Archive for June, 2014

Just Call Me Marshmallow Head!

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My oldest son, Francis’s wife just had a baby. Being a thrilled grandparent, of course a trip from the Northeast to California was in order!
Exactly 23 hours and 50 minutes before my flight, I dutifully “checked in” with Southwest in order to get a boarding pass with a “low number”. For those unfamiliar with Southwest Airlines, passengers are boarded according to the letters and numbers on their boarding passes, Letter A, 1-60, Letter B, 1-60 and Letter C-1-60. You can only register 24 hours or less to get a boarding pass, so I try to do it as early as possible in order not to get stuck with a high letter/number. It never ceases to amaze me that calling in at 10 minutes after 24 hours yields me the combination B-10. How could 70 people have checked in before me? Was everyone else sitting at their computers at 5 in the morning just waiting for that magic moment when their prize would be a low number? But I digress…this system is only mentioned because it will pertain to an issue which will occur later in this post.

Anyone who knows me knows that I get motion sickness very easily. (Almost my entire childhood was spent sleeping in the backseat of my parents station wagon as we traipsed across the country.) My plan was to sleep the entire 7 hour flight to California. (Another talent of mine is to be able to sleep anywhere, anytime, a skill that came in handy in college where cat naps were caught on the couches in the student lounge between classes.)

My sleep technique is somewhat unique…I can only sleep if a pillow is wrapped around my head. Yes, a pillow wrapped around my head. Tightly, so as not to let in any light. Using a king sized pillow with some of the feathers removed, one end of the pillow goes under my head, the pillow is wrapped around the front of my head, and the other end of the pillow is secured behind my head. For those unfamiliar with my technique, it looks as though smothering myself is a possibility, but an air hole from my nose down to the bottom of the pillow is created. Sleeping my way to California would be no different. Dragging my pillow onto the plane the next morning, I settle into my window seat waaaayyyyy at the back of the plane. (There is always the possibility that the plane won’t be full and I could have the whole seat to stretch out on to sleep. Alas, not so lucky this time.) Settling in and maneuvering my pillow strategically around my head, I became comfy. Because I put my own comfort first and don’t worry about what others think, any references to the appearance of “Marshmallow Head” would not hurt my feelings. As I sat there, cozy and drifting slightly off to sleep, I could hear the usual commotion of the “onboarding” of the plane. Most of the seats have been filled except for the unpopular middle seats. At this late stage of boarding, three different sets of couples found themselves in the back of the plane trying to get seats together. Their seat numbers were probably in the C-45 range. As they moaned and groaned about being separated, the stewardess ordered single people to change seats. People like myself who had obtained earlier boarding passes were being directed to move into those vacant middle seats! I feigned sleeping; it would have been upsetting to sit in a middle seat in which my pillow manipulation would have been unsuccessful, especially for a flight of more than 7 hours. One kind gentleman who gave up his window seat to sit in the middle seat next to me, instantly regretted his choice. The woman in the aisle seat had obviously had one too many to drink, and she slurred her words as she chatted to him, providing him with a non-stop foray into the dysfunctional family she called her own. As I woke intermittently throughout the flight, and she could always be heard talking about one thing or the other. I was filled with sympathy for my poor seat mate who had no place to escape and no pillow on which to feign sleep.

The flight was otherwise uneventful Of course, I could not know for sure because I slept through most of it…

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For more stories about my childhood, please, read my book. Here is a link:

https://itunes.apple.com/us/book/the-apple-tree/id538572206?mt=11

The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane

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I’ve Never Been So Happy to be Sick!!!!

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Just like everyone else’s, my life sucks from time to time! This past month has been one catastrophe after another. Marie, my daughter who is deaf, had again been hospitalized due to a dangerous PTSD episode. When in a dissociative state, she downed staples in an effort to kill herself. Ever the optimist, I was hoping against hope that her memories of severe abuse would begin to soften, maybe even heal. Alas, not yet…this will be a lifelong battle.

My son Angel, who had just begun to drive, was involved in a rear end collision. While slowing down for a red light, KAPOWEE! another car hit him in the rear, pushing him into the truck in front of him. He was briefly hospitalized for whiplash, but the emotional impact was even worse. Sleeping is a luxury he no longer enjoys; wild fears and thoughts flood his already befuddled mind. He has stopped doing the things he used to do, clearly depressed that his means of freedom no longer sits in the driveway. Through no fault of his own, his major pride and joy, his ability to drive around and help others all day, has been destroyed. The car, safe and well running, was bought new in 2008. The insurance company only paid the Blue Book value of $4200. Because we do not have additional financial means, trying to find a car for such a small amount of money has been a real challenge, and every day that goes by without a car for Angel pushes him further and further into depression.

Marie’s recent birthday party was ruined when Steven “acted up”…having a full fledge outburst. (He has a severe sensory deficit with which he can not tolerate crowds or things not in his regular schedule. I should have had the foresight to arrange for him to be elsewhere.) Steven punched a hole in the wall and swore obscene obscene obscenities, (I know most obscene obscenities, but he came up with a few that were even more hard core.) As he stormed off down the street to settle himself down, the damage had already been done. Mortified at this behavior that most of our guests had never seen, everyone left, making a bee line for their cars, children in tow. Marie, who in her deafness had not heard the commotion, had been fishing on the dock behind our house. When she turned around, everyone was gone! She was quizzical at first, but not being a real “people person”, she took it in stride, especially because everyone had left their gifts for her!

My own work has been more difficult. The agency has hired a public relations person, and suddenly referrals have been flooding in. With an exponentially increased workload, putting in 50 hours a week has not been uncommon. What HAS been uncommon is the wrenching ache that developed in the pit of my stomach. Food would spew out of my stomach a half hour after I’d eaten. I felt awful, but I trekked on, saltine crackers and ginger ale bottle in tow. All my life, stress did not bother me. I could handle anything! No problem! Que sera sera! A little stress was not going to deter me from my job duties! (Like a mailman, neither ran, nor snow nor dark of night would keep me from my mission.) But as the stomach ache dragged on, my enthusiasm waned. I actually became depressed! My life, as I knew it, was over… or so I thought…..

After two weeks of eating nothing but chicken rice soup and saltines, I dragged my depressed little body to the walk in clinic. Taking one look at me, they sent me to the hospital emergency room where an intravenous was started to alleviate my dehydration. Laying there, I watched several bags of liquid force fed into the little vein in my hand. They did many tests, some to which I may have objected but I was too weak to stand my ground. Lo and behold, I was really sick! It wasn’t stress! It was salmonella poisoning from an egg breakfast at a local diner two weeks previously! Although I lay there on the gurney still feeling ill, happiness filled my heart. I was sick, not stressed! Life would return to “normal”, including all of the small tragedies and heartbreaks and problems associated with having five children with disabilities. But I could handle it! Life would go on!

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