Posts tagged ‘happy’

Mother’s Day and Delayed Rewards

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Mother’s Day is a wonderful time to appreciate moms, step-moms, birth moms, adoptive moms, wanna be moms and women who love children. Bless you for making a difference in a child’s life! Don’t you get joy from seeing the joy in a laughing child, the shy smile of a child with twinkling eyes, and the serene look on their faces when they are sleeping?  Ahhhhhh……..what sweet little rewards of being with a child…

Most of us know, however, that it is VERY difficult to be a mom and sometimes the REAL rewards are far apart….

When my son Steven was in nursery school, it was a real challenge because of his autistic and ADHD problems. He had been born addicted to cocaine and heroine and his nervous system was “messed up” (my professional diagnosis.) Bringing him was a real challenge as he would kick and scream and cry, yet I did it because he could not hide out safely at home for his entire life with me vacuuming around him. At first, he would  spend most of the time in school hiding out in the “quiet tent”, playing with his plastic reptiles, sometimes soaking in the information from the teacher. Eventually, he sauntered out of his safe space to see what was going on.  He did not join the other children, but he was with them…a huge improvement.  Eventually, nursery school became normalized for him; part of his routine.  He would come home with his little projects; a paper flower, a painted snake, a play dough alligator.  I had learned not to make a “fuss” over these things, but to quietly tell him they were wonderful while his head dropped to his chest, eyes closed.  (He was not a child who could tolerate excitement of any kind.)  He survived two years in that classroom, and I wondered how he would act on “graduation day”, a celebration seemingly out of his tolerance level.  All of the children stood there in their little paper graduation caps, tassels dangling in front of their noses so they had to keep blowing them away.  All of the children except Steven.  The children sang a song, and thanked their moms and generally wowed the crowd with their antics.  All of the children except Steven.  The children walked in a nice, straight line to get their nursery school diplomas; all except Steven.  When all but one diploma had been handed out, the teacher walked over to where Steven was hiding under a chair, butt facing outwards. (If I had been smart, I would have sewed a smiley face on the butt of his pants, but, alas, I had been unrealistically hoping that he would join the other children in the graduation ceremony.)  The teacher bent down with the document and Steven’s  little hand reached out to grab it.  He quickly pulled the diploma out of sight.  Calm and cool under the seat, he had made it! Steven had graduated from nursery school without a tantrum, yelling or screaming.  He graduated in the manner he felt most comfortable, but graduate he did!  What a reward that was for me; I was a proud mother, indeed!

Diagnosed in elementary school with Dissociative Identity Disorder, Angel, has been very carefully placed in specialized classrooms.  Although intelligent and able to do grade level work, he frequently changes “parts”, (his word for his alternate personalities.)  His teachers and teacher aids, bless their souls, understand him well, and manage to educate him, even if it means repeating the same lesson because a different “part” was out that day, or giving his the test over because the “part” that studied for the test is not the “part” that took the test!  He has a baby part which necessitates him to just “veg out” in a large mushroom chair.  On those days, nothing was learned.  His condition has been kept top secret and no unnecessary teachers or others in the school know about it. Fortunately, he has been living a very “normal” life.  I have found one surprising benefit…he has a “Game Show Host” part.  I work with a recreational group of adults with disabilities, and every now and then we play Bingo or Family Feud. Angel, as have all of my children, regularly comes with me.  One day, he asked to be the moderator for Family Feud and his “performance” was beyond hilarious.  Usually a reserved child with groups, all of a sudden he channeled Richard Dawson! He went down the rows of “contestants”, gave each of them a peck on the cheek, and, while holding their hands in his, asked their names and a little about themselves.  The older women, who probably have not had much attention in their lives, giggled and smiled and blushed.  Then, Angel read each question with gusto, and made a “ding” noise when they got it right, and a loud buzzer noise if they got it wrong.  It was sooooooooooo funny because it was so out of character of the Angel that they knew.  This group of adult with disabilities, many of whom live alone on a minimum income with this once a week outing their only time out of their houses, were laughing hysterically that evening. Ever since then, they look forward to Family Feud and “Gameshow Host” Angel! What a reward for me to see Angel’s  give such joy to these wonderful people!

As a graduation present, my daughter, Dinora, and I took a trip back to her birth country in Guatemala.  She had done fundraising to assist with the opening of a soup kitchen in Antigua, and we were there for “opening day”.  We went shopping that morning, taking a little “putt putt” (2 wheeled open air taxi) into the village, giggling all the way as it bounced along. We bought flowers of all bright shapes and sizes, which stuck out of the putt putt on the way back, narrowly bopping passers by on the head. We spread the flowers out in front of  the  alter where a mass was to be said in honor of the opening of the facility. An overflowing crowd of people filled the make-shift pews, and it was a beautiful, emotional mass. Even though it was all in Spanish I seemed to understand every word, and I could certainly feel the emotion in the songs which the Indigenous Guatemalans sang.  After mass, people lined up for the food in their brightly colored clothing. There was my daughter, a young adult, behind the counter, dark hair pulled back into a pony tail, serving food with a beaming smile on her face showing dimples I never knew she had, (or perhaps she had never smiled so brightly.)  She was old enough and cared enough to give back something and help “her people” as she called them. I will never forget the sight of her…sweat on her brow, wiping her hands on her apron, making pleasant conversation in Spanish while smiling that amazing smile…   How could that sight NOT be a reward for a mom after years of raising a difficult teen?

Raising Marie has been the most difficult because of her many serious challenges.  When she came to us, she was street smart at the age of seven.(See post “All She did Was Scream and Say No! No! No!) She had no thought of danger and no social skills.  Although this may sound silly, one of my concerns was the fact that she would litter.  Get a drink; throw the bottle on the ground.  Have a piece of gum; throw the wrapper on the ground. Popsicle; stick thrown in the grass.    Repeatedly, I would have her pick it up and throw it away, explaining that we don’t litter in our family.  Marie could not have cared less…she did not want to be in our family anyway…  It took many months with us before she learned not to litter.  That’s why it shocked me when we were at the mall one day and she casually flicked the paper from her straw onto the ground.  My eyes widened, and just as I was about to ask her to pick it up, she bent down and picked it up, signing to me “I was just teasing you!  I know we don’t litter in this family!”  What a reward it was to hear her say that!  Finally, she felt part of our family!

My most favorite reward I saved for last.  For all of you parents, especially parents with children with disabilities, I will share that there has been no greater reward in my life than seeing my son, Francis, become a successful adult. Despite being legally blind, he has a college degree, is very successful in a job which he loves and through which he is benefitting others, and he recently married a great woman who not only loves him for the wonderful person that he is, but can also drive a car so he won’t have to take public transit to work any more!  There IS no greater reward for a parent; to know that the problems, fun, hard work, love, difficulties and dispersed joys of childhood have come together in a positive way. My son has officially “made it” to adulthood.  Now he can look forward to the rewards he will experience in raising his own children. Then I get the extra rewards of grandchildren!

To all of you mothers and others out there, Happy Mother’s Day!  Beyond the handmade cards, the flowers, the breakfasts and dinners out, and the gifts of the day, so many more rewards await you.  Sometimes you just have to be patient…

I Lost All of My Money at the Casino :(

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I admit it… I LOVE to gamble; to play the slot machines at the casino.  It is one of my wicked vices. (I’ll bet you are all shocked to hear such an admission, which I have been consciously keeping from you so as not to tarnish my good image.)

It goes back to the days when I was a young adult.  My mother and my brother loved it when I took them to a casino in a nearby state.  We would take a day trip sponsored by a local bus company, and for a mere $25 fee, we would get a coupon for a free buffet and a coupon for $25 in gambling money.  As my mother was extremely frugal, this deal was enticing to her, and it allowed the three of us to have a nice day together.  My brother, who was severely developmentally delayed, legally blind, deaf, and schizophrenic, loved the long ride on the bus, to eat at the buffet where he could choose all of his favorite foods, and to enjoy all of the bright lights. But his favorite thing to do was to play a martian slot machine.  In his schizophrenic haze, he thought of himself as an alien, so he felt somewhat vindicated to see a slot machine “of his people.”  His $25 in free gambling money would last for hours as he would always bid the  minimum, 5 cents.  Every time the symbols on the machine matched, aliens would swoop down to bring them into their spaceship.  With his eyes pressed close to the machine to see, my brother joyfully whooped and hollered every time that happened.The money he won was secondary. He was in his “element”, something which he rarely felt elsewhere. Plus,my brother loved Diet Coke,and he could get all of the Diet Coke he wanted free. (We had purchased a refillable plastic cup one time, and my mother held onto it like gold…washing it and bringing it to every visit to the casino….for years my brother was thrilled to get free soda!)

My mom would always cash in her $25 gambling voucher.  She did not believe in gambling and preferred to take the money in cash, which to her meant a great day out with a free trip and buffet.  Her joy over a great bargain was greater than her playful spirit. She was certain that the machines were fixed, and that they “let you win” in the beginning, and then, when your money was gone, you would put in more and more, never winning again. Although I thought this idea was ludicrous, I have to admit that, over the years, I have seen this happen time and time again…those crafty slot machines!!!!  Regardless, I LOVED to play the slots. I would have to sneak away from my mom because when my $25 voucher ran out, (as it ALWAYS did,) I would play my own money.

And so it was yesterday, when I took a similar bus trip with the recreation group of adults with disabilities that I coordinate.  (After all, just because they have a disability doesn’t mean they should be excluded from loosing their money at the casino like the rest of us!)  It was during that trip that I lost all of my money.  As the last few cents dwindled away in the slot machine, I felt a sick feeling in my stomach.  I was so sure I was going to win!  It was FATE for me to win, because I really needed the money and therefore God could work his “magic” and allow my machine to his the jackpot, therefore getting me out of debt.  Isn’t that the way God works?  Unfortunately not…

As my money ran out, I sat there sad, disappointed, and frantic. What would you all THINK of me? How was I going to buy lunch for the rest of the week?  How could I have been so STUPID?!?!?! All my money was gone…

It is a good thing I only brought $20 with which to gamble…

Hotwire is My Hero!

hotel_clipart   I don’t travel very often, but when I need to book a hotel, I use Hotwire.com.  They offer wonderful hotels at a low rate; hotels that have extra rooms that they need to fill up.  The catch is, you do not know the name of the hotel, just the “type” of hotels that are included in each category.  Hotwire has never disappointed me, as they have always provided quality hotels at a greatly discounted price. This past weekend, I was scheduled to do a presentation for a large parents conference held at Perkins School for the Blind, about a two hour drive for me. Because the conference was scheduled to begin at 8:30 am, and I would be reimbursed for my travel expenses, I contacted Hotwire to book a hotel room. The least expensive one listed was $69, which was a real bargain because hotels in and around the Boston area are very pricey. I booked it on line, and awaited the name of the hotel.  It was not a brand name I had ever heard of, so Google checked it out for me.  It was listed as an “elite, boutique hotel”, and the least expensive price listed on their website for a room was $180!  Now, I am definitely NOT elite, and have never visited a boutique before, but for $69 I was going to give it my all! Upon driving up to the hotel’s front door, I learned that valet parking was mandatory. I relinquished my “Best Mom” fake jeweled key chain to the parking attendant, (pardon me…to the VALET.) Politely and without comment, he struggled as I do to climb up into the driver’s seat of my large van, and drove away in my 2002, dented, dirty, 15 passenger with a raised roof and wheelchair lift van.  He parked it right between a Rolls and a Jaguar, and it looked like a large, dirty, cheap piece of coal between 2 diamonds. Even my car was going to get a new experience! The lobby was gorgeous, as are so many in expensive hotels.  Lots of fresh flowers, a water fountain cascaded down the wall, and a lovely tray of fresh baked chocolate chip cookies.  Checking in was a pleasurable experience with a tuxedo clad clerk, who offered me a cookie.  (I would have taken one anyway, so the fact that he offered was a bonus, although I would have preferred he offered me 10.) My 6th floor room, with the curtains open, had a breathtaking view of the Boston skyline at night.  The room itself was definitely “boutique”… furniture with trim lines, a wood floor with plush, beautifully designed, throw rugs  that added an elegant, clean look to the room. Because it was late in the day and I was tired, I put on my jammies, brushed my teeth, and climbed under the luxurious, fragrant, CLEAN sheets and comforter. I honestly felt as though I were laying on a cloud. In addition, there were four different types of pillows on the bed so that I could choose the one which would best facilitate a good night’s sleep.  Ahhhhhh…..sleep….on a cloud overlooking the Boston skyline… The modern bathroom had a very large walk-in shower with huge round shower heads pointed in all directions.  In the morning I took a shower, or, should I say, I EXPERIENCED a shower. It was all a new thing for me; hot water flowing over my body from all different angles.  Do people really LIVE like that?  The shampoo was ultra fragrant, with a conditioner and body wash that had complementary fragrances.  (Think orchids, strawberries and oranges…) I felt like a fruit orchard, and it was a very unique feeling! (I guess that is what makes the hotel “boutique”.) As I finished showering and came through the frosted glass door of the shower, I shocked myself when I saw another dripping wet, old, fat, ugly naked woman coming towards me in the room. I screamed.  I shuddered.  I looked closer.  It was ME.  Reflected in the mirrored wall just outside the bathroom.  Although breathing a sigh of relief, I was also filled with horror at the image in front of me.  I don’t know about you, but I NEVER look at myself naked in a full mirror.  Any illusions I may have had about my looks were proven false in that moment.  Oh, well…it’s a good thing I feel beautiful on the INSIDE… After getting over my shock, I dressed and made myself a nice cup of tea with the provided Keurig.  Now THAT is my idea of a boutique hotel…one that provides fresh tea to my liking.  Now, if only I had a few of those chocolate chip cookies from downstairs…         ************************ I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money. Link to my book: https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11 The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

Have You Ever Run out of Clean Underwear?

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My husband and I took a little “romantic trip for two” last weekend, so I did not get my usual laundry done. This week, being school vacation, saw me working 60 hours coordinating an educational and recreational program for children with disabilities.  It was an awesome, fun week, and the kiddos were a joy!  However,  by the time I dragged myself into the house in the early evening, I had no energy to do any type of cooking/cleaning/thinking/talking or moving. The only movement I could muster up was my index finger on the TV remote…

Getting dressed this morning, there was not a piece of clean underwear to be found. Not in my underwear drawer, in the dryer, under the bed, on the floor of the bathroom, in the puppies bed, or in the refrigerator. (You never know…)  What was I to do?  It briefly crossed my mind to not wear any, but that idea was quickly tossed aside.  In “my” generation, we just didn’t DO that.  So, I dug up the only pair of underwear left…the unworn g-string bikini bottom to a baby doll negligee I had brought on our romantic weekend. (I always optimistically pack several “outfits”…)  Slipping the bikini on, it was immediately apparent that it were not going to adequately cover all of my “private areas”, but it was either that pair or nothing, and nothing was not an option.  The thought of getting into an accident and having the paramedics see a woman my age wearing a g-string bikini did seem horrifying, so I promised myself I would drive very carefully and walk very slowly all day so as not to get into an accident or trip and fall…

Finding a bra was almost as difficult, but in the back corner of the drawer was  one bra that had eluded trash day.  The straps were so old and loose that it did not properly support my breasts in the manner to which they are accustomed.  Other than going braless, which would surely have traumatized a few people, I put on the saggy resemblance of a bra. To say that my breasts came within inches of my waistline is not an exaggeration.  But it was better than down to my knees…

Finding a shirt was almost as difficult, but way in the back of my closet was a “beautifully” flowered shirt that I used to wear when I was two sizes larger.  For some reason I’d always loved that shirt because it was “comfy”, so on it went.  At least with all of the bold flowers, my sagging breasts were not so apparent.

For pants, I wore the same pair of jeans I had worn earlier in the week.  Jeans seem to be the one item that do not have to be washed every time they are worn.  Of course, when you wear them a little more than you should, they DO get baggy in all the wrong places, which resulted in a bigger rear end than I would normally sport.  Fortunately, the flowered shirt was so large that it completely covered this area anyway.

The biggest challenge, even when I DO the laundry, was finding a pair of matching socks.  I looked ALL OVER….and I was thrilled when I finally found a pair of matching red and white striped socks.  Of course, the stripes were on candy canes, and  big red Santas graced the top band of the socks, but at least they matched!

My Dansko shoes, (the only type I can wear comfortably,) were on the porch where I had taken them off.  Unfortunately, Jody, our new puppy, had decided they made great chew toys, and she had chewed the decorative leather band  around the top of them.  Fortunately, she had chewed them both equally so they at least matched…

I quickly tried to fix my unruly hair, which can usually be coaxed into a semblance of curls and puffiness. Not today.  Today it refused to be tamed.  My hair is longer than usual because there has been no time to get a haircut, so it is super fluffy and frizzy, and standing on end all around my head like a wild lion mane.  Better than that….like Phil Spector…

Looking in the mirror, I assessed my appearance. Hair unruly enough to scare  Frankenstein.  Saggy breasts under a garden explosion of a shirt that was so large my daughter could have fit in it with me. Saggy jeans, which are somewhat of a relief because they do not fit tightly enough to force the bikini bottom to slide up into my butt. Shoes missing the decorative strap, but otherwise presentable.  And white and red striped socks…not too bad if you don’t look at the top of them.  I was “passable” as long as I stood up all day lest people see the Santas on the top of my socks. Then I would look REALLY ridicules….

 

 

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PS. I have recently been honored with a special award from http://lyricsonthelake.wordpress.com/2013/04/29/because-why-not/:

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I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.  I do promise to dress properly…

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

A Name a Ventriloquist Would Love…

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We had to put our  beloved dog, Brandy to sleep last summer, and our house has been empty, dog-wise at least, until Jody, a labrador/poodle mix came to live with us a month ago.  She is a sweet three month old, with a lot of energy and not much common sense.  Of course, she is still a baby and I guess babies themselves don’t have a lot of common sense, so I shouldn’t be so harsh.  After all, babies don’t come out of the womb knowing how to use the toilet, so why should I expect anything different from a puppy?  The problem is,  she is a fanatic about only peeing on a pile of newspaper.  We have to be very careful not to leave any paper lying around lest she pee on yesterday’s top story which I have not had a chance to read.  We have been desperately trying to get her to go outside, but she has developed this irrational fear of  going anywhere OTHER than on the newspaper.  She seems to be very stuck in her ways, because at the dog park she ran around and played with the other puppies for a few hours, and she did not leak so much as a drop of pee.  Have you ever heard of a dog that plays in an area where there are other dogs and it does NOT mark it’s territory, or at least leave a little fragrant sample for others?  Not Jody…she held it in until we come home, when she ran straight for the newspaper and peed a massive amount, like she has been holding it all in for hours, (which she clearly HAD.) Poor President Obama’s news would not get read that day.

I began to move the newspaper closer to the back door so she would get the idea that she should be doing  it outside.  She was getting there…closer and closer.  Finally, I eliminated the paper altogether and left the back door open for her to go outside whenever she wanted.  (Fortunately, it was not one of those days where we got a freak snow storm.)  She went outside to play.  She went outside to dig in the dirt.  She went outside to swat bugs from her face.  She went outside to chew on the branches of a nearby tree.  But she would not go outside to pee.  Sensing her distress, I did the only thing I could think of; I put a piece of newspaper outside. She ran straight as an arrow to use it.  Now, she goes to the door, barks, I let her out, and she pees on the newspaper.  If there is no paper, she looks at me with a forlorn expression, and just stands there…it appears that my newspaper subscription will have to be doubled!

Yesterday, I drove Jody up to visit with Marie, (who attends a  residential school for children who are deaf.) Marie loves animals, but they do not take to her too kindly because her semblance of speech is loud and guttural, (even scaring me if I was alone in a dark room and didn’t know she was there.) When she called the dog, she scared the poor puppy, which cowered. Marie looked at me with a great sadness. HOW could the puppy not LIKE her?  Then she called the dog again, but as I stood behind her, under my breath, I also called the dog, which came running to us.  Marie angrily turned and looked at me.  ”YOU called her,” she signed in ASL, “I saw your lips move”, obviously with the eyes she has in the back of her head.  She was devastated the dog would not come for her alone.  So, we tried it again.  This time, I put a large smile on my face and forced a cheery “Jody!!!” through my smile, not moving my lips.  The dog came running, Marie was happy that I had not called her, (?) and my lips didn’t move a bit!  (Try it….)  The fact that her friends and teachers to whom she introduced the dog were also deaf was also a lucky break on my part because they couldn’t squeal on me.

Okay, so it was a little bit dishonest on my part, but what parents don’t do things a little bit out of the ordinary to see their children happy?  Nothing feels better than the warm heart you get when you see your children smile, and Marie was smiling a lot that day.  Besides, the dog will soon learn to love Marie as we do, even though she can be a little loud and scary…

 

 

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I would love to come and speak for your group or at your conference.  I would do it for free, but would need the price of travel. For functions in the North East, that would be only gas money.

Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

Sanitizer, Angry Birds, Locked Doors and Singing Toilets…What Do These Things Have in Common?

What do these things have in common?  They are “tools of the trade” for my daughter, the mother of a delightful two and a half year old!

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Things have greatly changed since my children were toddlers.  I am fortunate I never had to carry babies around in those heavy seats. I would not have been able to have more than one baby at a time, and I am sure I would carry it with 2 arms wrapped around it lest I drop it.  For the child’s own safety due to my clumsiness, I probably would have stayed home all the time! Our car seats stayed in the car and the babies and toddlers went straight into the umbrella stroller when we were out.  It was easy.  They could see the world, and my hands were free. Using the stroller also had the wonderful advantage in that when clothes shopping, they could be hung on the back of the stroller.  I had to be careful on clearance day, though, lest the weight of the clothing supersede the weight of the particular child in the stroller.  While I did misjudge several times, the stroller and the child would just fall back onto a nice, soft pile of clothing. I have such empathy for parents lugging the infant in the infant seat.  They look sooooooo heavy!

My daughter, Dinora, has child proof locks on her cupboard doors.  What a great idea!!!  I used to keep the poisonous soaps, sprays and cleaners on top of my refrigerator.  They were safe there, at least until Steven began to climb like a monkey!  Whoever thought of the lock on the cupboard doors was a genius!  Unfortunately, I am not genius level.  When I babysit for my grandson, I cannot figure out how to open the darn locks!  It appears that you have to use 2 hands to do so and my hands do not cooperate with each other.  During my futile attempts, my grandson stands there crying for his macaroni and cheese for supper, and I can’t get in the cupboard to get the box!  Those locks are childproof and grandmother proof! He doesn’t really mind, though, as he much prefers the pizza I order instead.

The other amazing “new invention” is a toilet that makes music when you pee in it!  (I am, of course, talking about a toddler potty.)  What a wonderful motivator for toilet training!  It is certainly be healthier than the M&Ms I used to give, and everyone within earshot can hear the delightful music and cheer the performer on!  The only downside leads to my next observation about toddlers these days; my daughter will need to get a different potty if her next child is a girl, who wouldn’t dream of peeing in a Superman potty.  With parents knowing before hand if they are having a boy or a girl, baby items now seem to be all girly or all masculine, with little in between, unlike in “my days” when babies wore a lot of green or yellow which would suffice for either.  I have never seen so many princesses and action heroes in my life! So much for sexism, I guess…

Imagine my surprise when my grandson climbed in my lap carrying an IPad and started to play a game of Angry Birds.  At TWO and a HALF years old he was independently using a computer!  But ANGRY BIRDS?He was lopping these little birds through the air to their deaths, feathers flying everywhere.  And giggling! This must be the training game for all of the fighting and war games that will come when he is older.

A final reminder of how much things have changed happened when Dinora, my grandson and I went out to eat breakfast in a restaurant.  While he played with child aps on the IPad, we had a lovely adult conversation with fussy interruptions.  (There were times when raising young ones that I would have died just to be able to drink a hot cup of tea without an interruption.)  At the completion of this wonderfully enjoyable meal, my grandson, whose speech is somewhat delayed, managed to ask his mom for some “sanitizer”.  I almost flew off my chair! SANITIZER?  What a word for a 2 year old! He dutifully put out his hands and she dutifully squirted the sanitizer, a beautiful fragrance of lilacs and honey. (Who comes UP with these combinations?)

Things are certainly different these days, with computer aps for toddlers, musical potties,  disposable training pants and bibs, sippy cups in all shapes and sizes, locked cupboard doors, and super hero and princess everything (sheets, toys, cups, dishes, silverware, hairbrushes, toothbrushes, shirts, pants, socks, shoes…you get the idea.) With the exception of having to tote an infant around in a car seat instead of in an umbrella stroller, these days of raising children seem like a lot of fun!  (Maybe it’s time for me to foster a few more…)

My husband must be a mind reader.  I just heard him faint…

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

A Miracle on St. Patrick’s Day!

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Okay, so the picture above is unflattering, blurry and goofy.  But do you see the miracle?  My daughter, a TEENAGER, for whom Reactive Attachment Disorder has been a major diagnosis, is willingly KISSING me!!!!! It has to be a miracle!  And my heart is happy and full on this Saint Patrick’s Day…

 

 

 

 

 

 

 

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

Oh NO! More SNOW!

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Another snowstorm!!!! I completely understand why older people move to southern states when they retire. Winters are COLD!  My fingers get chilled just thinking about it, and the snow keeps piling up!

I do not enjoy the winters as I used to.  I remember pre-children when my husband and I would go skiing.  One day it was 10 degrees below zero. We were all excited it was so cold because that meant that the ski slopes would not be as crowded and we would not have to wait in line for the chairlift.  We bundled up with layer upon layer of warm clothing with not an inch of skin showing lest if freeze and fall off. We skied all day.  At one point, we stopped at the top of the mountain and viewed the surrounding area.  With the sun blazing down on the shiny snow, we saw snowcapped mountains in the distance, little villages, frozen lakes and the ant specks that were cars, and I was overcome with awe for nature.  It’s a good thing this memory is frozen in my mind because these days, you’d never get me on top of a cold, frigid mountain again!

Several years ago, after several major snowstorms, there was an 8 foot pile of snow made by the snowplow. The kids managed to shape it for sledding, and they had great fun sliding down.  At one point, Steven climbed to the top of the pile and all of a sudden he disappeared!  He had fallen deep inside the snow pile! It was like he was buried in an avalanche! Another heart stopping moment for me.  Fortunately, we managed to pull the snow from around the top of the pile until we could pull him out.  He was laughing because it was such an adventure, and he begged to do it again.

Several years ago, my husband received an old snowmobile as a “gift” from a friend.  One day, he was riding it in our large backyard with my son Steven sitting in the front of him.  Raymond decided to Steven drive.  Excitedly, Steven turned the handlebars to give it gas.  The snowmobile took off in a lurch and my husband was thrown from the back of it in an amazing double somersault. (A “10″ if he were rated in the Olympics for gymnastics off the back of a snowmobile.)  Steven and the snowmobile zoomed on, headed right for the shed in the backyard.  His life flashed before my eyes and I thought “This is what it feels like to see your child die.”   My heart was in my stomach and I felt like I wanted to vomit and scream at the same time. Fortunately, unbeknownst to me, if you let up on the handlebars, the machine stops. This is exactly what Steven did. Then he turned around and noticed that his father was missing! And he had stopped within a foot of the shed. He did not realize how serious it was, and laughed at my husband, still feet up in the snow. It took a while for my heart to start beating again, and I vowed Steven would never again be allowed to drive a snowmobile.  So, my husband did the only smart thing a father could do…he sold that snowmobile and he bought 2 news ones so we could go snowmobiling as a family!  Ugh! We trekked up to New Hampshire to go for a nice, winter vacation. Because Steven could not drive, and because at this time Angel was also living with us, I was forced to go along as the second driver.  If you have not ridden on a snowmobile, the closest description is as if you are riding motorcycle on skis.  In the ice.  And the cold. And did I mention the ice? Because I had never even ridden a motorcycle, I was very nervous. I started the machine, jerking it as Steven had done when he tried to drive it. Fortunately, Angel had his arms firmly wound around me and he didn’t fall off.  I was so scared and it was so awkward to drive that I could only creep along at 5-10 miles per hour, much to my husband’s dismay. (Dismay is putting it mildly.) To make matters worse, my husband did not choose the nice, empty, safe fields to ride in.  NOOOOOO!  He chose the skinny, trees whipping by your head, narrow snowmobile paths with TRAFFIC COMING IN THE OTHER DIRECTION!  That one day of snowmobiling was the scariest of my life.  Once we began on the trail, there was no turning back!  My hands were shaking, my body was sweating even though it was freezing out, and my imagination had my head being whipped off by a tree branch.  I did enjoy the nice, friendly wave the snowmobilers in the opposite direction were giving us, and each time we passed them, my hand went up to wave back.  (I later learned that the opposing snowmobilers put up the number of fingers for the number in their party.  3 fingers for 3 people, and so forth.  I realized that each time I waved, I was telling them that we had 5 people in our party.  Oh, well, I won’t do that again because I won’t do THAT again…go snowmobiling.  Fortunately, Angel did not enjoy it either, so he and I spent our time shopping at the factory outlets while Raymond and Steven went out on the trails.

At home, there is a pond in our backyard.  Marie loves playing outside in the cold, going ice fishing, building snowmen, and, most of all, playing hockey.  She dresses warmly from head to toe…black snow pants, black jacket, a hat which covers most of her face, several pairs of gloves topped with hockey gloves, and boys hockey skates.  She takes her hockey stick and skates around the lake to the various hockey games trying to get an invitation to play.  From looking at her all bundled up, you cannot tell if she is a girl or a boy.  She is not verbal, so they cannot tell from her voice.  (She points to her ears for them to know she is deaf.)  She would normally use sign language but with hockey gloves this is next to impossible.  They always let her in because she is a good player.  If one group stops playing, she will skate around and find another group.  She reminds me of a female Batman for hockey…slinking into games, her identity unknown…showing up out of the blue when a team needs a player!

Winter is alive and well with my kiddos, who enjoy it as I did when I was a child.  They love the snow and all the activities, but now thatI am older I get chilled easily…(picture granny in the rocking chair with a blanket around her.)  I sit by the picture window, near the fireplace, drinking hot chocolate with mountains of marshmallow and I watch them having fun outside.  As parents, we all know that watching our children be happy and have fun is even more fun than doing it ourselves. I am a happy mommy.  Let it snow!

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

“Look Mom, no trees!”

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My son Francis is amazing!  Although legally blind, he has led an incredibly successful life.  I think one of the reasons he has done so well is because he was raised without having a disability. If that sounds odd, you have to define disability as not having the ability to do what one wants in order to lead a full and happy life.  With proper modifications and technology, Francis has never been held back in any area of life.

Of course, we have chosen achievable goals when he was growing up. One of the many topics we tackled was how to fit sports into his life. Of course he could not play baseball or soccer, but he could be on the wrestling team and swim team. (He excelled and won championships in both areas.) The one sport that I worried about  was his skiing.  He learned at an early age to traverse the White Mountains in New Hampshire with a sighted guide skiing in front of him, usually his dad.  This petrified me because I was afraid he was going to ski into a tree and die. The fact that he is still alive and kicking today is proof that he didn’t, but that did not lessen my motherly concerns.

When Francis went to college at Cambridge in England, he had the good fortune to make many friends with whom he could travel all over Europe.  One day, I received a photo via e-mail, accompanied by the comment “Look, mom, no trees!” The photo was one of  Francis in ski gear, standing at the top of a ski run in the Alps.  The sun reflecting off his dark goggles was no match for the shining smile on his face.  There were no trees to ski into because they were above the tree line.  He was safe!  And, most importantly for a mom, he cared enough to send me a picture to SHOW me that he was safe.  The little cockles of my heart warmed at the thought…what a considerate son!

It wasn’t until a few months later that I saw the news of a large avalanche in that same area and three people were presumed dead.  DEAD?  I immediately remembered that beautiful picture of my thoughtful son, and I laughed.  (Yes, I laughed.)  That picture shows that my son does not have a disability because he had the same chance of dying as the skiers buried in the snow.  He is truly successful!

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Links to my book:

itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

I have to laugh at myself…

Smiley Face Clip Art

I do no take much about myself seriously.  At an early age I had to learn not to care what other people think. My dad, very frugal, used to insist he give me a haircut with clippers. It was during the popularity of Mia Farrow’s short cut, so I wasn’t a real outcast because of it…except for the time when he slipped and I had a bald spot on the back of my head.  (Everyone was sympathetic because they thought I had had brain surgery…) Also, during the times of my dad’s schizophrenic episodes, he made sure to let me know that I was ugly.  Being young at the time, I believed him, of course.  However, I sincerely thought, and still think, that beauty on the outside does not matter, beauty on the inside does.

In order to “remain sane”, I do not get easily embarrassed and I have learned to laugh at myself.

For example, the other day driving near our house, I saw my husband’s work van.  Pulling up beside him at a traffic light, I excitedly began to wave and blow kisses.  Until, upon further examination, I noticed that it was not my husband driving, but some other electrician with an identical white van, same ladders on top and roles of wire in the back.  (Go figure there would be another white work van like my husband’s. They are so RARE!)  Anyway, the driver looked at me like I was crazy, and I started laughing.  It was SO funny!  In between giggles, I mouthed the words “sorry, wrong van!”  and I took off so fast when the light turned green that I could have been a contender in a NASCAR race.

At our church picnic last summer, I was organizing the photo of all of the church members.  About 100 people were lined up with a few stragglers.  While walking backwards to the camera, I was giving directions for people to move in closer together. (We all know how easy it is to get a picture of such a large group, with everyone smiling nicely and looking at the camera.) All of a sudden, I tripped over my own two feet and fell on my back, arms and legs in the air.  Several people commented that I looked like a turtle on its back.  Of course, I laughed at myself. Clumsiness is a trait of mine.  So what?  Afterwards, several people came up to me and commented on how embarrassed I must have been.  Embarrassed? Why would I be embarrassed?  I thought it was funny!  (If you picture it in your head, you HAVE to laugh…)

The huge white van I drive is so tall that I have trouble getting into the driver’s seat. I usually do so by  grabbing onto the side of the driver’s seat, hold on for dear life, and alternately pull and wiggle up into the seat.  Sometimes I slip, and once I even fell to the ground with a thud. (Maybe the thud was in my head…because I  doubt the ground actually moved…)  My husband and sons always laugh at me when I get into the van, and I laugh with them.  What else am I going to do?  Well,  I COULD have ridden up on the wheelchair lift on the side of the van, but that wouldn’t be as much of a challenge.

Then there is the story about what happened last week when I met a good friend who is blind for lunch.  I admit I am quite lazy in the morning, (often reading blogs, of ALL things,) and I did not have time to put on any make-up.  As is usually the case, I put it on in the car when I stopped at read lights.  Because I keep one eye on the light and the other on the mirror,  I do one eye at the time; eye shadow and mascara.  It makes a dramatic difference as my eyes are usually kind of squinty and tiny and tired looking.  I often look in the mirror with one eye done and think I look like a “before” and “after” picture on aging, all on the same face.  Anyway, on this particular morning, I was lucky and got mostly green traffic lights.  When I arrived at the restaurant, I excitedly jumped out of the van and ran to meet my friend.  (Getting out for breakfast with a friend is a rarity for me.)  Just as I got inside the restaurant and said hi to my friend, I remembered I only had enough red lights to put make-up on one eye.  ”Oh, well” I thought, “there is nothing I can do about it now as my make-up bag in the car and I am way too lazy to go back and get it.”  I figured that, being blind, my friend wouldn’t care.  And when I sat in the booth, I made sure to put my “good eye” on the side the waitress was.  I figured it I always looked ahead, she wouldn’t notice either!  I had a wonderful breakfast and, with a little laugh to myself, I never thought about it again, (until later in the car when I stopped at the next red light and finished the job!)

The moral of my story is…be comfortable with yourself and don’t care what other people think. Life is too short to spend it worrying or bothered by what you may perceive others think of you. Sometimes what you think they may think may not be what they think at all! And if they ARE thinking it, have the confidence to laugh it off!

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Link to my book

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

Link to the Readers Digest review of my book:  http://www.rd.com/recommends/what-to-read-after-a-hurricane/

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