Archive for the ‘foster care and adoption’ Category

Time Flies in New Hampshire

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We went to New Hampshire a lot when the children were younger, staying in a tent and sitting around a blazing fire, roasting marshmallows and laughing. I loved poking at the fire, which I favored when traveling with my family. Finding a big “poking stick” was mandatory, a green one so the wood wouldn’t burn too fast.

Francis and Dinora were fine with a tent, but when Steven and another foster baby or two joined our family, we had to move up to renting a small “cabin in the woods”. We had tried tent camping with Steven, who displayed symptoms of ADHD from the moment he started to walk. A campsite was too inviting for him, and we spent the entire time chasing him from among and in the trees. Either that, or he would sit motionless, fascinated at wildlife, watching an ant hill for hours on end.

Our conquests of nature were invigorating. To see Ellis Falls, we had a spirited hike down into the woods to view the magnificent wall of falling water, sunlight brightly sprinkling off the cascade. Hiking back up was just enough to make us “feel the burn”. Even though it was a short distance, to us it simulated a hike up a long mountain, including the sense of euphoria when we reached the apex, (the parking lot with our car.)

The children liked Lower Falls best, an area where the water gushed over large rocks, smooth from the years of abrasion. It was fun to crawl among the rocks, often falling into the river, a cold and a welcome respite from the warm sun. When the children aged, they dared fate by sliding down the natural water slide into a small pool of water at the bottom. Hubby and I would bring a cooler of lunch and sit in webbed lawn chairs on the side, closely watching the antics of the children. Steven especially loved this area, as there were many potential wildlife attractions to keep his attention. One year, we hit it right at pollywog season, and Steven and his net were kept busy all day catching the amazing little squiggles of black, (which were, of course, set free before we left.)

We would often take the children out into the lake in our small motorboat. They would go tubing off the end, as Hubby would drive the boat back and forth forcing the tube to repeatedly cross over the wake. They would fish; catching huge, squirmy, samples of fish, which would be released back into the water. It was so funny if they caught a similar fish, thinking it was the same one, as though the bounty of fish in the water sat by just so that the worm could trick that same fish again. There was a small island where our boat would stop and tie up, allowing the children to enjoy a huge rope swing which would send them flying into the water. Joyous fun would be had by all.

The years have gone by and last weekend Marie came along to NH. Did she want to go out on the boat, go fishing, catch frogs from the nearby pond, or swim in the lake? No. Her choice, as was ours, was to lounge around and watch old DVDs. She and hubby especially like The Three Stooges as their brand of slapstick humor requires no ASL interpretation. I never heard so much laughter as last weekend, including a chuckle or two from myself. Then, having withdrawal from Wi Fi and “talking” to her friends, we drove Marie to Starbucks where she could order a smoothie and use the free Wi Fi while sitting in a comfy chair. As we drove away and left her there to go grocery shopping, I had a strong urge to join her instead of schlepping things around the grocery store. Keeping Hubby in mind, however, I was reluctant to say anything, knowing that he would be hurt if I chose Wi Fi over spending time picking out the gourmet ingredients he would use to prepare meals.

We were too lazy to start a fire at night, using the excuse that the mosquitoes would be awful and who wanted to put on the foul smelling spray to keep them away? Instead, we watched more Three Stooges and ate s’mores made in the microwave. Ah…New Hampshire never fails to entertain us. What a great family weekend!

 

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Try a Sip of Greasy Wine

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My usual low level of frustration has been tested this week. Anyone who has an adult child with disabilities can understand fully the parenting that goes beyond the age of eighteen. Steven, my wildly impulsive, curly haired son, who was born addicted to heroin and cocaine to a mom with severe mental health issues, has a brain that does not function quite right, especially in the responsibility and common sense areas. His highly valued license was suspended last year for failure to pay for a ticket. After many prompts, in January I led him to the Licensing Board to pay the fine. He then had to take this paper to the DMV to get his license reinstated. He went at least eight times, both when I took him and when he ventured into the crowds himself alone. The fact is, he does not have the ability to sit still or wait for more than 10 minutes before getting agitated, so he had been unable to get his license back. The DMV has wonderful accommodations for individuals with physical disabilities, but wouldn’t it be great if there were a quicker line for those with severe attention deficit hyperactivity disorder. The only incentive for Steven to delve back into the commotion of DMV came when a police officer pulled him over and dispensed a ticket for driving without a license. Off he went back there, late in the day, to get his license. (He was quite excited that he only had to wait 30 minutes, but because the facility was closing shortly, the workers were all working at warp speed to be able to get out of work on time.)   The most frustrating news came in the mail today; a notice that his license is suspended again because he did not pay the most recent ticket…

My son, Angel, seems to be a very good driver, although he is quite fussy about needing to have his car in perfect working and cosmetic shape. Two years ago, he had borrowed my car and, when stopped at a red light, was hit so hard from the back that he was accordianed right into the car in front of him. His injuries were mostly mental, with our insurance having to pay for the damage to the car in front of him, (is THAT fair?) along with the newly instilled fear that he could be killed at any time. My injury was that the insurance only paid for a fraction of what we had paid for this older car, certainly not enough to purchase a reliable car again. It was so frustrating trying to make the best purchase for a minimal amount of money!

About a year later, when he again borrowed my elderly car, the engine literally blew up on him. Again, not his fault. Again, insurance paid a fraction of what we had paid for the car. We searched and searched and found a very old, one owner who only drove it to the church, mint condition car with all of the bells and whistles. (Heated seats! Sunroof! Stereo surround sound!) It was a miracle to be able to purchase such an awesome car for the amount of money we had, and I had truly enjoyed driving it. I say “had enjoyed” because this car, also, has become one of Angel’s victims. This week, while turning with a green light, another car ran a red light and “T-boned” him. He does have some injuries, especially emotional due to this most recent brush with death. My injury is the loss of this “perfect for the money” dream car, the third one in three years. My driveway is again empty.

So last night, trying to squelch my frustration, hubby and I had wine with dinner. I’m not a big drinker, but somehow the occasion called for it. Sitting back sipping it daintily, the ice chips tinkled on my lips. Half of the glass was gone before I noticed an odd, greasy taste. Looking at the ice, what looked like blobs of butter clung to them. Butter? How could that have happened? Hubby’s eyes shot open wide and he ran to the freezer. Because we had corn on the cob the night before, he had put the butter in the freezer, a technique to keep the butter from melting while putting it on the cob. Unfortunately, he had left the butter in the ice tray where it sunk to the bottom of the ice and was ground up to make the greasy ice chips in my wine. I sighed; couldn’t make this stuff up!

Best…day…EVER

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I was fortunate to be chosen to do a presentation at the National Foster Parents Conference in Orlando last week. Sponsored by my employer, two hours were spent educating professionals on the importance of recognizing and treating mental health issues in children as early as possible, including facilitating school support services such as Individual Education Plans. In an attempt to try to prevent additional mental health issues for undiagnosed teens, (such as depression, anxiety, suicide ideation, and eating disorders,) support and services for mental health issues need to start as early in childhood as possible.

In order to be able to socialize with other foster teens, I brought my daughter, Marie, with me, as it also coincided with her birthday. My presentation was well received, and Marie’s time went swimmingly; the teens congregated in the pool for volleyball, basketball and movie night. (They would have also played Marco Polo, but deferred to Marie’s deafness.)

The day after the conference was Marie’s birthday so she got to choose which Theme Park she wanted to go to, The Magic Kingdom. The last time I had been there was 20 years ago when we had a tragic visit with Steven for whom the park was a sensory nightmare. Since that time, and with 5 children, we had never been able to afford a trip back and the conference offered us the perfect opportunity.

Despite the fact it was Memorial Day weekend, one of the busiest days, and a bright and sunny 98 degrees, we had an amazingly awesome day. Marie was like a young child, soooooo excited about the sights. With a broad smile on her face all day, and lots of laughing and pointing at things she found especially funny, we had the BEST DAY EVER! With the use of the Fast Pass, (free) we were able to book the attractions so we generally only had a 5 to 10 minute wait. (It was astonishing to see how many people were willing to wait in the “stand by” line of 2 hours.)

Marie took pictures of EVERYTHING, including each and every country represented in “It’s a Small World”. (Being deaf, she wasn’t affected by the constant repetition of this song, which is cute for a few verses, but by the end of the ride can be almost unbearable.)

It was our lucky day because an ASL interpreter was provided for those attractions where listening was important; Country Bear Jamboree, Jungle Cruise, Monster’s Inc Comedy Show and so forth, making the attractions much more “attractive” to Marie.

In addition to the rides, Marie was super excited to see the Disney characters all over the park; Mickey and Minnie, Goofy, Cinderella and so forth. (She has pictures of each and every one of them.) She wanted to get pictures of the characters from The Incredibles, but they were leading dances in a dance area and people walking into the crowd to take pictures were not allowed. I told her she had to dance her way in, which she scoffed at. However, with the beats of the song flashed in bright lights all around, and desperate to take their pictures, her body started moving to the tune and she danced her way toward them. She soon was able to snap many “incredible” pictures of the characters as they interacted with her. She was so happy that when the dance ended, her body kept dancing, and danced all the way down Main Street.

Nothing was more amazing to her than the nighttime electric parade. It was comical to see her reaction to the brightly lit floats boarded by all of the Disney characters. As the characters waved into the crowd, Marie enthusiastically waved back, as though they were waving directly at her. “Wow! Look at THAT!” she kept signing to me, giggling.

Fireworks topped off the evening. Although Marie has seen fireworks before, none were as spectacular as when seen over the spires of Cinderella’s castle. Splashes and configurations of color decorated the sky. Even Marie went “ooooh! ahhhhh!” along with the crowd, and clapped heartily when they were finished.

On the ride back to the hotel, Marie gave me the biggest hug and kiss. “I am so lucky to have you for my mom. That was the best day of my life. Thank you for adopting me!” she signed. Yes, definitely the best day EVER!

 

The Original Tiny House

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When our children were young, it was evident that we could not take Steven, with his autistic tendencies and severe sensory integration issues, on vacations to touristy hotels in unfamiliar areas. It only took us one trip to New Hampshire when he was a toddler to learn that his disability might be a hindrance for family fun and relaxation.

Never one to back down from a lifetime of vacations, hubby and I went up to NH a few weeks later to search for a home away from home in which Steven could be comfortable. We purchased a small cabin, one which would qualify to be a tiny house on Tiny House Hunters. It is cleverly designed, having 2 bedrooms. The “master” bedroom consists of a double bed inside 4 walls where one has to open the door outwards to crawl onto the bed. The second bedroom had 3 fashionable twin beds in bunked style, again accessed in the doorway. There is a tiny ladder to reach the 2nd and 3rd bunks. The tiny kitchen doesn’t matter because we usually grilled our food, and the tiny bathroom may have a bathtub in which I can’t sit up, but it is better than no bath at all.

This cabin has served our family well throughout the years with swimming, canoeing, fishing, frog catching, game playing and lots of family fun. It has never been as valuable as it has the past few years when hubby and I try to go up for monthly respite weekends. Life is so hectic and busy and often problematic having children with difficult issues that we literally count the days until we can once again relax in the woods; no cable tv, no wi fi, no telephone coverage, completely cut off from the outside world.

So it was that I relaxed this past weekend. Sitting on the deck, I sipped my tea and listened to the quietness. Every so often a bird would chirp, different birds, different chirps. I had never been interested in bird watching, but hearing the variety of peeps and tweets piqued my interest.

The snake that lived under the house was sunning itself on a nearby rock. Because Steven was a snake expert, I learned that it was not a dangerous snake, and would eat field mice that might otherwise invade our tiny house. I might prefer a cat, but a snake would do in a pinch.

The silence of the woods reminded me of meditation. My mind was calm and relaxed, free floating and super observant. The trees were all blanketed in dew, and thefat dewdrops hung from each leaf, defying gravity. I further noticed that on the end of each pine tree branch was new growth, poking out gently in a light green extension, a half inch or so long. Somehow I had never thought of trees growing, much less be able to witness it in action. The same flowers that we had planted at home without much success were growing like wild flowers at our retreat; large leaves everywhere, bright, vibrant flowers so tall and large that their stems were bent over with the weight.

It seemed like eternity, no thought of time or place, as I sat there and all my anxiety fell away and contentment filled its space. I was ready! I would “put my big girl panties on” and face the stress of the week ahead with courage, knowing that in another 29 days I could return to this place of peace.

 

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If you would like to read more about our family adventures, please purchase my book The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

Termites Aren’t so Bad

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My oldest son, Francis, was born “legally blind”. His visual acuity stabilized at 20/400. (In layman’s terms, what a fully sighted person could see 400 feet away, Francis could only see blurrily at 20 feet.) He used his hearing so well that it was easy to forget that he had impaired vision, but every now and then something humorous would happen to remind us!

One Friday night when he was about three years old, he entered the living room as my friend and I quietly sat amongst the pillows on the couch, munching away on buttered popcorn, and watching “Dallas” on television, (our ridiculously favorite TV show at the time.) He toddled toward where we sat and without hesitation climbed onto my friend’s lap.

“Why, HELLO there!” she exclaimed excitedly, since Francis had previously been very shy with her. He looked startled and then began to cry hysterically. He thought that he had crawled onto my lap! He could see well enough to distinguish that there were 2 figures on the couch, but was unable to focus on the differences of our faces. From that moment on, when he entered a room, he would say “Hi, mom!” and I would respond, “Hi, sweetie!” so he could tell from afar which figure I was. At the age of three he had already learned to make accommodations for his vision loss.

He made similar accommodations when he started. He loved going and had many playmates but seemed to develop a deep friendship with a little boy named Eddy, whom I had not yet met because his mom dropped him off at a later time. Francis would come home and tell me that he and Eddy played with blocks or outside in the playground or cleaned the hamster cage together. I was not only excited that he was actually telling me about his day at “school” but relieved that he was able to socialize and make friends.

One morning my lazy body did not want to get out of the comfy bed on time, so he was driven to school much later than usual. I accompanied him into the building and saw the entire class sitting on the floor listening to their teacher read a book. At first glance, the sea of toddlers looked like a blur of Caucasian, light haired children. Francis scanned the room with his limited vision, spotted Eddy, and walked over to sit down next to the only African-American child in the class. Francis was one smart kid…for his best friend he chose the classmate who was easiest to pick out!

Francis had a wonderful, normal nursery school experience, with one notable exception. The school invited an exterminator as a guest speaker who regaled the class about the abundance and peril of termites munching on the wood of houses. Francis came home terrified at the possibility of having them in our basement. I had never seen him so anxiety ridden and he developed problems falling asleep and nightmares. After about a week of this, I finally asked, “WHY are you so afraid of such tiny bugs?” He burst into fearful, explosive tears. “TINY????” he replied. “THEY ARE HUGE!”

Driving through Providence, RI, Francis had previously seen the only termite of his young life, the famous “Big Blue Bug” atop a building on Route 95, which is 928 times the size of a regular termite. No wonder he was so petrified! His understanding was that termites that large roamed throughout his basement and were eating his house! After I stopped laughing, it was explained to him that the Big Blue Bug by the side of the road was a joke and that termites are tiny. Then his dad and I took him downstairs, searched and confirmed that our house was, in fact, termite free. Happy dreams were his again.

 

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If you want to read about Francis’ hugely successful life, including skiing, captaining a sailboat, obtaining a Ph.D. from Cambridge University, and eventual career as a high level manager at a famous Silicon Valley computer company, please purchase my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

She LOVES me! She really LOVES me! (not…)

Anyone who is raising a child with reactive attachment disorder knows that love and caring is not always reciprocated. In fact, often the children are so hostile that we wonder what we are doing wrong and what have we gotten ourselves into? Raising Marie has been like that. Coming to us from living with a mom who allowed unspeakable abuse, Marie was not ready to love anyone. Not letting me touch her, in fact, shoving me away or hitting me if I tried, it took six months for me to reason with her that I needed to have a way to show her that I loved her. She graciously allowed us to fist bump. Our fists met with a minimal amount of touching as I signed “I love you” in American Sign Language with the other hand. As a mom, I desperately needed to be able to share my love with her, whether she accepted it or not.

Through the years, she allowed me to hug her. I would put all of my love forth in that hug, deep, sincere, emotional… Whether she actually got any of that through osmosis, or whether she just tolerated my hug, I never knew. But I felt better doing something to demonstrate my love.

When she was about 14 years old, we were at a carnival and she spotted a photo booth. She had always been fascinated with these contraptions, and she grabbed me by the hand and pulled me over to it, sticking her other hand out for the money to put in it. As we sat inside the booth and the camera clicked, a miraculous thing happened…she turned and KISSED me on the cheek. Whether it was her excitement over the photo booth, (and the demonstration photos on the side of people kissing,) or whether she really felt an emotion and wanted to kiss me, I’ll never know. But I choose the latter. In the picture below, you can see the emotion on my face as she does so. After SEVEN long years!

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Well, a couple of years have gone by, and she and I regularly hug and kiss (she offers me her cheek.) Not much had changed in that department. UNTIL I went to the open house at her school. She saw me walking down the corridor while she was standing with a group of friends. She came galloping towards me, wrapped her arms around me with such force that I almost fell over, and gave me a huge kiss ON THE LIPS! Then she proudly told everyone that I was her mom. SHE LOVES ME! SHE REALLY LOVES ME!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

A Whole New Meaning to “Swimming with the Fishes”

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I have been fortunate in that my mother loved to travel and she often took me and one of my kiddos “along for the ride.”  One of my favorite spots was Discovery Cove, part of Sea World in Orlando.  Discovery Cove offered a make believe coral reef with lots of beautiful fish swimming around and huge stingrays that would swim close and touch you. It was so amazing, and was as close to real snorkeling that I had ever been. With a life jacket, snorkel and mask on, Marie, (my 13 year old daughter who is profoundly deaf and has PTSD) and I spent the day swimming around, amazed at the many varieties of tropical fish. It was like being in another world.  In one spot, there was a glass wall and you could swim next to sharks.  Up until this point in my life, this was as close to real snorkeling, and SHARKS, that I would get! It was awesome!

Near the end of the day, Marie’s medication began to wear off as we had stayed later than I anticipated.  She began to get anxious, but she didn’t want to leave.   I told her one more swim around the coral reef and then we’d head back to the hotel.  As had been happening all day, a stingray came up and touched Marie on her leg.  In fact, she had been petting them for most of the day, calling them her “friends”.  For some reason, this touch was different than the rest.  She became frightened and had a full blown panic attack.  She started SCREAMING her high pitched scream and she was signing (in American sign language,) “The fish is going to eat me!” (Why the fish would think she were any tastier later in the day than earlier, I don’t understand.) To get away from the stingray, she climbed onto my back.  I tried to calm her down, but it was difficult to do sign language while trying to swim with a child on your back, and she was screaming so loud her eyes were shut and she couldn’t see what I was saying anyway!  By this time, we were halfway around the coral reef and as far from the shore as you could possibly get.  Marie decided she was not safe enough on my back because her toes were still in the water,  so she climbed up on my shoulders to get completely out of the water!  Unfortunately, that meant I’d have to sink UNDER the water for her to stay OUT of it.  I started screaming along with her.  (Albeit alternating choking with water and screaming.) She was truly frightened the fish was going to eat her and I was truly frightened I was going to drowned.

They have several life guards there and our dilemma was not hard to miss, with Marie standing upright and me bobbing in and out of the water choking. Because we were so far out, it took the lifeguards what seemed like an eternity to reach us.  When they got to us, Marie refused to let the lifeguards touch her, screaming and kicking at them.  (Good old Post Traumatic Stress Disorder shows up when you least expect it!)  What three of the lifeguards ended up doing was supporting me in the water while she continued to stand on my shoulders and scream. Of course there was a huge crowd of onlookers on the beach, some taking photos.  (We really were quite a sight!) Once on the beach both Marie and I collapsed into the sand.  The life guards asked if we needed to go to the hospital, but I was still breathing and Marie had stopped screaming and was crying quietly, so that meant we had both survived unscathed.  Well, maybe not totally unscathed, I’ve lost my wanderlust  for snorkeling!

 

If you are interested in reading more, I have written an e-book entitled The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane  available at I-Books, Amazon, and Barnes and Noble.

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