Posts tagged ‘joy’

Dad and Daughter shared Ice Cream

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My heart has been very heavy lately, which is a feeling that I am very unused to. The fact is, as my children age, some into young adulthood, their problems are more real life problems, not just a tantrum in the grocery store. 2 of my younger children, with as many good traits and skills that they do have, do not having the capacity to be fully self-sufficient as adults, including incapacity to maintain a paying job. Yes, SSI is a possibility when they are adults, but even that provides only poverty level income. They are my family and my financial responsibility, which necessitates looking at the ability of our extremely diminishing finances to care for them during their lifetimes.

Although hubby and I both work, often 6 days a week, and are considered solidly middle class, our bank account does not reflect this. Every time Marie has a PTSD episode, (every 6 weeks to 2 months,) the ambulance bill exceeds $1000, money that is not reimbursable. (She requires additional emergency personnel because restraining her safely requires at least six, strong professional emergency adults.) We have funded one college tuition, and are currently funding another at expensive colleges to best meet the special needs of my children, (for which they received no financial assistance because we are, after all, “middle class”…) In order to attempt to give them the best education to be able to succeed despite their disabilities, we subsequently have taken a large second mortgage on our home. And then a third… Hubby and I live “paycheck to paycheck”, as I am sure many parents of children with disabilities live.

But I digress…what I was saddest about is that Steven now has partial custody of a beautiful, vivacious daughter who is one year old. (Note to parents: make sure you talk OFTEN about birth control to your teenagers, especially your teenagers with disabilities…) He, and we, do not have any extra money to support her in the manner to which we are accustomed to supporting our children. With his Asperger’s (and extremely capable skills in caring for animals,) Steven is a doting dad. Not working, he has tons of time to spend with her and can generally be seen sitting on the floor of the living room playing with her interactively, rocking her for a nap, singing her nursery rhymes, or taking her in the large, fenced in back yard to swing and explore and play to her heart’s content. What he does not have is money to pay for her needs, and this breaks my heart. This morning, he asked if I have any “change” and if he can go look in the car if there are any quarters that have fallen behind the seat. At last count, he’d managed to scrape up $2.19.

Driving home today, I was stopped by the light near our house. On the corner is an ice cream stand where our family often used to take a walk for ice cream. The kiddos would giggle over whether they would get the chocolate jimmies or colored ones, (the sprinkles were free!) Today, I noticed the young man sitting on the picnic bench. Across from him was a stroller with a young girl in it. Both had tan skin and wild, curly black hair. Holding a small container of ice cream in his hand, he was using a spoon to feed her, laughing and playing the “airplane” game to put the ice cream in her mouth. She was giggling also, throwing her arms in the air as if to say “wheeeeeee!” after every spoonful. Steven exhibited pure happiness, that special kind of happiness a parent has for their child. They were joyful and the fact that she wore cheap diapers and wore hand me downs that didn’t always fit did not matter at all. Suddenly I felt a little bit better about not have any money, because Steven taught me today that money does not makes life purposeful, but it is love, which is free. Life is good!

I’ll Stay Inside Til Spring

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Looked out the window today and all I saw was snow. Literally, the entire window was covered with snow, which reached up to the roof. Due to the high winds that blew the light and fluffy stuff across the small lake on which we live, our house window resembled the inside of a freezer. This actually kept the outside of our house “warm” at 32 degrees, compared the the howling wind outside at negative 15 degrees!

The saving grace is that the snow outside the front door is much lower at about 4 feet. Because one of my sons has consistently shoveled the walkway throughout these snowstorms, only about a foot of fresh snow covered the walkway. That’s the type of snow I hop through like a bunny. Jump, jump, jump with the longest strides I can muster, over to my car. Ready to go for the day! BRRRRRRRR!!!!!!!!!

Wish I was Punxsutawney Phil who could burrow down into my warm home, emerging in the spring!

Bring the Fattened Calf; The Prodigal Son Returns

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The holiday season joyously reunites my family! Although Francis is not entirely a Prodigal Son, he is the one son who moved out of state to seek his fame and fortune. Having his Ph.D. from Cambridge specializing in Human Computer Interaction, he has found a fruitful niche among the computer conglomerates in Silicon Valley, California. He has purchased a modest half-million dollar home, (very much similar to the small ranch style homes back east, only less yard and much costlier.) He married an amazing woman who can DRIVE and for whom his vision impairment is not an issue. They recently had a one of a kind baby; a baby so pure and white and bald that she resembles an Alien. (Ooooops! I didn’t just say that, did I?) The best thing is, he comes home every Christmas!

Preparing for his arrival takes a lot of work. Being somewhat of an advocate for letting dust live out its life where it lay, I spend the month before his arrival cleaning; the usual spots, of course, but also those spots not generally covered in a regular cleaning; washing and waxing the cabinets, washing all of the walls so they look as clean as the day they were painted, cleaning under the soap dish in the bathtub, pulling out every speck of dust hiding under the radiators, and cleaning “his” bedroom so clean that it could be considered a sanitary room for a person undergoing a bone marrow transplant. I’ve added a rocking chair for baby to feed lovingly and comfortably. The sheets with flowers are washed with “spring” fabric softener, giving them a sensational floral scent, perfect for a multi-sensory feel. (Yes, sniff in the scent. It is a happy, welcome home scent!)

The decor of my home is generally early mishmash, but when Francis comes home, the walls are decorated with a multitude of photos of all of our children, hastily put together from photos from Facebook. (It is something I mean to do all year but never get around to doing.) The Christmas tree and house decorations are pulled from the bowels of the cellar, decorated and placed in traditional places. Same candles in the window as when Francis was a child, same tree, same decorations including the nativity scene that Francis enjoyed rearranging when he was a child. (He loved to put the donkey in the manger and lay the Wise Men down for a nap after their long hike.) All reminiscent of Christmas’ past.

Hubby, who is generally an excellent cook anyway, also prepares for the special visit. He makes seafood casserole, baked stuffed lobster, “stuffies”, prime rib (sorry fattened calf,) lasagna,and baked ham. For Christmas, we have a traditional turkey dinner, with Marie leading us in saying grace in sign language, joined in by all, (except Francis’ new wife who has not yet caught up in communicating with Marie.) The week is a gastric feast like no other, and poundage is added to us all.

For this one week of Francis’ visit, “normal” life is put aside for a week of conversation, a clean house, a joyful present exchange, visits to nearby sights of interest, (the ski area with the tubing hill, the amazing number of Christmas lights on houses that spend thousands of dollar on decorations, the local breweries, the wild, ravaging waves of the ocean, and, of course, Dave and Buster’s.)

Francis and his little family will be leaving tomorrow and life will be back to normal. I will miss him. And I will be waiting for his return next year!

Do any of you have prodigal children who return for the holiday? How is it for you?

We Had a Rockin’ New Years Eve with the Three Stooges!

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Celebrating New Year’s Eve with the children has always been a challenge. They have different tastes and interests. It is especially difficult with Marie because she is deaf. Movies are okay for her with closed captioning, but she only has a first grade reading level, so most of the words are beyond her understanding.

On Christmas day hubby hit the jackpot. Our oldest son, Francis, bought him the entire collection of the Three Stooges! We took advantage of this thoughtful gift on New Year’s Eve. The whole family sat around the television, gourmet pizza in hand, and apple juice as our simulated alcoholic drink. And we watched the Three Stooges. For HOURS. From 2014 to 2015. Their slapstick humor, so completely socially inappropriate now, was so funny that we doubled over with laughter and tears ran down our cheeks. THE WHOLE FAMILY! ESPECIALLY MARIE!!!!! Near the end of the evening, Marie, who had been sitting on the couch next to her dad, leaned over and put her head on his shoulder and her arms around his robust body. Almost afraid to move lest he scare her away, he gently put his arm around her, and looked at me and smiled. This child, who has a serious attachment disorder and from whom affection has been doled out in minuscule doses, was cuddling with her dad!

Afterwards, when we were all laughed out and the morning was near, one by one we reluctantly sauntered off to bed. While hubby and I were cuddling before allowing sleep to take over, hubby began to cry. “Did you see how Marie cuddled with me?” he asked. “It was the best night of my life.”

Yes. Yes it was!

A Special Birthday

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I sat in church this morning and watched the annual Christmas Pageant put on by the children in Sunday School. This tradition is always a treasure to see, especially when one of my own children had a starring role, such as Francis’ turn as a Wise Man, a role he “rocked” because he is super tall and regal and he is great at leading the way using a staff, (for his blindness); or Dinora’s role as Mary with her long black hair and wide, innocent eyes; or Angel’s turn as, what else, an angel. Although there was a myriad of rejoicing angels, only his had a wide, bright smile and a comical, rhythmical walk down the aisle. (Yes, Angel will do anything to stand out from the crowd.) As a mom, pride would burst from me and tears would form in my eyes as I watched my children participate in this holiday portrayal of the birth of Christ.
Today was different for me. My children are no longer of age to directly participate in the production this year, and I thought my feelings about it would be different. But they weren’t! I was still tearful as I was caught up in the gentle story of Mary and Joseph in the barn, standing in the stable until Mary collapsed in the hay to give birth to her Son. And the animals who engulfed children, their heads peaking out through costumes of a donkey, goat, and cow, who stood on the stage trying not to trip because the animal bodies were interfering with their vision. Then the shepherds were coming down the aisle, carrying stuffed sheep and being followed by toddlers wearing sheep hats, white fur and white gloves, baaaa baaaaa baaaaing like sheep. The angels coming, wings and halos and white robes, singing, dancing joyfully down the aisle, sashaying and waving the arms as though dancing to the movie “Frozen”. And then the three wise men, not lead by a tall, regal child like Francis, but led by a solemn young boy with glasses, grasping his Frankincense carefully, so as not to drop the treasure. And when they all arrived, they sang “Away in a Manger”. Then, like the Keystone Cops, they arranged themselves in front of the manger, in a timely fashion, each raised a letter to spell out a special song, a non-religious song, a wonderfully inspired song; “Happy birthday, dear Jesus”. They were wide eyed and joyful and full of the love of this new baby, Christ, who on the day of his birth changed the world for all of us.

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To Be Joyful with So Little

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When Dinora and I visited her birth place, Guatemala, we spent some time with moms who were working picking coffee beans. They toil all day while their children play nearby. Prepared for this visit, Dinora had a backpack full of little toys; small dolls, Matchbox cars, bouncy balls, toy rings, and so forth. (Above is a picture of a little girl clutching a small ring in her hand, so pleased with her gift.) The children were amazingly polite. Each child would gather around Dinora as she gave them each a small toy. Taking it delightfully appreciative into their little hands, they smiled shyly and stepped back to leave room for others to come forward. They didn’t crowd her. They didn’t ask for more, more, more. They reveled in the joy of that tiny toy! Sheer happiness!

It made me realize that more and expensive and better isn’t the right Christmas concept for children as they may not fully appreciate their multitude of blessings. If only they could experience the happiness on Christmas that those children among the coffee bean trees exhibited. Pure joy! What a concept!

She LOVES me! She really LOVES me! (not…)

Anyone who is raising a child with reactive attachment disorder knows that love and caring is not always reciprocated. In fact, often the children are so hostile that we wonder what we are doing wrong and what have we gotten ourselves into? Raising Marie has been like that. Coming to us from living with a mom who allowed unspeakable abuse, Marie was not ready to love anyone. Not letting me touch her, in fact, shoving me away or hitting me if I tried, it took six months for me to reason with her that I needed to have a way to show her that I loved her. She graciously allowed us to fist bump. Our fists met with a minimal amount of touching as I signed “I love you” in American Sign Language with the other hand. As a mom, I desperately needed to be able to share my love with her, whether she accepted it or not.

Through the years, she allowed me to hug her. I would put all of my love forth in that hug, deep, sincere, emotional… Whether she actually got any of that through osmosis, or whether she just tolerated my hug, I never knew. But I felt better doing something to demonstrate my love.

When she was about 14 years old, we were at a carnival and she spotted a photo booth. She had always been fascinated with these contraptions, and she grabbed me by the hand and pulled me over to it, sticking her other hand out for the money to put in it. As we sat inside the booth and the camera clicked, a miraculous thing happened…she turned and KISSED me on the cheek. Whether it was her excitement over the photo booth, (and the demonstration photos on the side of people kissing,) or whether she really felt an emotion and wanted to kiss me, I’ll never know. But I choose the latter. In the picture below, you can see the emotion on my face as she does so. After SEVEN long years!

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Well, a couple of years have gone by, and she and I regularly hug and kiss (she offers me her cheek.) Not much had changed in that department. UNTIL I went to the open house at her school. She saw me walking down the corridor while she was standing with a group of friends. She came galloping towards me, wrapped her arms around me with such force that I almost fell over, and gave me a huge kiss ON THE LIPS! Then she proudly told everyone that I was her mom. SHE LOVES ME! SHE REALLY LOVES ME!

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