickening sound.  As the marshmallow peeps were flattened, my childhood fantasies vanished before my eyes!  It was only reasonable to assume if my mom pretended to be the Easter Bunny, then the Tooth Fairy and Santa Claus were also non-existent.

This was actually a good realization for me.  For many years I had questioned Santa’s fairness.  If he was omnipresent, then how did he not know what I wanted to Christmas?  Even when I sat on his lap and told him…repeatedly…and wrote letters…repeatedly…he still did not bring me that all important, desperately desired, Barbie Doll for which I had asked. The Santa who came to my house had always disappointed me.  Having parents who were obsessively frugal, Santa would bring me unexciting gifts…a new toothbrush, a t-shirt, hair ribbons, and small bottles of shampoo (which I later learned came from the times my father traveled for work and stayed in hotels.) One year I even got 3 pairs of underwear that were much too big, but, judging from the price tag which Santa had neglected to remove, they were on sale for an unbelievably low price!   As a child, I could never understand why my friends and classmates received wonderful gifts of not only Barbie Dolls, but Barbie houses, Barbie cars and tons of Barbie accessories.  They would receive many, and I longed to own just one… but it was not meant to be.  When playing with my friends, they were always kind enough to share “Midge”, Barbie’s “best friend”.  While I appreciated this, I still felt resentful of their good fortune.

It wasn’t until I realized that Santa Claus did not exist that I understood that my parents had purchased all of those “gifts”.  As my childhood revolved around my dad’s “crazy” obsessions, I suddenly understood the significance of the gifts.  It wasn’t that Santa didn’t love me, or that I was somehow less worthy than my friends, or even because my good behavior wasn’t appreciated, it was because our family life was very different than most other families. And I took some solace in the fact that my dad, on his work trips, was thinking of me when he brought home the shampoos.

The whole concept of “Santa” has been a difficult one with my children. My oldest son, Francis, who is blind, hated the thought of having a stranger he could not see come into his house on Christmas Eve.  It was the one night of the year that I let him lock his bedroom door.

One year, I made the huge mistake of hiding the gift of a Little Mermaid comforter set underneath Dinora’s bed.  When she discovered it, she became hysterical, screaming that Santa had been in her room and he could have hurt her!  (She was going through a particularly rough phase with PTSD where she was seeing apparitions of “Bloody Mary”, so her sensitivities to having Santa in her room were heightened.)   She was only five at the time, and the only way I could calm her down was to admit that Santa did not exist, which caused her to cry even harder at the loss of this icon.

Steven, with his autistic tendencies, never did admit that Santa existed.  He was used to his strict schedule, and gifts from a stranger were not a welcome change.  He would wake  up every Christmas morning, walk by the Christmas tree under which the gifts sat, go down to the kitchen to grab breakfast, and sit in the family room to watch The Animal Planet on television.  It was his familiar routine…he never did acknowledge or look at his gifts. (In fact, to this day I have the SAME bag of gifts.  I bring them out every Christmas Eve, and pack them up every Christmas Day, only to be brought out again the following Christmas.  It is very selfish to say, but I have saved a LOT of money by not buying him gifts!)

Angel, my son with Dissociative Identity Disorder, (multiple personality disorder) had a great time each year developing his very eclectic request for gifts to satisfy his many “parts”, male, female, baby, toddler and his appropriate age.  I am sure that not many other boys asked for a complete manicure set along with baby rattles, Superman and Spiderman toys, and a complete bow and arrow set, (don’t ask…)  The problem that developed was that Angel had finally begun to trust me, a conviction he had previously  not held in his four other foster placements. Everyone else had lied to him and let him down.  But here he was in our family with a family he could finally trust, a family that would not lie to him, a family in which he felt safe.  When he found out that Santa Claus was a lie, he felt devastated, furious, betrayed, conned, tricked and misled.  This lie has left an indelible mark on his life, one which he continues to discuss with a counselor.  Every single time I have gone into a therapy session with him, the fact that I am a liar comes up, and that lie is always about Santa Claus. While it is easy for us to say “just get over it”, for him, it has been impossible.   If only I knew then what I know now, I would have done things very differently.

Marie, I am embarrassed to admit, was a young teenager who STILL believed in Santa Claus.  Learning from my experience with Angel, I have never perpetuated this myth on her, but she came to live with us with this belief.   Because Marie is deaf and developmentally delayed, she had few opportunities to “heard” or learn that Santa is not real. This became very apparent to me last Christmas.  On Christmas Eve I put out the individual bags of gifts from “Santa”, which included one expensive item for each child, (a DVD player, Gameboy, camera and so forth.)   On Christmas morning, Marie woke up before all of us and deftly went through the bags, taking out all of the expensive items and putting them in her bag, leaving the other children with only minor items.  She excitedly showed me the wonderful bag of gifts Santa had brought; HER gifts, along with the valuable gifts from everyone else’s bag.  I was mortified to think she would be so selfish, and I told her so!  I told her that there was no Santa Claus and that I had bought the items and they were not all for her.  She tried in vain to argue with me that Santa left them all to her because she had been good, but both of us knew better…

So, this has been a long winded way of saying I DISLIKE SANTA!!!  While he may be a wonderful myth to many, for me and my children, he has been nothing but trouble. BAH HUMBUG!!!!!

The Easter Bunny?  Hey, SHE’S okay…

 

 

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

 

Oh NO! More SNOW!

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Another snowstorm!!!! I completely understand why older people move to southern states when they retire. Winters are COLD!  My fingers get chilled just thinking about it, and the snow keeps piling up!

I do not enjoy the winters as I used to.  I remember pre-children when my husband and I would go skiing.  One day it was 10 degrees below zero. We were all excited it was so cold because that meant that the ski slopes would not be as crowded and we would not have to wait in line for the chairlift.  We bundled up with layer upon layer of warm clothing with not an inch of skin showing lest if freeze and fall off. We skied all day.  At one point, we stopped at the top of the mountain and viewed the surrounding area.  With the sun blazing down on the shiny snow, we saw snowcapped mountains in the distance, little villages, frozen lakes and the ant specks that were cars, and I was overcome with awe for nature.  It’s a good thing this memory is frozen in my mind because these days, you’d never get me on top of a cold, frigid mountain again!

Several years ago, after several major snowstorms, there was an 8 foot pile of snow made by the snowplow. The kids managed to shape it for sledding, and they had great fun sliding down.  At one point, Steven climbed to the top of the pile and all of a sudden he disappeared!  He had fallen deep inside the snow pile! It was like he was buried in an avalanche! Another heart stopping moment for me.  Fortunately, we managed to pull the snow from around the top of the pile until we could pull him out.  He was laughing because it was such an adventure, and he begged to do it again.

Several years ago, my husband received an old snowmobile as a “gift” from a friend.  One day, he was riding it in our large backyard with my son Steven sitting in the front of him.  Raymond decided to Steven drive.  Excitedly, Steven turned the handlebars to give it gas.  The snowmobile took off in a lurch and my husband was thrown from the back of it in an amazing double somersault. (A “10″ if he were rated in the Olympics for gymnastics off the back of a snowmobile.)  Steven and the snowmobile zoomed on, headed right for the shed in the backyard.  His life flashed before my eyes and I thought “This is what it feels like to see your child die.”   My heart was in my stomach and I felt like I wanted to vomit and scream at the same time. Fortunately, unbeknownst to me, if you let up on the handlebars, the machine stops. This is exactly what Steven did. Then he turned around and noticed that his father was missing! And he had stopped within a foot of the shed. He did not realize how serious it was, and laughed at my husband, still feet up in the snow. It took a while for my heart to start beating again, and I vowed Steven would never again be allowed to drive a snowmobile.  So, my husband did the only smart thing a father could do…he sold that snowmobile and he bought 2 news ones so we could go snowmobiling as a family!  Ugh! We trekked up to New Hampshire to go for a nice, winter vacation. Because Steven could not drive, and because at this time Angel was also living with us, I was forced to go along as the second driver.  If you have not ridden on a snowmobile, the closest description is as if you are riding motorcycle on skis.  In the ice.  And the cold. And did I mention the ice? Because I had never even ridden a motorcycle, I was very nervous. I started the machine, jerking it as Steven had done when he tried to drive it. Fortunately, Angel had his arms firmly wound around me and he didn’t fall off.  I was so scared and it was so awkward to drive that I could only creep along at 5-10 miles per hour, much to my husband’s dismay. (Dismay is putting it mildly.) To make matters worse, my husband did not choose the nice, empty, safe fields to ride in.  NOOOOOO!  He chose the skinny, trees whipping by your head, narrow snowmobile paths with TRAFFIC COMING IN THE OTHER DIRECTION!  That one day of snowmobiling was the scariest of my life.  Once we began on the trail, there was no turning back!  My hands were shaking, my body was sweating even though it was freezing out, and my imagination had my head being whipped off by a tree branch.  I did enjoy the nice, friendly wave the snowmobilers in the opposite direction were giving us, and each time we passed them, my hand went up to wave back.  (I later learned that the opposing snowmobilers put up the number of fingers for the number in their party.  3 fingers for 3 people, and so forth.  I realized that each time I waved, I was telling them that we had 5 people in our party.  Oh, well, I won’t do that again because I won’t do THAT again…go snowmobiling.  Fortunately, Angel did not enjoy it either, so he and I spent our time shopping at the factory outlets while Raymond and Steven went out on the trails.

At home, there is a pond in our backyard.  Marie loves playing outside in the cold, going ice fishing, building snowmen, and, most of all, playing hockey.  She dresses warmly from head to toe…black snow pants, black jacket, a hat which covers most of her face, several pairs of gloves topped with hockey gloves, and boys hockey skates.  She takes her hockey stick and skates around the lake to the various hockey games trying to get an invitation to play.  From looking at her all bundled up, you cannot tell if she is a girl or a boy.  She is not verbal, so they cannot tell from her voice.  (She points to her ears for them to know she is deaf.)  She would normally use sign language but with hockey gloves this is next to impossible.  They always let her in because she is a good player.  If one group stops playing, she will skate around and find another group.  She reminds me of a female Batman for hockey…slinking into games, her identity unknown…showing up out of the blue when a team needs a player!

Winter is alive and well with my kiddos, who enjoy it as I did when I was a child.  They love the snow and all the activities, but now thatI am older I get chilled easily…(picture granny in the rocking chair with a blanket around her.)  I sit by the picture window, near the fireplace, drinking hot chocolate with mountains of marshmallow and I watch them having fun outside.  As parents, we all know that watching our children be happy and have fun is even more fun than doing it ourselves. I am a happy mommy.  Let it snow!

^^^^

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

“Look Mom, no trees!”

Skiing460

My son Francis is amazing!  Although legally blind, he has led an incredibly successful life.  I think one of the reasons he has done so well is because he was raised without having a disability. If that sounds odd, you have to define disability as not having the ability to do what one wants in order to lead a full and happy life.  With proper modifications and technology, Francis has never been held back in any area of life.

Of course, we have chosen achievable goals when he was growing up. One of the many topics we tackled was how to fit sports into his life. Of course he could not play baseball or soccer, but he could be on the wrestling team and swim team. (He excelled and won championships in both areas.) The one sport that I worried about  was his skiing.  He learned at an early age to traverse the White Mountains in New Hampshire with a sighted guide skiing in front of him, usually his dad.  This petrified me because I was afraid he was going to ski into a tree and die. The fact that he is still alive and kicking today is proof that he didn’t, but that did not lessen my motherly concerns.

When Francis went to college at Cambridge in England, he had the good fortune to make many friends with whom he could travel all over Europe.  One day, I received a photo via e-mail, accompanied by the comment “Look, mom, no trees!” The photo was one of  Francis in ski gear, standing at the top of a ski run in the Alps.  The sun reflecting off his dark goggles was no match for the shining smile on his face.  There were no trees to ski into because they were above the tree line.  He was safe!  And, most importantly for a mom, he cared enough to send me a picture to SHOW me that he was safe.  The little cockles of my heart warmed at the thought…what a considerate son!

It wasn’t until a few months later that I saw the news of a large avalanche in that same area and three people were presumed dead.  DEAD?  I immediately remembered that beautiful picture of my thoughtful son, and I laughed.  (Yes, I laughed.)  That picture shows that my son does not have a disability because he had the same chance of dying as the skiers buried in the snow.  He is truly successful!

*******

Links to my book:

itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

I have to laugh at myself…

Smiley Face Clip Art

I do no take much about myself seriously.  At an early age I had to learn not to care what other people think. My dad, very frugal, used to insist he give me a haircut with clippers. It was during the popularity of Mia Farrow’s short cut, so I wasn’t a real outcast because of it…except for the time when he slipped and I had a bald spot on the back of my head.  (Everyone was sympathetic because they thought I had had brain surgery…) Also, during the times of my dad’s schizophrenic episodes, he made sure to let me know that I was ugly.  Being young at the time, I believed him, of course.  However, I sincerely thought, and still think, that beauty on the outside does not matter, beauty on the inside does.

In order to “remain sane”, I do not get easily embarrassed and I have learned to laugh at myself.

For example, the other day driving near our house, I saw my husband’s work van.  Pulling up beside him at a traffic light, I excitedly began to wave and blow kisses.  Until, upon further examination, I noticed that it was not my husband driving, but some other electrician with an identical white van, same ladders on top and roles of wire in the back.  (Go figure there would be another white work van like my husband’s. They are so RARE!)  Anyway, the driver looked at me like I was crazy, and I started laughing.  It was SO funny!  In between giggles, I mouthed the words “sorry, wrong van!”  and I took off so fast when the light turned green that I could have been a contender in a NASCAR race.

At our church picnic last summer, I was organizing the photo of all of the church members.  About 100 people were lined up with a few stragglers.  While walking backwards to the camera, I was giving directions for people to move in closer together. (We all know how easy it is to get a picture of such a large group, with everyone smiling nicely and looking at the camera.) All of a sudden, I tripped over my own two feet and fell on my back, arms and legs in the air.  Several people commented that I looked like a turtle on its back.  Of course, I laughed at myself. Clumsiness is a trait of mine.  So what?  Afterwards, several people came up to me and commented on how embarrassed I must have been.  Embarrassed? Why would I be embarrassed?  I thought it was funny!  (If you picture it in your head, you HAVE to laugh…)

The huge white van I drive is so tall that I have trouble getting into the driver’s seat. I usually do so by  grabbing onto the side of the driver’s seat, hold on for dear life, and alternately pull and wiggle up into the seat.  Sometimes I slip, and once I even fell to the ground with a thud. (Maybe the thud was in my head…because I  doubt the ground actually moved…)  My husband and sons always laugh at me when I get into the van, and I laugh with them.  What else am I going to do?  Well,  I COULD have ridden up on the wheelchair lift on the side of the van, but that wouldn’t be as much of a challenge.

Then there is the story about what happened last week when I met a good friend who is blind for lunch.  I admit I am quite lazy in the morning, (often reading blogs, of ALL things,) and I did not have time to put on any make-up.  As is usually the case, I put it on in the car when I stopped at read lights.  Because I keep one eye on the light and the other on the mirror,  I do one eye at the time; eye shadow and mascara.  It makes a dramatic difference as my eyes are usually kind of squinty and tiny and tired looking.  I often look in the mirror with one eye done and think I look like a “before” and “after” picture on aging, all on the same face.  Anyway, on this particular morning, I was lucky and got mostly green traffic lights.  When I arrived at the restaurant, I excitedly jumped out of the van and ran to meet my friend.  (Getting out for breakfast with a friend is a rarity for me.)  Just as I got inside the restaurant and said hi to my friend, I remembered I only had enough red lights to put make-up on one eye.  ”Oh, well” I thought, “there is nothing I can do about it now as my make-up bag in the car and I am way too lazy to go back and get it.”  I figured that, being blind, my friend wouldn’t care.  And when I sat in the booth, I made sure to put my “good eye” on the side the waitress was.  I figured it I always looked ahead, she wouldn’t notice either!  I had a wonderful breakfast and, with a little laugh to myself, I never thought about it again, (until later in the car when I stopped at the next red light and finished the job!)

The moral of my story is…be comfortable with yourself and don’t care what other people think. Life is too short to spend it worrying or bothered by what you may perceive others think of you. Sometimes what you think they may think may not be what they think at all! And if they ARE thinking it, have the confidence to laugh it off!

******

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

All on Equal Grounds

I received a wonderfully insightful comment from  nancyaruegg.com  at “From the Inside Out”that I would like to share:

“Your attitude about your life-calling is an inspiration in itself.  You don’t consider yourself a martyr.  Instead, you see your background as preparation for what God has called you to do, and you take pleasure in the fulfillment it provides.  No accolades necessary.  My takeaway:  Each of us has been formed and prepared by God for a unique purpose.  We can each embrace our own.  Thank you for your inspiration!”

To which I responded:

THANK YOU! THANK YOU! THANK YOU!  You have great insight into the way I feel.  I really love raising my kiddos, and I think I am pretty good at it.  However, I am no more remarkable at it than the friendly waitress who served us, carrying that huge tray of food without spilling a drop, pre-eminently bringing us extra napkins and salad dressing on the side, pleasantly refilling my glass of Diet Coke ten times, and splitting our dessert on two different plates each filled with its own whipped cream.  

No more remarkable than the teachers who teach my children with great compassion and understanding, imparting educational wisdom on them even though I can’t get them to make their beds.     teacher-give-chance-to-students

No more remarkable than the truck driver who hauls the oranges up here from Florida, going for days without seeing his family, stopping to take cat naps at the rest stops; I would have gone bonkers with loneliness after the first half hour, would have had to stop every 50 miles to pee, and would have fallen asleep at the wheel after three hours.

No more remarkable than the individual with a developmental disability who works as a bagger at the grocery store, who carefully puts the heavy items on the bottom of the bag where I would have thrown the cans of tomatoes right on top of the bread and the carton of eggs in upside down.  

No more remarkable than the dental hygienist who cleans my teeth while I whine like a baby, offering calming words and a smile I can see by the crinkling of her eyes, because her mouth is covered in a mask, (or is she really laughing at me?)

No more remarkable than the computer designer who works magic in the computer world, enabling me to play games, use e-mail, research projects, make the print larger, (for my older eyes which refuse to accept glasses,) and BLOG!

No more remarkable than the pastor who preaches, imparting words of wisdom and hope to his congregation, of which I am a humble part.

No more remarkable than the bus driver for public transportation, who cheerfully stops to pick up strangers, dropping them safely at their destinations, (when I would have surely clipped a few mailboxes, and maybe a few pedestrians, and I sure would have shut the automatic door too quickly on someone’s butt.)

Yes, the waitress, the teacher, the truck driver, the grocery bagger, the dental hygienist, the computer designer, the pastor, the bus driver and any other profession where you know someone loves his/her job, we all have one thing in common; we are good at our chosen jobs. No accolades necessary, success is the feeling of a job well done.  

This is the life we choose to lead, all on equal grounds.   

******************

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

 

He Ain’t Heavy, He’s my Brother

I led a very untraditional lifestyle when I was growing up.  My father, whom I later realized was schizophrenic, had the wanderlust to travel, which our family did for about 6 months of the year. He would remove me out of school and we would take off for various areas of the country, living in our Volkswagen van. ( Although I am sure that today’s public education system would not allow it, somehow I think my father would have taken me out anyway.)

It was quite an adventure for a child like me.  I have a vivid memory of cracking eggs in a big, black, iron frying pan over a campfire in the Badlands in South Dakota.  The rocks the pan was on were not sturdy, and the pan fell sideways with the eggs slowly leaking out onto the pine needles on the ground.  (Clumsy then…still clumsy.) I remember traveling in southern Georgia, driving for miles watching red clay cover everything…the houses, the cars, and even the clothes hanging on the lines.  It was at the beginning of the civil rights movement, and I was uneducated in this area, (probably because I didn’t go to school!) The whole concept of a bathroom for “whites only” was a shock to me.  Did that mean that only people wearing white clothes could use it?  (I’m picturing nurses, dentists, pharmacists…)  I couldn’t use it because I had on my only pair of pants, jeans, and a multi-colored t-shirt. But I had to go to the bathroom baaaaad, where would I go?  Behind the bushes? How degrading!  My misunderstanding of this concept is now a slight reminder of what it felt like be African American in the 60′s. I also have the memory of  a bear at Yellowstone Park coming onto our campsite to eat our dinner as we all huddled in the car. My brother, Curtis, was upset because he had left a package of Cracker Jacks on the picnic table.  We had to restrain him from leaping out of the car to get it.  Afterwards, I was not so keen to sit by the campfire…

But most of all, I remember my constant companion; Curtis.  He was four years younger than I was, and he had been born with Rubella Syndrome; developmentally delayed, cleft palate, legally blind, and severely hearing impaired.  He was my buddy.  Because my dad was extremely frugal, (ie obsessive compulsive disorder frugal,) I did not have many toys to play with.  So, in addition to reading a lot, I played in our surroundings with my brother.  I have a memory of  sitting by a stream, sun shining down on the water through the leaves on the trees. Curtis was happily splashing about in the shallow water.  I was looking for rocks that somewhat resembled people.  (They were no Barbie dolls, but some kind of looked like Alfred Hitchcock and Potato Head.) All of a sudden I heard a whoooooosh!  Curtis had ventured too far into the water and the current started to carry him downstream!  Fortunately, I had long, slim legs (in those days,) and with a few strides, I picked him up by the back of his pants. He was laughing heartily.  To him it was a real adventure.  Like the poor person’s substitute for a ride at Disneyland!

We actually had a lovely childhood together. I had to carry him everywhere because he could not walk sturdily.  Carrying him was just a natural way of life for me.  I don’t know why, but I never thought to be embarrassed by him, (although his screeching and attempt at speech WAS pretty scary).  I never ever thought of him as a burden.  He was just my buddy, Curtis.

75502-004-47C41965

My parents rarely took pictures.  (The money thing again…) But I do remember ONE picture.  It was a picture of me and Curtis, standing in front of Mount Rushmore.  I was characteristically giving him a piggy back ride.  The photo shows Curtis, looking over my shoulder, eyes squinted shut by the glare of the sun.  I was wearing a stupid, treasured, red velvet derby hat, (you know, like jockeys wear.) As the dead presidents loomed behind us, I gave my characteristically stupid, toothy grin, (like all children do when their parents ask them to smile.) And on that day, I first heard the song from Neil Diamond which fit my sentiments exactly: “He Ain’t Heavy, He’s My Brother”.  It was a powerful moment to think that someone had put into words what my life was like.

I was so very lucky to have been raised the way I was because it formed my personality, my temperament, and my compassion for others. I personally cannot take credit for the way I live now, fostering and adopting children. I am not selfless, nor amazing, nor wonderful, nor any of the other adjectives readers have used to describe me. I am simply living my life the way I was raised and it is a wonderful life!

****

 

Link to my book  The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

 

He Ain’t Heavy, He’s My Brother Lyrics

The road is long

With many a winding turn

That leads us to who knows where

Who knows where

But I’m strong

Strong enough to carry him

He ain’t heavy,he’s my brother

So on we go

His welfare is of my concern

No burden is he to bear

We’ll get there

For I know

He would not encumber me

He ain’t heavy, he’s my brother

If I’m laden at all

I’m laden with sadness

That everyone’s heart

Isn’t filled with the gladness

Of love for one another

It’s a long, long road

From which there is no return

While we’re on the way to there

Why not share

And the load

Doesn’t weigh me down at all

He ain’t heavy he’s my brother

He’s my brother

He ain’t heavy, he’s my brother

He ain’t heavy, he’s my brother

written by Bobby Scott and Bob Russell

performed by Neil Diamond in 1970

******

 

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

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