Archive for the ‘parenting’ Category

A Name a Ventriloquist Would Love…

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We had to put our  beloved dog, Brandy to sleep last summer, and our house has been empty, dog-wise at least, until Jody, a labrador/poodle mix came to live with us a month ago.  She is a sweet three month old, with a lot of energy and not much common sense.  Of course, she is still a baby and I guess babies themselves don’t have a lot of common sense, so I shouldn’t be so harsh.  After all, babies don’t come out of the womb knowing how to use the toilet, so why should I expect anything different from a puppy?  The problem is,  she is a fanatic about only peeing on a pile of newspaper.  We have to be very careful not to leave any paper lying around lest she pee on yesterday’s top story which I have not had a chance to read.  We have been desperately trying to get her to go outside, but she has developed this irrational fear of  going anywhere OTHER than on the newspaper.  She seems to be very stuck in her ways, because at the dog park she ran around and played with the other puppies for a few hours, and she did not leak so much as a drop of pee.  Have you ever heard of a dog that plays in an area where there are other dogs and it does NOT mark it’s territory, or at least leave a little fragrant sample for others?  Not Jody…she held it in until we come home, when she ran straight for the newspaper and peed a massive amount, like she has been holding it all in for hours, (which she clearly HAD.) Poor President Obama’s news would not get read that day.

I began to move the newspaper closer to the back door so she would get the idea that she should be doing  it outside.  She was getting there…closer and closer.  Finally, I eliminated the paper altogether and left the back door open for her to go outside whenever she wanted.  (Fortunately, it was not one of those days where we got a freak snow storm.)  She went outside to play.  She went outside to dig in the dirt.  She went outside to swat bugs from her face.  She went outside to chew on the branches of a nearby tree.  But she would not go outside to pee.  Sensing her distress, I did the only thing I could think of; I put a piece of newspaper outside. She ran straight as an arrow to use it.  Now, she goes to the door, barks, I let her out, and she pees on the newspaper.  If there is no paper, she looks at me with a forlorn expression, and just stands there…it appears that my newspaper subscription will have to be doubled!

Yesterday, I drove Jody up to visit with Marie, (who attends a  residential school for children who are deaf.) Marie loves animals, but they do not take to her too kindly because her semblance of speech is loud and guttural, (even scaring me if I was alone in a dark room and didn’t know she was there.) When she called the dog, she scared the poor puppy, which cowered. Marie looked at me with a great sadness. HOW could the puppy not LIKE her?  Then she called the dog again, but as I stood behind her, under my breath, I also called the dog, which came running to us.  Marie angrily turned and looked at me.  ”YOU called her,” she signed in ASL, “I saw your lips move”, obviously with the eyes she has in the back of her head.  She was devastated the dog would not come for her alone.  So, we tried it again.  This time, I put a large smile on my face and forced a cheery “Jody!!!” through my smile, not moving my lips.  The dog came running, Marie was happy that I had not called her, (?) and my lips didn’t move a bit!  (Try it….)  The fact that her friends and teachers to whom she introduced the dog were also deaf was also a lucky break on my part because they couldn’t squeal on me.

Okay, so it was a little bit dishonest on my part, but what parents don’t do things a little bit out of the ordinary to see their children happy?  Nothing feels better than the warm heart you get when you see your children smile, and Marie was smiling a lot that day.  Besides, the dog will soon learn to love Marie as we do, even though she can be a little loud and scary…

 

 

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I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

Have You Ever Run out of Clean Underwear?

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My husband and I took a little “romantic trip for two” last weekend, so I did not get my usual laundry done. This week, being school vacation, saw me working 60 hours coordinating an educational and recreational program for children with disabilities.  It was an awesome, fun week, and the kiddos were a joy!  However,  by the time I dragged myself into the house in the early evening, I had no energy to do any type of cooking/cleaning/thinking/talking or moving. The only movement I could muster up was my index finger on the TV remote…

Getting dressed this morning, there was not a piece of clean underwear to be found. Not in my underwear drawer, in the dryer, under the bed, on the floor of the bathroom, in the puppies bed, or in the refrigerator. (You never know…)  What was I to do?  It briefly crossed my mind to not wear any, but that idea was quickly tossed aside.  In “my” generation, we just didn’t DO that.  So, I dug up the only pair of underwear left…the unworn g-string bikini bottom to a baby doll negligee I had brought on our romantic weekend. (I always optimistically pack several “outfits”…)  Slipping the bikini on, it was immediately apparent that it were not going to adequately cover all of my “private areas”, but it was either that pair or nothing, and nothing was not an option.  The thought of getting into an accident and having the paramedics see a woman my age wearing a g-string bikini did seem horrifying, so I promised myself I would drive very carefully and walk very slowly all day so as not to get into an accident or trip and fall…

Finding a bra was almost as difficult, but in the back corner of the drawer was  one bra that had eluded trash day.  The straps were so old and loose that it did not properly support my breasts in the manner to which they are accustomed.  Other than going braless, which would surely have traumatized a few people, I put on the saggy resemblance of a bra. To say that my breasts came within inches of my waistline is not an exaggeration.  But it was better than down to my knees…

Finding a shirt was almost as difficult, but way in the back of my closet was a “beautifully” flowered shirt that I used to wear when I was two sizes larger.  For some reason I’d always loved that shirt because it was “comfy”, so on it went.  At least with all of the bold flowers, my sagging breasts were not so apparent.

For pants, I wore the same pair of jeans I had worn earlier in the week.  Jeans seem to be the one item that do not have to be washed every time they are worn.  Of course, when you wear them a little more than you should, they DO get baggy in all the wrong places, which resulted in a bigger rear end than I would normally sport.  Fortunately, the flowered shirt was so large that it completely covered this area anyway.

The biggest challenge, even when I DO the laundry, was finding a pair of matching socks.  I looked ALL OVER….and I was thrilled when I finally found a pair of matching red and white striped socks.  Of course, the stripes were on candy canes, and  big red Santas graced the top band of the socks, but at least they matched!

My Dansko shoes, (the only type I can wear comfortably,) were on the porch where I had taken them off.  Unfortunately, Jody, our new puppy, had decided they made great chew toys, and she had chewed the decorative leather band  around the top of them.  Fortunately, she had chewed them both equally so they at least matched…

I quickly tried to fix my unruly hair, which can usually be coaxed into a semblance of curls and puffiness. Not today.  Today it refused to be tamed.  My hair is longer than usual because there has been no time to get a haircut, so it is super fluffy and frizzy, and standing on end all around my head like a wild lion mane.  Better than that….like Phil Spector…

Looking in the mirror, I assessed my appearance. Hair unruly enough to scare  Frankenstein.  Saggy breasts under a garden explosion of a shirt that was so large my daughter could have fit in it with me. Saggy jeans, which are somewhat of a relief because they do not fit tightly enough to force the bikini bottom to slide up into my butt. Shoes missing the decorative strap, but otherwise presentable.  And white and red striped socks…not too bad if you don’t look at the top of them.  I was “passable” as long as I stood up all day lest people see the Santas on the top of my socks. Then I would look REALLY ridicules….

 

 

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PS. I have recently been honored with a special award from http://lyricsonthelake.wordpress.com/2013/04/29/because-why-not/:

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I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.  I do promise to dress properly…

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

I Lost All of My Money at the Casino :(

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I admit it… I LOVE to gamble; to play the slot machines at the casino.  It is one of my wicked vices. (I’ll bet you are all shocked to hear such an admission, which I have been consciously keeping from you so as not to tarnish my good image.)

It goes back to the days when I was a young adult.  My mother and my brother loved it when I took them to a casino in a nearby state.  We would take a day trip sponsored by a local bus company, and for a mere $25 fee, we would get a coupon for a free buffet and a coupon for $25 in gambling money.  As my mother was extremely frugal, this deal was enticing to her, and it allowed the three of us to have a nice day together.  My brother, who was severely developmentally delayed, legally blind, deaf, and schizophrenic, loved the long ride on the bus, to eat at the buffet where he could choose all of his favorite foods, and to enjoy all of the bright lights. But his favorite thing to do was to play a martian slot machine.  In his schizophrenic haze, he thought of himself as an alien, so he felt somewhat vindicated to see a slot machine “of his people.”  His $25 in free gambling money would last for hours as he would always bid the  minimum, 5 cents.  Every time the symbols on the machine matched, aliens would swoop down to bring them into their spaceship.  With his eyes pressed close to the machine to see, my brother joyfully whooped and hollered every time that happened.The money he won was secondary. He was in his “element”, something which he rarely felt elsewhere. Plus,my brother loved Diet Coke,and he could get all of the Diet Coke he wanted free. (We had purchased a refillable plastic cup one time, and my mother held onto it like gold…washing it and bringing it to every visit to the casino….for years my brother was thrilled to get free soda!)

My mom would always cash in her $25 gambling voucher.  She did not believe in gambling and preferred to take the money in cash, which to her meant a great day out with a free trip and buffet.  Her joy over a great bargain was greater than her playful spirit. She was certain that the machines were fixed, and that they “let you win” in the beginning, and then, when your money was gone, you would put in more and more, never winning again. Although I thought this idea was ludicrous, I have to admit that, over the years, I have seen this happen time and time again…those crafty slot machines!!!!  Regardless, I LOVED to play the slots. I would have to sneak away from my mom because when my $25 voucher ran out, (as it ALWAYS did,) I would play my own money.

And so it was yesterday, when I took a similar bus trip with the recreation group of adults with disabilities that I coordinate.  (After all, just because they have a disability doesn’t mean they should be excluded from loosing their money at the casino like the rest of us!)  It was during that trip that I lost all of my money.  As the last few cents dwindled away in the slot machine, I felt a sick feeling in my stomach.  I was so sure I was going to win!  It was FATE for me to win, because I really needed the money and therefore God could work his “magic” and allow my machine to his the jackpot, therefore getting me out of debt.  Isn’t that the way God works?  Unfortunately not…

As my money ran out, I sat there sad, disappointed, and frantic. What would you all THINK of me? How was I going to buy lunch for the rest of the week?  How could I have been so STUPID?!?!?! All my money was gone…

It is a good thing I only brought $20 with which to gamble…

Another Daughter to Celebrate!!

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For those who know me, you may be sure that I am referencing a new foster or adoptive child. Not this time! This time, my new daughter is my son, Francis’, new wife.  She is wonderful and sweet and recently blew me away with the Mother’s Day Card she sent.  Separate from my son’s, she sent a beautifully designed Papyrus’ Mother’s Day Card with 3-D flowers and a lot of sentiment.  But the sentiment that was most important was what she wrote inside; “Thank you for being such a great mom and raising such a wonderful son!”  Isn’t it thoughtful?  I now officially have another “daughter” and she’s all grown up.  I didn’t have to  do a thing…

I Feel Like We Know Each Other! Thank You!

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I don’t want to make a big deal out of it, as I try to be humble, but I have just reached an unbelievable milestone:  6,000 followers!  It really IS beyond my comprehension how my little blog has attracted so many.  The funny thing is, I feel like I KNOW all of you!  That we are FRIENDS. Just chatting over a cup of tea.  About life and making the best of what life throws at us. Together.

Thanks for being there!  You are a blessing to me.

 

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

It Was The Best Movie EVER, and It Had Nothing to Do with the Title…

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I apologize to those readers who have read this post from six months ago.  However, as I spend my weekends with Marie, this major development never ceases to thrill and amaze me, and it bears repeating…

Yesterday my daughter, Marie, and I went to the movies.  The name of the movie isn’t important, (except to say it was  a Pixar film.)  The reason it was so great was because, for the first time since we adopted her nine years ago, I finally got to sit and relax and enjoy the movies!

Marie is profoundly deaf and communicates in American Sign Language.  The movies we tend to see are movies such as Shrek, Finding Nemo, Ice Age, Madagascar and so forth. The negative thing about these wonderful movies is that there is no way Marie can lip read what the characters are saying.  ”I love you so much” can look like “Go jump in a dump.”  In order for her to enjoy the movies, we have long sat in the last row, underneath the single emergency light in the far left corner, and I have “signed” what the characters are saying.  Although my signing isn’t fluent, she laughs in all of the appropriate places, so I am happy.  (A happy child makes for a happy parent.)  The bad part of all of this is that I don’t get to really enjoy the movie.  I am so busy signing that I don’t get to see what is happening on screen. PLUS, (major disappointment…sob…sob….) I don’t ever get a break to eat any of the popcorn Marie happily munches away on.

Then came rear window captioning.  It sounds like a great idea. It is basically a screen of plexiglass that sits in the cup holder and it has to be positioned JUST RIGHT in order to reflect back the words that are coming off the projector at the far end of the auditorium.  The problem with Marie is that she also has ADHD.  She fiddles with it and fiddles with it until it is covered in popcorn butter and it is impossible to read the words. Plus, it must be damn annoying to the movie patrons sitting anywhere near us.

Well, yesterday the heavens opened up and dropped down a device only God could have made to relieve me of my signing duties…a small device that also sits in the cup holder but has closed captions.  Marie positioned it perfectly to fit her view of the screen the same as she watches closed captioning on television.  To her it was no miracle.  She’s used to closed captioning, and it probably didn’t mean all that much, because she gets to enjoy the movie either way.  But for me, it WAS a miracle. For the first time in NINE YEARS I finally got to enjoy that delicious (?) movie popcorn and I could watch the movie and actually enjoy it.  It was the BEST MOVIE EVER!!!!!

 

 

 

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I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

Easter reminds me of the Easter Bunny and the Easter Bunny reminds me of Santa…

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Easter.  Ham.  Easter Eggs.  Jelly Beans.  Marshmallow peeps.  Chocolate Easter Bunnies, (see picture.) AND the EASTER BUNNY!!

(Spoiler Alert:  Do not let anyone under the age of 7? 9? 12? read any further.)

 

I am sure that most of us of a Christian faith believed in the light, magical myths of the Easter Bunny, the Tooth Fairy, and Santa Claus.  Bah Humbug!

My realization that there was no Santa Claus happened on the day before Easter when I was seven years old.  Friends and I were playing hide and seek in our house, and my hiding space of choice was my mother’s closet.  I opened the door and plopped in…right on top of a cellophane wrapped Easter basket!  I could feel the jelly beans fall out, trickling down my legs, and the weight of my body squishing the basket with a sickening sound.  As the marshmallow peeps were flattened, my childhood fantasies vanished before my eyes!  It was only reasonable to assume if my mom pretended to be the Easter Bunny, then the Tooth Fairy and Santa Claus were also non-existent.

This was actually a good realization for me.  For many years I had questioned Santa’s fairness.  If he was omnipresent, then how did he not know what I wanted to Christmas?  Even when I sat on his lap and told him…repeatedly…and wrote letters…repeatedly…he still did not bring me that all important, desperately desired, Barbie Doll for which I had asked. The Santa who came to my house had always disappointed me.  Having parents who were obsessively frugal, Santa would bring me unexciting gifts…a new toothbrush, a t-shirt, hair ribbons, and small bottles of shampoo (which I later learned came from the times my father traveled for work and stayed in hotels.) One year I even got 3 pairs of underwear that were much too big, but, judging from the price tag which Santa had neglected to remove, they were on sale for an unbelievably low price!   As a child, I could never understand why my friends and classmates received wonderful gifts of not only Barbie Dolls, but Barbie houses, Barbie cars and tons of Barbie accessories.  They would receive many, and I longed to own just one… but it was not meant to be.  When playing with my friends, they were always kind enough to share “Midge”, Barbie’s “best friend”.  While I appreciated this, I still felt resentful of their good fortune.

It wasn’t until I realized that Santa Claus did not exist that I understood that my parents had purchased all of those “gifts”.  As my childhood revolved around my dad’s “crazy” obsessions, I suddenly understood the significance of the gifts.  It wasn’t that Santa didn’t love me, or that I was somehow less worthy than my friends, or even because my good behavior wasn’t appreciated, it was because our family life was very different than most other families. And I took some solace in the fact that my dad, on his work trips, was thinking of me when he brought home the shampoos.

The whole concept of “Santa” has been a difficult one with my children. My oldest son, Francis, who is blind, hated the thought of having a stranger he could not see come into his house on Christmas Eve.  It was the one night of the year that I let him lock his bedroom door.

One year, I made the huge mistake of hiding the gift of a Little Mermaid comforter set underneath Dinora’s bed.  When she discovered it, she became hysterical, screaming that Santa had been in her room and he could have hurt her!  (She was going through a particularly rough phase with PTSD where she was seeing apparitions of “Bloody Mary”, so her sensitivities to having Santa in her room were heightened.)   She was only five at the time, and the only way I could calm her down was to admit that Santa did not exist, which caused her to cry even harder at the loss of this icon.

Steven, with his autistic tendencies, never did admit that Santa existed.  He was used to his strict schedule, and gifts from a stranger were not a welcome change.  He would wake  up every Christmas morning, walk by the Christmas tree under which the gifts sat, go down to the kitchen to grab breakfast, and sit in the family room to watch The Animal Planet on television.  It was his familiar routine…he never did acknowledge or look at his gifts. (In fact, to this day I have the SAME bag of gifts.  I bring them out every Christmas Eve, and pack them up every Christmas Day, only to be brought out again the following Christmas.  It is very selfish to say, but I have saved a LOT of money by not buying him gifts!)

Angel, my son with Dissociative Identity Disorder, (multiple personality disorder) had a great time each year developing his very eclectic request for gifts to satisfy his many “parts”, male, female, baby, toddler and his appropriate age.  I am sure that not many other boys asked for a complete manicure set along with baby rattles, Superman and Spiderman toys, and a complete bow and arrow set, (don’t ask…)  The problem that developed was that Angel had finally begun to trust me, a conviction he had previously  not held in his four other foster placements. Everyone else had lied to him and let him down.  But here he was in our family with a family he could finally trust, a family that would not lie to him, a family in which he felt safe.  When he found out that Santa Claus was a lie, he felt devastated, furious, betrayed, conned, tricked and misled.  This lie has left an indelible mark on his life, one which he continues to discuss with a counselor.  Every single time I have gone into a therapy session with him, the fact that I am a liar comes up, and that lie is always about Santa Claus. While it is easy for us to say “just get over it”, for him, it has been impossible.   If only I knew then what I know now, I would have done things very differently.

Marie, I am embarrassed to admit, was a young teenager who STILL believed in Santa Claus.  Learning from my experience with Angel, I have never perpetuated this myth on her, but she came to live with us with this belief.   Because Marie is deaf and developmentally delayed, she had few opportunities to “heard” or learn that Santa is not real. This became very apparent to me last Christmas.  On Christmas Eve I put out the individual bags of gifts from “Santa”, which included one expensive item for each child, (a DVD player, Gameboy, camera and so forth.)   On Christmas morning, Marie woke up before all of us and deftly went through the bags, taking out all of the expensive items and putting them in her bag, leaving the other children with only minor items.  She excitedly showed me the wonderful bag of gifts Santa had brought; HER gifts, along with the valuable gifts from everyone else’s bag.  I was mortified to think she would be so selfish, and I told her so!  I told her that there was no Santa Claus and that I had bought the items and they were not all for her.  She tried in vain to argue with me that Santa left them all to her because she had been good, but both of us knew better…

So, this has been a long winded way of saying I DISLIKE SANTA!!!  While he may be a wonderful myth to many, for me and my children, he has been nothing but trouble. BAH HUMBUG!!!!!

The Easter Bunny?  Hey, SHE’S okay…

 

 

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

 

Sanitizer, Angry Birds, Locked Doors and Singing Toilets…What Do These Things Have in Common?

What do these things have in common?  They are “tools of the trade” for my daughter, the mother of a delightful two and a half year old!

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Things have greatly changed since my children were toddlers.  I am fortunate I never had to carry babies around in those heavy seats. I would not have been able to have more than one baby at a time, and I am sure I would carry it with 2 arms wrapped around it lest I drop it.  For the child’s own safety due to my clumsiness, I probably would have stayed home all the time! Our car seats stayed in the car and the babies and toddlers went straight into the umbrella stroller when we were out.  It was easy.  They could see the world, and my hands were free. Using the stroller also had the wonderful advantage in that when clothes shopping, they could be hung on the back of the stroller.  I had to be careful on clearance day, though, lest the weight of the clothing supersede the weight of the particular child in the stroller.  While I did misjudge several times, the stroller and the child would just fall back onto a nice, soft pile of clothing. I have such empathy for parents lugging the infant in the infant seat.  They look sooooooo heavy!

My daughter, Dinora, has child proof locks on her cupboard doors.  What a great idea!!!  I used to keep the poisonous soaps, sprays and cleaners on top of my refrigerator.  They were safe there, at least until Steven began to climb like a monkey!  Whoever thought of the lock on the cupboard doors was a genius!  Unfortunately, I am not genius level.  When I babysit for my grandson, I cannot figure out how to open the darn locks!  It appears that you have to use 2 hands to do so and my hands do not cooperate with each other.  During my futile attempts, my grandson stands there crying for his macaroni and cheese for supper, and I can’t get in the cupboard to get the box!  Those locks are childproof and grandmother proof! He doesn’t really mind, though, as he much prefers the pizza I order instead.

The other amazing “new invention” is a toilet that makes music when you pee in it!  (I am, of course, talking about a toddler potty.)  What a wonderful motivator for toilet training!  It is certainly be healthier than the M&Ms I used to give, and everyone within earshot can hear the delightful music and cheer the performer on!  The only downside leads to my next observation about toddlers these days; my daughter will need to get a different potty if her next child is a girl, who wouldn’t dream of peeing in a Superman potty.  With parents knowing before hand if they are having a boy or a girl, baby items now seem to be all girly or all masculine, with little in between, unlike in “my days” when babies wore a lot of green or yellow which would suffice for either.  I have never seen so many princesses and action heroes in my life! So much for sexism, I guess…

Imagine my surprise when my grandson climbed in my lap carrying an IPad and started to play a game of Angry Birds.  At TWO and a HALF years old he was independently using a computer!  But ANGRY BIRDS?He was lopping these little birds through the air to their deaths, feathers flying everywhere.  And giggling! This must be the training game for all of the fighting and war games that will come when he is older.

A final reminder of how much things have changed happened when Dinora, my grandson and I went out to eat breakfast in a restaurant.  While he played with child aps on the IPad, we had a lovely adult conversation with fussy interruptions.  (There were times when raising young ones that I would have died just to be able to drink a hot cup of tea without an interruption.)  At the completion of this wonderfully enjoyable meal, my grandson, whose speech is somewhat delayed, managed to ask his mom for some “sanitizer”.  I almost flew off my chair! SANITIZER?  What a word for a 2 year old! He dutifully put out his hands and she dutifully squirted the sanitizer, a beautiful fragrance of lilacs and honey. (Who comes UP with these combinations?)

Things are certainly different these days, with computer aps for toddlers, musical potties,  disposable training pants and bibs, sippy cups in all shapes and sizes, locked cupboard doors, and super hero and princess everything (sheets, toys, cups, dishes, silverware, hairbrushes, toothbrushes, shirts, pants, socks, shoes…you get the idea.) With the exception of having to tote an infant around in a car seat instead of in an umbrella stroller, these days of raising children seem like a lot of fun!  (Maybe it’s time for me to foster a few more…)

My husband must be a mind reader.  I just heard him faint…

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

I Won’t Wear That to Church Anymore

I’m just returning from church.  I go to an inspiring, welcoming church, which I love!  Everyone is friendly, and we make a special effort to include people with disabilities.  We have pew cut-outs throughout the church for people in wheelchairs.  (After all, just because you are in a wheelchair does not mean you want to be relegated to the back row, or, even WORSE, the front row.)  We have a sign language interpreter and large print materials for the church service.  If a person who is totally blind attended, we would no doubt get the materials in Braille.  People with developmental disabilities, as well as people with mental illnesses are welcomed with open arms.  Having the children I do, it has been a God send (literally) for our family.

The congregation members help out during the service in many roles, and today I was helping to serve the Wine.  The people serving communion stand on a step while serving the bread and wine.  Learning from an earlier experience when I fell while trying to get a group together for a photo, I always firmly grip the hand rail while walking down the few steps. (Falling while taking a picture is understandable, but more care needs to be taken with the wine. I am sure it would stain the carpet terribly!) When offering the wine to the congregation members, I frequently have to bend over because I am tall and on a step, and they are often shorter.  Today, after I bent over the first time, I noticed that my shirt parted from my body in the front, and everyone had a clear view down to my belly button. (Well, they COULD have seen my belly button if my big breasts had not gotten in the way.)  I was mortified!  While I do not embarrass easily, once I notice something askew, of course I have to fix it.  So, I did the only thing I could do under the circumstances; I squatted for each person.  Do you know how incredibly hard it is to hold a squat at one particular level and then move that squat up or down depending upon who was next?  If I were athletic, it may have been easy.  But I’m not…    I felt like one of those baby crib toys, all scrunched up (squatting low) and then being pulled straight, (standing tall) and while music plays it slowly moves up to the low squat again.That’s the way I was today; up and down and up and down all to the beat of the choir’s music.

I will never wear that shirt to church again…

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

“Look Mom, no trees!”

Skiing460

My son Francis is amazing!  Although legally blind, he has led an incredibly successful life.  I think one of the reasons he has done so well is because he was raised without having a disability. If that sounds odd, you have to define disability as not having the ability to do what one wants in order to lead a full and happy life.  With proper modifications and technology, Francis has never been held back in any area of life.

Of course, we have chosen achievable goals when he was growing up. One of the many topics we tackled was how to fit sports into his life. Of course he could not play baseball or soccer, but he could be on the wrestling team and swim team. (He excelled and won championships in both areas.) The one sport that I worried about  was his skiing.  He learned at an early age to traverse the White Mountains in New Hampshire with a sighted guide skiing in front of him, usually his dad.  This petrified me because I was afraid he was going to ski into a tree and die. The fact that he is still alive and kicking today is proof that he didn’t, but that did not lessen my motherly concerns.

When Francis went to college at Cambridge in England, he had the good fortune to make many friends with whom he could travel all over Europe.  One day, I received a photo via e-mail, accompanied by the comment “Look, mom, no trees!” The photo was one of  Francis in ski gear, standing at the top of a ski run in the Alps.  The sun reflecting off his dark goggles was no match for the shining smile on his face.  There were no trees to ski into because they were above the tree line.  He was safe!  And, most importantly for a mom, he cared enough to send me a picture to SHOW me that he was safe.  The little cockles of my heart warmed at the thought…what a considerate son!

It wasn’t until a few months later that I saw the news of a large avalanche in that same area and three people were presumed dead.  DEAD?  I immediately remembered that beautiful picture of my thoughtful son, and I laughed.  (Yes, I laughed.)  That picture shows that my son does not have a disability because he had the same chance of dying as the skiers buried in the snow.  He is truly successful!

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Links to my book:

itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

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