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Parents of children with autism will never tell you that raising their child is easy…it’s not! I joke around, look for the silver lining, take things in stride, and present a smiley face to the world. However, raising my son, Steven, has been, and continues to be, an extremely difficult parenting challenge.

Memories of how hard it has been flooded back to me when my hubby and I went away for a romantic weekend at our little cabin in the woods of New Hampshire. With the sub zero weather whirling around outside, we were sitting on the couch sipping hot chocolate with lots of tiny, melting marshmallows. (Okay, maybe HE had some Kailua in his, but mine really DID just have marshmallows!) As the heat rose up from the small grate on the floor, I was transported back to the time when we first purchased the cabin. Because Steven had such severe sensory issues and taking him to a regular hotel for a regular family vacation would have caused a regular catastrophe, we sought out a calm location to which he could become accustomed. Thus, the family vacation cabin was born! He was only about a year old when we bought it, and he soon adapted well…he continued to wake at 4 in the morning to run around the house (which was carefully modified for safety.) He continued to refuse to eat any textured food, subsisting on cans of Chocolate Ensure. He continued to hide under the bed if any company came to visit, or if it was too windy out, or if the clock ticked too loudly or for a variety of other reasons known only to him. He would curl up in a ball under the kitchen table if there was too much noise, or light, or if he just plain felt like it. However, he also had the little pond behind the house where he could catch frogs, turtles and snakes for hours…HIS idea of a great vacation! In other words, he behaved just like he did at home! Our family vacation home was successful!

We enjoyed, and continue to enjoy, many years of quiet, restful activities on this little house in the woods. The only reminder of a behavior to which we could never accommodate… Steven’s self-abusive “episodes”…is a scar on his forehead. It has faded over the years and resembles a tiny tic-tac-toe board.

Last weekend, sitting on the couch enjoying my hot chocolate, I glanced over at the heating grate and shuddered, remembering the one time he was so out of control that he banged his head on the heating grate before we could restrain him. A hard, deliberate bang on the only dangerous spot in the house. It was a reminder that as hard as we tried to have a “regular” life with Steven, we could not always keep him safe…

That is not to say that this is a complaint. It’s more of an observation. Raising kiddos who are autistic changes a family’s life forever. If you know someone who has an autistic child, give them a pat on the back. They probably haven’t had an easy life…

**************

To read more about our life as a family, please read my book. Here is a link:

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

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Comments on: "Give a Pat on the Back to Parents of Kids who are Autistic!" (101)

  1. I can’t imagine what it’s like. I can only give you and others a pat on the back and my utmost respect for raising children with disabilities.

  2. I think you’re simply amazing.

  3. It’s like my life with my daughter Grace but in a different setting. Thank you for sharing and informing. Simultaneously beautiful and sad.

  4. Reblogged this on thoughtfulpastor and commented:
    I have been reading, “Raising 5 Kids With Disabilities and Remaining Sane Blog” for some time. With each new post, I continue to be touched with the way this family quietly lives out their faith by their intentional choice to raise children with nearly incomprehensible challenges. I invite others to start reading it as well.

  5. AMEN! Learning this as we go…

  6. I have a friend whose first child is autistic. Yes it has been hard at times on her, but I have seen God use him to change, grow, and mold her and her family. Sometimes the things we see are “bad” often yields the biggest blessings.

    • I agree with that…our life is so different because of Steven, and not in a bad way, just in a more difficult way. We have saved tons of money on vacations, presents, toys and so forth because he would become overstimulated. As a result, our other children grew up with less “things”, but more acceptance and love.

  7. Reblogged this on Modern Renaissance Women and commented:
    Autism is a complicated disease whose origins are not well understood. But underneath the political tornadoes circulating the disease are many wonderful mothers and fathers who quietly and selflessly raise their autistic children. I love this blog, and I love this post. And as it accurately concludes – mothers and fathers of children with autism are heroes and deserve a big pat on the back.
    best, becs

  8. Thank-you! I needed this post this morning. My middle child is very autistic and sometimes it is so difficult I fail to see the light at the end of the tunnel.

  9. I love when people speak out and share stories like this one here. For those of us that don’t know, it does help us to understand and become passionate instead of judgmental when we encounter a situation for ourselves. Love to you because parenting in itself is hard enough, but adding a situation like this on top of it makes it that much harder. You are a blessing to your children and they are also one to you!

  10. Jackie Saulmon Ramirez said:

    I hear from parents of “regular” children often about their child who will not pick up their clothes, do their homework, go to bed on time or play nice with others. While any parenting struggle is difficult, “normal” children’s issues do end — and yours do not. May God above bless you for your trials and give you strength. You are blessed already with patience; if I had these children I’m not sure I could.

  11. That is about the only thanks they’ll get…on this earth. Lord, bless them in this life and in your kingdom for such love and patients. Amen!

  12. My hair stylist remarked that my children must not be “very” autistic, and then proceeded to describe a 14-year-old autistic daughter of a friend of hers. Which happened to be typical of my own children at that age. I said, but my children are 23, 25, and 27. We have been working on those things for a long time (and they have succeeded in overcoming some of them).

    • It must be so aggravating to have someone say something like “your kids not be THAT autistic….!!!!” It’s as bad as someone saying your child doesn’t have cancer THAT bad… People can be so insensitive. I have always tried to empathize rather than to judge…
      Unless someone lives with you 24-7 they have no way of knowing what life is like!

      • I really like my hair stylist, and I know she meant no harm. She just doesn’t understand. And I guess I could look at it at this point as a measure of success. Although it is obvious that my oldest has some special needs, and is very quiet, at least I am no longer reminding her to close the stall door in public bathrooms. We can walk together in the mall, and I don’t have to closely watch her to make sure she is following me (an issue we dealt with well into her teens). She now walks next to me and talks me.

  13. Such an amazing post. & I love the fact that your seem to encourage other not to be judgmental. Our son has some of the same food texture issues. & He’ll scratch his skin so profusely if he is under any kind of stress.
    *hugs to you* & A pat on the back. 😉

    • Thanks! I learned early on not to argue about food textures. Because he was sooooooooo active, keeping him safe was the main priority! (He ended up surviving on Ensure until he was 6! NOT recommended, but it worked for us!)

      • Mine is 4 and he still eats what some would consider “baby foods” but he’s come a long way. He eats waffles and chopped up fruit which he never would have done years ago.
        I know what you mean about the hyperactivity too. He has non-stop energy. I commend you for being so open & candid with your stories. I’m sure they are a comfort to so many, including myself.

  14. as a teacher of young children, some who have been autistic, i applaud you.

  15. What a lovely blog post. I work with children with autism, so have so much empathy for you parents! The strength and resilience you have is astounding. xxx

  16. Here’s a pat, hug, and thumbs up. Cheers

  17. I work with autistic kids as a speech therapist and have a ridiculous amount of respect for the parents of these kiddos.

  18. I can totally relate to what you are talking about. All 3 of our sons have autism, but different forms of it. It can get crazy and challenging at times, but I feel that God has truly blessed us with our 3 beautiful boys. I have one that always has to sit in the same seat, etc., one with sensory integration disorder (so I can relate to the food issues), and one who gets so frustrated at times he will just shut down when he can’t get out what he wants to tell you. Our boys are 16, 17&1/2, and 19. It is hard to tell what the future holds for them. We just trust in God to give us the wisdom and patience, and take it one day at a time just trying to help them become the best version of themselves that they can be!

    • We must be soul sisters! I consider my kiddos successful if they are safe and able to enjoy life!

      • Ditto here. I just want them to be able to find their own special place in this world, and find something to do that makes them happy. Sometimes I look at them, and am amazed at all the hurdles they have had to overcome to get where they are today. I am so very proud of them and feel blessed. Blessings on you and your special family also.

  19. (((Hugs)))

    We used to say around our house: “if we can just keep them safe enough to make it to kindergarten, it will be a miracle!” Then it was 1st grade, 2nd grade, etc.

    Our older son, who is more functional, at 14 can somewhat keep himself safe now. But our younger boy with autism, who is less functional and intellectually disabled, also was diagnosed with osteogenesis Imperfecta (brittle bone disease) after genetic testing after breaking his back while simply tripping in our living room, so I constantly worry about keeping him safe! He will probably live with us for the rest of our lives, so it is a worry that won’t go away in his case.

  20. Thank you for this post. It is always nice to be reminded that there are other people out there who struggle(d), and remain sane, as parents of children with disabilities. I always thought growing up that I’d never be able to handle being a parent to a child that wasn’t “normal”. My brother has a learning disability and I just didn’t think I could handle it, as a parent, myself. Then I had my little one… and I wouldn’t give him up for anything.
    It is hard… but it’s worth it, even if you only get about 4 hrs of sleep a day. 🙂
    (reblogging this on )

  21. MusingsFromYaYa (YaYa’s Musings)

  22. Reblogged this on Ya-Ya's Musings and commented:
    This blog has touched my heart. I’ve had to learn quickly, and by experiment, just what works with my son. It is hard because I can’t teach him the same as I did with my eldest. My youngest is his own person and there is just some things that he can’t do, or wont do, yet.
    I love him with the same intensity as I do my eldest son and I know that at times it makes my eldest jealous because he sees it as, “My brother is acting bad and getting attention, why can’t I”. Kinda like I did when I was a child and my own brother, whom has a learning disability, got so much of my mother’s attention.
    While it is hard for the parents of the child, it is just as hard for the siblings. They don’t fully comprehend as young children why their sibling gets so much attention when they are “acting badly”. Sometimes we do forget, It’s not just the parents that need a pat, but the siblings need hugs as well for being there with just as much love and acceptance, and occasionally helping care for, the special children that enter our lives and family to bless us.
    Don’t get me wrong, every child is a blessing. Every child blesses us immeasurably. But not every parent is tested in the same way because each child is different, regardless of needs.

    This blog reminded me of having to find a way to keep my child withing the house, so he didn’t run down the street, or highway because one runs near the house. It mentions the problems with getting their son to eat certain foods, mine could easily live on ensure as well… and wont touch meat, only eats certain things (mainly dairy till we found out he had a dairy allergy and that started a new battle of finding something he could eat that mimicked his dairy fav’s). I’m lucky he eats some other stuff so that he’s growing ok and not unhealthy.
    It reminds me of how he refuses to wear certain clothes.. He wont wear short sleeved shirts, even in the dead of summer ( and we live in a desert with triple digits ). He sleeps maybe 4 hours a night, 5 if I’m lucky. He’s an ever-ready battery, going going going constantly. He has no fear, which causes me massive amounts of fear at times.
    He is a handful, and I love him with all I am. He is my son and even with all of the things I have had to change to keep him safe, I wouldn’t change him.

  23. As the proud mom of a child with autism, thank you! My son is a challenging joy since we have agreed that our whole family would now become autistic. We are happier for it. Often asked how hard it is, I always answered that it is only because of how other people react. Since we have adopted several of his “quirks” as family practice, it’s amazing how increased our quality of life is. So what if we choose to dance in the grocery store because a good song is playing. Who cares if we never pretend to like something we don’t. And yes, silence IS often unbearably louder than a good laughter session. Cuddling under a mountain of pillows does feel good. Most of us, he has taught us that sometimes “good enough” is better than “perfect”.

  24. Steve is blessed to have such amazing family support. I am afraid not everyone is as supportive or inderstanding. God bless you and your family.

    • I feel saddened when I realize that other kiddos are not so supported. I know there are many families that choose to have their children who are autistic do things with them that they do not want to do…going to restaurants, amusement parks, and so forth. In the long run, they may be correct in their attempts to socialize their child. For me, my family would have long ago split up and been dysfunctional if we hadn’t accommodated for Steven. We have done what we’ve needed to do for our entire family’s sake!

  25. A family in our church had an autistic son until they lost him suddenly last year at age 12. It’s been so hard for them to adjust to life without him. But what I wanted to share was how upset he became one Sunday morning during worship service. Our pastor stopped in the middle of what he was saying and asked the young man if there was anything he could do to help. The father said that apparently his son was upset because the congregation sang his favorite song “wrong.” So the pastor had us sing it again and then asked if we did it okay. Apparently we did because we got the thumbs up, and the young man was fine. To me that was such a beautiful example of what Jesus meant when He said to let the little children come to him and not hinder them. Little did any of us know how few months this young man had left on earth, and I’m sure that our pastor, who did that on the spur of the moment, was thankful later on that he had because I know all the rest of us were. It was a great comfort to the parents and sisters to know how loving and accepting our church always was toward their son and brother. And this mute young man taught us all a LOT about love!

    • That is such a sweet story. Thanks for sharing. Our church is similarly understanding. When Steven was baptized, (at the age of 4 because he had been a foster child,) he had been clutched in the arms of my hubby. When he saw the baptismal water, he started screaming, crawled down my husband and underneath the cassock of our female minister, who very calmly proceeded with the ceremony, reaching down under her garment to baptism Steven, who had curled up in a ball in that comfy spot!

      • Oh, dear, that is a great story! I don’t suppose you had anyone video-taping the baptism?

      • No, he would have freaked out if he saw a camera in the first place!
        For first communion he had classes individually with the pastor and on the day of communion he hid under the seat and wouldn’t come out. The pastor came and said “The body of Christ.” His little hand came out from under the seat to take it and you could hear a tiny “amen”. I gotta love my church!

  26. Thank you for posting this.

  27. cherished79 said:

    I have no children, I can’t imagine.

  28. Loved reading your story. I have a young autistic son too and we recently made a massive change in his life. It’s been so hard on the poor little guy but even harder on me and I can honestly say, I’m doing my best to keep my head above water. Thank you for your story.

  29. Reblogged this on Random Soliloquies and commented:
    Amen.. why not check out this amazing moms blog..

  30. A special pat on the back for you. Thank you for sharing your journey with us.

  31. Thank you, I’m raising two, needed this today!

  32. Oh, Woof, Woof, double Woof and a big lick right in the kisser! Thank you so much for being good parents! And great job! You guys needed the alone time. (tail wags)

  33. My oldest son 8 is autistic and the first 2 1/2 years were the worst because I knew something wasn’t right and he needed help. I kept getting met with he is fine he will grow out of it he is a boy and my favorite you don’t punish him enough or right. If you just punish him he will stop. When we finally got help it was a true god sent. He was to the point I couldn’t leave him alone with his sister why I was around the corner if he got mad he would knock her down sit on her and rip her hair out in handfuls at a time bite her or hit her. I had to keep him right with me. He is now doing so much better and learning and growing so fast. He is an honer roll student and everything now.

    • I can sooooo empathize with you! The beginning was the worst! Once we learned all Steven’s little “triggers” and ways for him to soothe himself, life got a whole lot better. (Different, for sure, but better!)

  34. From my side it will not be a pat. I salute the strength, patience and compassion.
    Regards
    Rupesh

  35. You capture the feeling perfectly. There’s so much to think about just in everyday life. Very relatable to me currently. Its nice to know your not alone 🙂

  36. I always read but rarely comment. I don’t know what I want to say now except that I get it and I’m glad you were able to find a way to have family vacations. And oh my gosh the chocolate ensure. My kid hardly eats and never eats anything nutritious. It’s strawberry pediasure for us.

  37. Thank you for this lovely reminder…we all need encouragement, and a pat on the back… 🙂

  38. Having people who do not have an autistic child tell me how they “totally understand” what I’m going through or attempting to help me get my child over any sensory issues is one of the hardest parts of being a parent to an autistic child:)

  39. Thank you for this post. I needed this today. I know you read my blog and I know you are aware of our daily struggles with my 5 1/2 year old with Autism. My goodness, it feels good to hear it from another mom. Every single blog post you write inspires me. Thank you and God bless.

  40. Thank you for sharing your thoughts in such a vivid way.
    I’ve learnt a lot from reading your blog,
    and really appreciate that.
    With very best wishes to you and your family,
    from an inspired reader.
    ex.

  41. Can’t help but notice the similarities to my own life with my son, Stephen. For Stephen it was putting his feet on the blazing hot radiator- which we had to find creative ways to child-proff and re-child-proof as he got older… and then the favorite vacation spot – for us is a camper in Maine – for the same reasons – sensory overload – the need to child-proof everything and the need to get away, rest, relax and have some quality out door time – fishing, swimming, and splashing in anything from the ocean to a puddle will do 🙂 I’m looking forward to continuing to read your blog and downloading a copy of your book 🙂

    • Yes….the extensive pain tolerance. Our Steven has broken his leg twice without knowing it, and scraped the cornea off of one of his eyes and I didn’t know until days later. (VERY painful, I’m told.)
      Thanks for joining me on this blog journey, and an extra big thanks for purchasing the book!!

  42. Reblogged this on Love, Support, Educate, Advocate, Accept… and commented:
    One of the blogs I read and enjoy – Rasing 5 Kids with Disabilities and Remaining Sane – gotta love the remaining sane part! Can it be done? With a bit of humor and a lot of optomism, I think maybe it is possible to remain sane – lol – but without the ability to see the “silver lining” – I’m not sure if it can be done. You’re certainly free to give it a shot, but I wouldn’t say I’d advise it. Life is not just the cards you’re dealt but how you learn to play them! Enjoy…

  43. When I read this I see my parents had it relatively easy….even if their younger son DID tend to identify with patients at the hospital where his Dad worked and with those folks at school who were shunned by others.

  44. As the mother of a child with schizoaffective disorder, sensory integration disorder and possible Aspergers – wow. Thank you. You are my official hero.

  45. […] 5 Kids With Disabilities talks honestly and openly about the challenges of raising children with disabilities. Her posts […]

  46. A girlfriend of mine has three sons, two of which are autistic and and one of them has also been diagnosed with OCD. She and her husband struggle every day to make sense of it and try to keep things as normal as possible for them, but they have different normals and they struggle to keep up sometimes. I hear the frustration in her voice sometimes and she readily admits her psychology degree didn’t adequately prepare her for this. I, as a friend, don’t try to dispense advice; but as a friend I sit and listen sometimes for hours.

  47. First off, thanks for the ‘like’. I’m new to all this WP thing, so not quite sure how it all works yet.

    My son is on the autistic spectrum and it has been very frustrating, not only getting a final diagnosis after months and months of meetings (all on my own, as my husband was living/working in another country at the time) and years of stress and not knowing exactly what was ‘wrong’ with him. Nevermind that nobody in any of the schools he’s attended made any effort whatsoever to find out why he was always so difficult unless he actually liked what was being taught. (and then he couldn’t get enough of it and probably drove the teachers nuts LOL)

    It was also frustrating in that while we did eventually get that diagnosis, his school at that time seemed to enjoy passing the buck (so to speak, idk if there’s a British equivalent to that saying?) and didn’t do any of what was recommended by the psychologists he saw, nor did they follow their own government-mandated procedures for dealing with kids with disabilities. We’re now in a different country altogether (again. *sighs* 7-8 countries in less than 15 years is a bit wearing…) and he’s at a boarding school back in the UK and doing very well despite his former school’s attempts to sabotage him. (we are considering court action, yes…) He is thriving at the way they have everything structured there and the strictness of the regimen seems to be doing a lot better for him than we ever could, and I’m grateful for this school to be willing and able to step up and actually do what they say they’re going to. He has his own adviser who takes him out to buy things when he needs it, and his grandparents live nearby so they take him on weekends. There are still issues to be dealt with, but it’s getting there. I hope.

    He does now have plans for his future, which he never dared to before, and the support (mostly; his grandparents are still not exactly supportive of what he wants to do, but we are adamant that they respect his choices, whether they like it or not) is there for him to be able to realise this. He’s only 16, but he’s finally getting somewhere and it’s a huge relief. We do miss him terribly, but thanks to the wonders of modern technology, we’re able to keep in touch with him and he can still see and get to know his baby sister. (she has her own health issues we are having to deal with, but hopefully things are working out for her too. We’ll know for sure at her next appt with the endocrinologist in 2 weeks. *fingers/toes/eyes crossed* She’s been through a lot in her short almost-5-months of life, our S, but she’s still a lively happy baby and everyone adores her. *beams*)

    Reading your blog briefly, I admire everything you’ve done, what you’ve been through, and wish you all the luck and happiness with your lively bunch of angels. ^_^/

    • It sounds like you have had such a hard time getting your son settled, but that he is finally in a good school. The school makes all of the difference, I was lucky that my son got a wonderful education in a specialized school. I am sure he would not have “made it” in a regular school, although that is the trend. Some kids are just not meant to be mainstreamed…

      • You are right about mainstreaming. We tried for years with my son but the schools in my area (public) are more concerned with making students adhere to a predetermined idea of socially acceptable existence than actually helping them succeed in the face of serious disabilities. We now have him homeschooling with an online program that allows him to control the pace he goes and presents the information in an easy format for him. When he needs extra help we bring in personal tutors that HE interviews to make sure he is comfortable with them. He never EVER thought about his future but thanks to this set up he know has committed to becoming an EMT because he feels his entire purpose in life is to help people. School these days, unless you find just the right group of people, can make things so much worse on our kids. I know one school in particular is responsible for us having to put him in a hospital for two weeks to get him back to a balanced state and then we still have to spend the next two years of counseling to get him really back on track. Public school is woefully ill-prepared most times, in my experience, in dealing with these special kids. We were not able to afford a special school even though there were numerous ones in our city….it takes thinking out of the box as a parent and luckily we have family that is understanding and does support us in all our decisions and how you have to deal with him individually not like anyone else. Only one member in the family refuses to accept things and luckily they are not living near us. The one thing I wish I had more education on and knowledge of when we finally got his diagnosis is how difficult school was going to be beyond elementary. Jr High and High school was really where the nightmares of public education began for us.

      • It really does make a huge difference. While I do realise that all the moving around we’ve done is not helpful as far as stability and continuity of care, when the government states you HAVE to do these things and you just plain don’t, all for the sake of your league table stats and school reputation (which has seriously gone down the pan in recent years with so many issues to do with bully teachers and so on… *sighs*), then don’t be surprised when you eventually get called on it. I refuse to take the blame – I held up my end of the bargain, even though it’s very difficult for me. (I am severely hearing impaired and also have many other physical disabilities, so I think I did pretty damned well, all things considered, so for them to pass the buck/play the blame game was not cool, imho.) I’m just glad we finally have a school that actually cares.

        The irony of it is that despite the fact that my in-laws are hell-bent on him getting an academic career rather than the vocational one he has his heart set on, they were the ones who found it for him after we absolutely nixed their choice of private school for him over here. This private school has a horrible reputation, that says it right there. While it would have been nice for him to be able to network with children of diplomats and whoever, I have the suspicion the reality would have been a hell of a lot worse, with even more bullying than he’s had in the past, which had gotten pretty nasty at one point. And when he just plain didn’t want to go there, whatever the reputation, as far as we’re concerned, that’s that. He knows what he wants to do, how to get there, and is now working his butt off to get there. I think that’s a lot better than getting an expensive education that you won’t be able to use at the end of it.

  48. I understand this so well. My son has asperger’s, which is not as severe even on that scale but the terror of how he would behave when he was younger always comes back to me at strange times. All the days I would end up chasing him down the street or holding him down during a huge fit still brings tears to my eyes. We have made it out of those dark days but they are always in the back of my mind. I wish other people could spend just one day in our shoes. I know, as a parent like you, we always are positive and the world never sees the days that we spend crying and raging at the stars trying to figure out how to raise the fragile children in our lives. I wish we could have been able to do what you did and find a safe place to vacation and just purchase it but we made it work somehow…. again, thank you for bringing your stories to a public forum. Its nice to know we are not alone in this journey.

    • My son has Aspergers as well, and it’s been a total roller-coaster ride. (sensory issues, the whole nine yards…) The school I mentioned before where he got his diagnosis in the end were totally only interested in educating little robots, making everyone conform to their ridiculously rigid socially constructed ideas on how the world works. Which, when you’re in education, you should know that not everyone, disabled or not, learns at the same pace/level, or in the same way. It just plain doesn’t work that way.

      Kids need the individual help sometimes, and when they don’t get it, educators act all surprised when things go out of whack. Unfortunately for us, homeschooling has never been an option, much as I would have loved to. It is illegal in Germany, for one thing (where we live now), and physically, I am just not up to it. It takes a lot of energy I just don’t have, and I really really admire those who do, so props to you for your achievements. 🙂

      • Wow. That is awful that homeschool is not an option in Germany. The only reason the home school works so well for us — my son is now 16 and does really good for himself and although I work full time we manage to get things done because he is also Bipolar which has caused his time clock to be flipped from the rest of the world. Instead of fighting against that issue we embrace it and he does his schooling at night and sleeps in during the morning. I figure it is best to utilize his schedule to the fullest of his abilities instead of forcing the other way around. The program we use does all the hard for for me. It keeps track of his grades, his attendance and also can provide detailed reports for binding and keeping the records. I just check in and make sure his grades are going in the right direction and if not we get a tutor. The only hard work for me is making sure he stays on task and gets things accomplished. The website is so succinct in their lessons that what would take eight hours to accomplish in a school setting takes only three or four hours at home which is a huge stress relief on him and us as well. I hope you are able to find something that can help you. I know in my state of Texas we have a special task force outside of the schools that if you find your child is not getting the help they need and you can prove it (which is usually very easy) by them not following their special education plan then they will help represent you in a court and make the school district either a)create a program specific to your child or b)pay for them to go to private school since they are not able to do what needs to be done.

  49. I agree with you. They are certainly special children with special needs. It takes “special” people to parent them.

  50. Reblogged this on decor8yourlife and commented:
    One parent’s story of the unpredictable and scary world that is Autism.

  51. I used to work with adults with autism so I applaud you on coping so well. Sounds like u r doin a good job!

  52. You are an inspiration – it’s the ordinary, everyday keep on ‘keeping on’ with love and compassion that is the miracle. Thank you

  53. This is so encouraging! You really do seen like such an amazing mom, who has an immense amount of patience. I thoroughly enjoy reading your blog posts.

  54. I do know some autistic parents. I do know the difficult times they go through. It is very tough indeed. XX

  55. A vacation cabin! What a great idea! My husband and I haven’t taken a vacation since our autistic son was born, for very similar reasons to the ones you mention in your excellent post. Maybe we’ll follow your inspiration and find a peaceful getaway of our own! 🙂

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