Archive for the ‘family’ Category

Little Red Convertible


Our family has the unfortunate dilemma of having all three of our cars disabled. (Children with disabilities I can handle, cars, not so much…) Hubby purchased a new (used) work van, but due some out of state issues, he is unable to register it, so his brother’s work truck has been a handy loaner. Angel, like so many other high school graduates when they get their first, real job, purchased an newish SUV, envisioning driving on the beach and sloshing through the mud puddles rather than the reality of driving in traffic on Route 95 every day, (although he did get some sloshing in during the road construction during the rain.) The transmission on that car just ceased to work; would happily drive it anywhere in reverse, but stubbornly refused to move forward. My car of necessity had been the resurrected old family van, which recently decided it outlived its purpose, refused to run at all, and is cost prohibitive to fix. Angel has the pleasure of driving a rental from the dealer where his car is being fixed, whereas the dealer of our van is long gone and probably dead. No help there!

Having hubby give me a ride is as frustrating for me as for him. “Time to go,” he announces 15 minutes before it is actually time to go. While I am standing there in the bathroom in my underwear, he goes out to the car, starts it, and beeps the horn every 10 seconds. If anyone wonders why I have been arriving to work disheveled, hair not coifed, face not glamored with make up, and mismatching socks, blame hubby.

Not having a car to go out to lunch with is a huge imposition and detrimental to my job. While I love my work and the people with whom I work, going out to for lunch to Wendy’s or Panera Bread allows me time to relax and regenerate my work ethic. Currently, by 3:00 in the afternoon after working 7 straight hours on serious matters, my brain is fuzzy and my motivation weakened. (Having lunch in the office always results in my getting pulled into some crisis, to which I can’t possibly say “no”.) How I long to be able to go out to lunch to get that much needed break!

Then there are the times I forget I don’t have a car. I readily agree to attend meetings and do favors for others, only to be embarrassed later to proclaim I can’t because the van is dead. If there is no Diet Coke or microwave popcorn in the house, the store is out of range and I must unfairly suffer.

However, not having a car enables me to daydream about what type of car would fit into my life now. Teenage life, (with my first job) saw me driving an MG convertible; fun, awesome, 2-person car, top down in the summer, wind blowing through my hair, and sunshine on my face. That lasted until marriage, which necessitated a family mini-van. As our family grew, (and grew) only a 9-passenger van would do, the very same van that now sits useless in our driveway. At this stage, after working hard and mothering most of my adult life, the possibility awaits for a return to a fun car like was driven in my teen years. Noticing so many “older” individuals driving little sports cars, at first I scoffed, thinking they are trying to reclaim their youth, unaccepting of the fact that they are now “old”. Then the realization hit that they have lived their lives and have earned the right to drive a fun car more than a person just starting out in life. The possibility that it might be my time to pick out my own, cute, fun little car is enthralling. Suddenly, having no car is exciting! The possibilities are endless! Little red convertible, here I come!



Please consider purchasing my book, The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane.  Thanks!!!!


The Original Tiny House



When our children were young, it was evident that we could not take Steven, with his autistic tendencies and severe sensory integration issues, on vacations to touristy hotels in unfamiliar areas. It only took us one trip to New Hampshire when he was a toddler to learn that his disability might be a hindrance for family fun and relaxation.

Never one to back down from a lifetime of vacations, hubby and I went up to NH a few weeks later to search for a home away from home in which Steven could be comfortable. We purchased a small cabin, one which would qualify to be a tiny house on Tiny House Hunters. It is cleverly designed, having 2 bedrooms. The “master” bedroom consists of a double bed inside 4 walls where one has to open the door outwards to crawl onto the bed. The second bedroom had 3 fashionable twin beds in bunked style, again accessed in the doorway. There is a tiny ladder to reach the 2nd and 3rd bunks. The tiny kitchen doesn’t matter because we usually grilled our food, and the tiny bathroom may have a bathtub in which I can’t sit up, but it is better than no bath at all.

This cabin has served our family well throughout the years with swimming, canoeing, fishing, frog catching, game playing and lots of family fun. It has never been as valuable as it has the past few years when hubby and I try to go up for monthly respite weekends. Life is so hectic and busy and often problematic having children with difficult issues that we literally count the days until we can once again relax in the woods; no cable tv, no wi fi, no telephone coverage, completely cut off from the outside world.

So it was that I relaxed this past weekend. Sitting on the deck, I sipped my tea and listened to the quietness. Every so often a bird would chirp, different birds, different chirps. I had never been interested in bird watching, but hearing the variety of peeps and tweets piqued my interest.

The snake that lived under the house was sunning itself on a nearby rock. Because Steven was a snake expert, I learned that it was not a dangerous snake, and would eat field mice that might otherwise invade our tiny house. I might prefer a cat, but a snake would do in a pinch.

The silence of the woods reminded me of meditation. My mind was calm and relaxed, free floating and super observant. The trees were all blanketed in dew, and thefat dewdrops hung from each leaf, defying gravity. I further noticed that on the end of each pine tree branch was new growth, poking out gently in a light green extension, a half inch or so long. Somehow I had never thought of trees growing, much less be able to witness it in action. The same flowers that we had planted at home without much success were growing like wild flowers at our retreat; large leaves everywhere, bright, vibrant flowers so tall and large that their stems were bent over with the weight.

It seemed like eternity, no thought of time or place, as I sat there and all my anxiety fell away and contentment filled its space. I was ready! I would “put my big girl panties on” and face the stress of the week ahead with courage, knowing that in another 29 days I could return to this place of peace.



If you would like to read more about our family adventures, please purchase my book The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

Termites Aren’t so Bad



My oldest son, Francis, was born “legally blind”. His visual acuity stabilized at 20/400. (In layman’s terms, what a fully sighted person could see 400 feet away, Francis could only see blurrily at 20 feet.) He used his hearing so well that it was easy to forget that he had impaired vision, but every now and then something humorous would happen to remind us!

One Friday night when he was about three years old, he entered the living room as my friend and I quietly sat amongst the pillows on the couch, munching away on buttered popcorn, and watching “Dallas” on television, (our ridiculously favorite TV show at the time.) He toddled toward where we sat and without hesitation climbed onto my friend’s lap.

“Why, HELLO there!” she exclaimed excitedly, since Francis had previously been very shy with her. He looked startled and then began to cry hysterically. He thought that he had crawled onto my lap! He could see well enough to distinguish that there were 2 figures on the couch, but was unable to focus on the differences of our faces. From that moment on, when he entered a room, he would say “Hi, mom!” and I would respond, “Hi, sweetie!” so he could tell from afar which figure I was. At the age of three he had already learned to make accommodations for his vision loss.

He made similar accommodations when he started. He loved going and had many playmates but seemed to develop a deep friendship with a little boy named Eddy, whom I had not yet met because his mom dropped him off at a later time. Francis would come home and tell me that he and Eddy played with blocks or outside in the playground or cleaned the hamster cage together. I was not only excited that he was actually telling me about his day at “school” but relieved that he was able to socialize and make friends.

One morning my lazy body did not want to get out of the comfy bed on time, so he was driven to school much later than usual. I accompanied him into the building and saw the entire class sitting on the floor listening to their teacher read a book. At first glance, the sea of toddlers looked like a blur of Caucasian, light haired children. Francis scanned the room with his limited vision, spotted Eddy, and walked over to sit down next to the only African-American child in the class. Francis was one smart kid…for his best friend he chose the classmate who was easiest to pick out!

Francis had a wonderful, normal nursery school experience, with one notable exception. The school invited an exterminator as a guest speaker who regaled the class about the abundance and peril of termites munching on the wood of houses. Francis came home terrified at the possibility of having them in our basement. I had never seen him so anxiety ridden and he developed problems falling asleep and nightmares. After about a week of this, I finally asked, “WHY are you so afraid of such tiny bugs?” He burst into fearful, explosive tears. “TINY????” he replied. “THEY ARE HUGE!”

Driving through Providence, RI, Francis had previously seen the only termite of his young life, the famous “Big Blue Bug” atop a building on Route 95, which is 928 times the size of a regular termite. No wonder he was so petrified! His understanding was that termites that large roamed throughout his basement and were eating his house! After I stopped laughing, it was explained to him that the Big Blue Bug by the side of the road was a joke and that termites are tiny. Then his dad and I took him downstairs, searched and confirmed that our house was, in fact, termite free. Happy dreams were his again.



If you want to read about Francis’ hugely successful life, including skiing, captaining a sailboat, obtaining a Ph.D. from Cambridge University, and eventual career as a high level manager at a famous Silicon Valley computer company, please purchase my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

A Cautionary Tale about Halloween Costumes


For some reason, one of my children’s favorite holidays is Halloween. When discussing shared custody of his toddler daughter, my son, Steven, listed Halloween as the most important holiday. Christmas…ah…he can be flexible. Thanksgiving….not all that important. Fourth of July? Just another summer day. (Of course, the fact that with his Asperger’s he is naturally aversive to the larger celebrations does come into play here.)

Steven, being the obsessive reptile expert that he is, always dressed like Steve Irwin, the famous crocodile hunter, for Halloween. Crouching down near the doors of the expectant candy deliverers, he could be heard saying “Aye! Ain’t she a beaut!” while poking at a snake (stuffed), just like his television idol. His plan this year is to again dress like Steve Irwin and to dress his precious daughter up as a crocodile, once again proclaiming, “Aye, Ain’t she a beaut!” at each home. He is excited to be able to share this pleasant childhood memory with HIS child.

Having five children and many foster children, I was always on the look out for Halloween costumes on sale at deep discounts after the holiday. I hit the jackpot at Toys r Us one year when I found an adult sized chicken costume, complete with feathers, sizable full head mask with a plume on top, suitably lifelike feet and feather-like gloves. The price was 90% off. What a find! Excitement welled up in me as I thought about the next Halloween and one of my children wearing the amazing outfit.

As it does every October, Halloween rolled around again, and the costume was perfect for Francis, my oldest son, who was very, very tall at the age of 10. He wanted a silly, popular costume like Spiderman, but I talked him into wearing the chicken costume, a really GOOD costume. He was afraid people would think he was Big Bird, a humiliating costume for a 10 year old. I assured him it looked NOTHING like Big Bird.

Of course, I was completely wrong. At each and every door, the candy presenter would exclaim, “Oh, LOOK! It’s BIG BIRD!” and they would laugh at the amazement of such an elaborate costume. Francis, of course, did not laugh. At each and every door, he would turn around to look and stare at me through the beady little eyes of the chicken mask. His steely stare said it all. He was humiliated and it was my fault!

I learned valuable lessons that day. Just because something is on sale at a deep discount does not mean I have to buy it. And maybe, just maybe, those silly, popular costumes of Spiderman may be what my child wants to wear, which doesn’t make them silly at all!


Please consider purchasing my book: The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane on Amazon.

Did You Ever Have One of THOSE Days?


Usually mornings are hectic; get up reluctantly, sleepily make a cup of tea, eat quickly, rummage through clothes to find a suitable outfit, and out the door I go. Yesterday was different. As I was rushing past the back door to get out, I stopped suddenly to look out the window at the pond and was mesmerized by the sight. The water was as smooth as glass, with the exception of the migrating ducks; whose criss cross swimming replicated that of precision swimmers. All were swimming in unison, zig zagging through the water leaving wakes behind them, which decorated the pond like a huge abstract painting. In all of my years, it is a wonder I never appreciated this artwork by nature before.

Stepping out into the cool October air, I drew a deep breath, savoring the crispness that filled my lungs. It was so invigorating that I walked to my car with a spring in my step and a smile of contentment on my face. Such days in October are a welcome treat after the long summer heat.

Driving to work on Route 295, my mood was elevated by the surprise of the colorful autumn trees. Although I had obviously seen them before in my rush to get to work, on this day the sight overwhelmed me, especially when driving from the shade into the bright sun, which delightfully shone down and highlighted the beauty of the yellows, oranges and reds. My heart got goose bumps as I continued to drive amidst the vibrant landscape.

Life is usually too rushed and my brain full of mingled thoughts to really appreciate my surroundings. This day was different, an almost spiritual reminder to appreciate the good things in life.

On my way home from work I impulsively stopped at the grocery store to buy some apple cider and cinnamon. Tomorrow I will have a cup of hot cider in the morning as I relax in my chair and soak in the beauty of the pond.

Please consider purchasing my book: The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane on Amazon.

Sucked Up by a Vacuum


Instead of driving his 1999 work van with the worn tires, Hubby was going to take my car for an out of town trip. Knowing that our cleanliness styles are contrary, I decided to surprise him and clean up my car in the fashion he prefers. (Clean, that is.) After going through the super duper car wash with all the bells and whistles, I emptied out every speck of trash, right down to the McDonald receipts and gum wrappers left by my youngest son. Then, in a daring move, I put 3 quarters into the huge vacuum cleaner to vacuum the floors. While pulling on the hose to reach the front seat, somehow the nozzle grabbed onto the front of the dress I was wearing. Surprised, I pulled the hose up to get it off my dress, but all that did was pull my dress up over my head. Frantic, I put the hose down lower, and it then glommed onto my underwear. Pulling on the hose seemed to increase its strength until my underwear was pulled so tight it felt like a wedgie. Quite the tourist attraction, I was standing in the parking of the car wash with the cars driving by on a very busy road. My dress was up and, with my underwear also clinging to the hose, a loud, piercing scream was coming out of my mouth while I frantically turned in circles and jumped up and down trying to free myself. It was just like being sucked up into a giant vacuum. Oh, wait…I WAS being sucked up into a giant vacuum!

Fortunately, those 3 quarters only paid for 2 minutes, and eventually the hose released its powerful grip. Flinging the hose out of my hand like it was electrically charged, I slinked down into the front seat, hiding.

Oh, well, it was MOSTLY clean for Hubby…

It Took Us the Long Way


I have written before about the GPS, and lauded its virtues. I remember in the 80s using street maps and trying to find tiny little streets among a vast array of tiny lines. (Think “finding a needle in a haystack”.) The GPS is an easy and quick way to get to a destination.

It was with this confidence that, during a recent trip to Florida with a good friend, we punched in “Downtown Disney”. The directions started to flow, and we dutifully turned and joined highways as we were on our merry way, chatting and laughing about our families and “old times”. After about 45 minutes, we both became serious and one of us said, “This GPS seems to be taking us the long way. It shouldn’t be taking this long to get to Downtown Disney…” It was at that point we looked closer at the GPS to see the estimated arrival time…35 HOURS! WHAT? It couldn’t possibly be THAT far! We looked a little closer and, lo and behold, it WAS taking us to Downtown Disney…in CALIFORNIA!!! Being good friends, (and not spouses, which would cause the opposite reaction,) this was cause for hysterical laughing til the tears flowed. Then we calmly changed the destination to the one in Florida!

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