Archive for the ‘life’ Category

The Hospital Vacation

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An unexpected vacation came my way last week via a trip to the local emergency room when I experienced severe pain radiating from my shoulder down to the tips of my puffy fingers. The ER receptionist immediately had me whisked away in a wheelchair for a cardiac work-up, (not a recommended way to beat the line, but it was nice not have to wait!) The orderly swished me by all the cubicles so fast I did not have time to be nosy and glance in to see what everyone else’s commotion was about. The thing about the ER is that is houses REAL people with all their unglamorous appeal. No high heels or make-up. Unruly hair which obviously had not seen a comb in some time. Morning crustiness still in the eyes, line of drool down the side of the mouth. Bra-less, face contorted into an ugly grimace of pain, posture slumped over..and that was just ME, I could only imagine what everyone else looked like!

Once admitted to the cardiac ward, the nurses got right to work hooking me up to all kinds of do dads and thing a ma jigs. Their cheerfulness belied the seriousness of their work. I was comforted not only by their reassurance but also by the toasty, warm blanket that soon enveloped my body. Once the morphine took away the pain, I was a happy camper and willing test participant. Wheee! Off with another orderly for another test. Lay still like a sardine in a tiny metal tube while it sounded like the room was crashing all around me? Piece of cake. Electrodes super glued to my breasts? No problem, I wasn’t using them anyway. X-rays this way and that? Show me how to pose. (Those 5 modeling classes I took as a gawky teen finally came in handy!) Then there was the added adventure of being maneuvered, gurney and all, back to my room, bumping in and out of the elevators, around other patients and gurneys, and trying to fit through slim doorways all the while piloted by friendly orderlies. It was reminiscent of trying to scooter through Disney World with my daughter last May, and I tried to hide my silly smile lest the orderly think I was not in my right mind. (And, yes, the morphine was still working.)

Once back in my room, taking my blood pressure and poking and prodding for blood tests and glucose monitoring became commonplace at any time of the day or night. What an amazing staff of nurses and CNAs whose job it was to wake me only to poke me with a needle to capture my blood, and to do it all pleasantly when I felt less than pleasant for them having to do it. Although I tried not to be too crabby at them, my roommates were often less inhibited and grumbling was commonplace. Still, the staff smiled and carried on with quiet reassurance, seemingly immune to the barrage of complaints.

The most exciting thing for me was “room service”. Yes, “room service”, just like in a fancy hotel! Armed with an actual menu, I called down to the kitchen and my custom order would find its way to my bedside table. How amazing! Being a person obsessed with food, this was the highlight of my vacation. (Well, that and not being home to have to clean my house.) I carefully selected each meal; scrumptious omelet with tomatoes and onions, muffins and fruit, macaroni and cheese and broccoli with custard pudding, pot roast with salad with cake for dessert! Yum! It all sounded as good as I am sure it tasted, IF I were ever able to eat it when it arrived! Unfortunately, my food delights were delivered while I was away for one test or another. Imagine…meals being interrupted by medical procedures! What kind of vacation is that? The nurses offered to heat it up for me or to get me something else, but this seemed to be a silly request with all the important medical stuff that they had to do. When they took their jobs, I am sure that “waitress” was not in the job description.

Fortunately, it was the kind of vacation where the primary focus was my health; where what was going on INSIDE my body was more important that what I put INTO my body. With the utmost professionalism, the staff were unwaveringly pleasant, reassuring and kind. My medical care was top notch, and I was soon sent on my way home with expert instructions for the next chapter in my medical care.

Nothing could beat my hospital “vacation”. Next time I really want something as frivolous as a hot meal, I will go to a restaurant!The

Crosswalks, people, CROSSWALKS!

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My son, who lives and works in Silicon Valley, delights us in discussing the progress of Google’s “cars that drive themselves”, which can regularly be seen toting along the streets in his neighborhood. Being blind, he has a special interest in this new technology, (although UBER has provided a suitable stop gap in the meantime.) A report on the self-driving cars shows that in the history of trials, there have been 4 accidents; 3 were someone else’s fault and 1 was the car’s fault, but technically the car was right.  Because it had been programmed with the rules of the road, the car was following the law, but it was a law Californians routinely break and of which the programmed car had no knowledge. Currently, the Googlers are working on programming the car for these types of idiosyncrasies.

My car, which routinely FOLLOWS rules, almost caused an accident this morning when fellow Rhode Island drivers followed their own rule idiosyncrasies; IGNORING CROSSWALKS. Somehow it appears that most drivers think their CARS have the right of way and the white stripes on the ground are decorative, not meaningful.

A lovely, older woman, clinging to hold her coat shut against the frigid air, gray hair flailing about in the wind, was waiting on the curb in front of a crosswalk.  Drawn in at first by the sight of her, then by the crosswalk that loomed in front of her, I stopped my car. The car behind be, which had been tailgating, came within a hair’s breadth of hitting me, evidenced by the car’s screech and swerve up onto the curb, sounding it’s horn so loud I thought it was foggy and I was a boat in the bay. Once that car had settled with one wheel on the sidewalk, the startled woman boldly took a few tentative steps in front of my car to begin her crossing adventure. She stood in front of my car while 1,2,3,4,5,6,7,8 cars quickly passed by without pausing at all and the fog horn sounded again behind me. Finally, the 9th car stopped after he had correctly slowed down seeing the crosswalk.  Looking over, I saw the driver smile and motion for the petrified woman to continue to cross.  She tentatively shuffled her little elderly feet in front of him. Coming from the other direction, and with advance observation of what was happening in front of them, the cars in the opposing 2 lanes stopped to allow her to successfully complete her daring adventure. She shuffled more quickly, head down, hair flying, coat flinging open. When she triumphantly stepped onto the sidewalk on the other side, my heart, which had sunk into my stomach, slowly rose to its normal position. On my way I went, encouraged on by the sound of the fog horn once again.

The near miss accident intrigued me.  Have I gone the way of the Google self-driving car which follows the law but can still cause an accident?  Or was everyone else who didn’t stop following the way of the recalculated Google self-driving car which make accommodations for laws which are routinely broken? Either way, my assumption was the driver-less car would have been more observant on obeying a law which allows a frail, grandmotherly type woman to live a few years longer by allowing her to cross the street safely.

 

 

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

I am A Faux Kind of Woman

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Without the sophistication to realize the value of “real,” I am a faux kind of woman. It started when I was in my teens and I was given a beautiful little necklace of a dove carrying an olive branch with a diamond at the tip of the branch. The tiny stone fell out and it was replaced with a beautiful blue stone, (cheap glass, not a sapphire or anything “real”). I thought the blue matched the jeans that were my standard wardrobe at the time, and that necklace became one of my most cherished possessions.

When getting engaged and faced with the fact that getting a diamond was a tradition, my thoughtful hubby to be picked out the perfect engagement ring for me – a tiny diamond in the middle with navy sapphires forming the shape of a flower around it. It was awesome, and I still wear it today, not desiring a two- or three-carat diamond when my ring is so much more colorful and personal.

One of my first years married, my in-laws gifted me with a white fur coat for Christmas. I loved that coat, and wore it for every special occasion. It was exquisite; warm and toasty. I would not have preferred to have a “real” fur (unless the furriers hunkered down on the ice floes waiting for the polar bears to die a natural death and then made a coat out of them). Another favorite coat hung in my closet, and I received many compliments on it. It took me a while to realize that everyone thought it was leather and not the $24.99 jacket I had purchased on sale at JC Penney’s. It managed to fit me elegantly.

This life changing realization actually came to me the other day while getting out of the shower when I noticed our bathroom counter. As an avid watcher of “House Hunters,” the strict demands of the house buyers often fascinated me; people would be knowledgeable about what material was the most stylish and which material was mandated, such as marble countertops.

Looking at the cheap plastic countertop surrounding our bathroom sink, it looked like marble to me. The “tile” in the bathroom floor was just vinyl, and the white cupboard looked like wood (but was just particle board with the “wood” part uncurling in a few areas). The bright, cheerful flower arrangement on the back of the toilet was made of artificial flowers, and a plastic ivy plant curled around the circumference of the mirror. My whole bathroom was faux, and I was suddenly thankful that at least the toilet was real!

“Real” for me are the things that meet my needs. I am not envious of people with huge diamonds and marble countertops, but I admire their beautiful choices that are right for them. “To each his own,” my mom used to say. I may not always be perfect, but I’m always me, the “real” me!

Broken Heater, Broken Gloves

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I was fortunate to purchase a very warm, name brand coat from an expensive store eons ago.  When the weather seemed to turn wintry last week, I donned this comfy, warm coat, which would have kept me warm even if a trip to the Arctic was in my future. Pulling on my gloves, I made my way to the car to head to work.

Providing reassurance for the winter ahead, the car boldly turned right over, no fluttering or stalling in the cold.  However, even when the temperature gauge showed it was hot enough for heat, no heat flowed to warm my feet.  What a horrible time for the heater to break!  In addition to frozen toes, my fingers had also frozen and a pain set in that rivaled none other. Where did I buy those gloves, at the Dollar Store?  They obviously were broken because my hands weren’t warmed at all.

Cursing my bad luck, it took me a few minutes to come to my senses.  The bold thermometer that hung on our maple tree signaled that the temperature outside was 12 degrees! With the heater blowing its best train imitation: “I think I can…I think I can”, the car was suitably livable within 10 minutes and my hands had begun to unfreeze. In this kind of weather, I need to buy gloves that would also keep me warm in the Arctic in the future.

 

To read more about Linda’s cold and warm adventures, read her book The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane, available at Amazon and Barnes and Noble.

 

A Joyful Heart

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One of my biggest faults is that I am apolitical. I tend to do my one little thing raising my kiddos, and consider that my contribution to the world. Whom I admire most are those who are activists, those who stand up for what they believe in and work diligently to make it happen, even if they have to work year after year after year. And so my hat is off to those who have worked so sincerely to legalize gay marriage. Congratulations! WHAT an accomplishment!

I assume that everyone knows someone who is gay. People who are gay are, and I say this jokingly, “just like us.” I understand that there are some religions who firmly believe that being gay is not appropriate. I admire truly religious people who do what they think is right, even if their position is different than mine. But I feel comfortable with my belief is that God is a loving Father/Mother; would that God not love all of his/her children equally regardless of class, race, gender or sexual orientation? And if one of Jesus’ disciples was gay, would He not have taught him, loved him and treated him no differently than the others?

I do understand Biblical references against people who are gay, but was the Bible not written within the times in which they lived? My opinion is that people who are gay should be given the same consideration as why we justify that slaves are no longer allowed and that women are no longer subservient, even though it is written so in the Bible.

Oh, dear…here I go being political. For this one little time. In celebration of the legal acceptance of all of God’s children. Thank you to those of you who worked so hard to make this happen!

Mothers, Help Your Sons Grow Up to be Fathers…

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My oldest son, Francis, grew up amongst a caravan of foster brothers and sisters. Specializing in newborns and infants who had been affected by prenatal drug exposure and addiction, our family was usually comprised of my husband and myself, Francis, his sister, Dinora, who had been adopted from Guatemala, and one or two foster babies. Despite the fact that Francis is severely visually impaired, he played an active role in child care, frequently holding a little one, feeding a bottle and changing diapers. When going to the mall, he and his sister would proudly push the double stroller. (With the 2 of them, he could be a pusher without having to see where he was going…) Throughout his childhood, sixteen foster babies lived with us, and caring for them was just a fact of life.

Francis is now an adult with a Ph. D. from Cambridge, a well paying dream job, a wonderful wife and a cozy home complete with a grill for grilling steaks and a lawn to mow. And, as of three weeks ago, a newborn baby. My week spent with his little family renewed my faith in the power of what is learned in childhood. Without even knowing it, I had trained Francis how to be a good father! He bundles his little girl up in a baby blanket, like I had bundled up those babies who were going through withdrawal. Newborns like being in a tidy bundle because they arrive with strong startle reflexes and without much control of their arms and legs. By pulling her arms and legs in close and securely wrapping a blanket around her little body, baby India can feel safe and secure. When she is awake and alert, Francis rocks her and sings songs to her, songs that he heard me sing so many years ago: “Itsy Bitsy Spider”, “Hush Little Baby,” and “The Wheels on the Bus Go Round and Round”. Even though she couldn’t possibly know the songs, the sound of his voice quiets her, and these songs are easy to sing. When he is expertly changing her diaper, he plays “This Little Piggy” with her toes, gently pulling her feet to his mouth to kiss. He exaggerates the “wee wee wee home” by tracing his finger from her toes to her chin, tickling her slightly before kissing her forehead. And while she sits in his arms on the couch, ready for bed, he reads her books with very large print; “Goodnight Moon”, and “Five Little Monkeys Jumping on the Bed”.

On the evening before I left to fly home, he looked over at me and thanked me for giving him the opportunity to practice on all those babies years ago. All of his friends are having babies now, he said, and they are all in a tizzy. Because of the practice HE had, he is a confident parent and not at all nervous with India. I realized that by being a foster parent to infants, I was not only caring for little ones, but also nurturing parenting skills in my oldest sons, skills that will ensure he will be an awesome father!

I have repeated this post from last year. His adorable baby is now a year old, and his father’s day skills have continued to flourish!

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If you are interested in reading other stories about Francis, please purchase my book on Amazon.

Dad and Daughter shared Ice Cream

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My heart has been very heavy lately, which is a feeling that I am very unused to. The fact is, as my children age, some into young adulthood, their problems are more real life problems, not just a tantrum in the grocery store. 2 of my younger children, with as many good traits and skills that they do have, do not having the capacity to be fully self-sufficient as adults, including incapacity to maintain a paying job. Yes, SSI is a possibility when they are adults, but even that provides only poverty level income. They are my family and my financial responsibility, which necessitates looking at the ability of our extremely diminishing finances to care for them during their lifetimes.

Although hubby and I both work, often 6 days a week, and are considered solidly middle class, our bank account does not reflect this. Every time Marie has a PTSD episode, (every 6 weeks to 2 months,) the ambulance bill exceeds $1000, money that is not reimbursable. (She requires additional emergency personnel because restraining her safely requires at least six, strong professional emergency adults.) We have funded one college tuition, and are currently funding another at expensive colleges to best meet the special needs of my children, (for which they received no financial assistance because we are, after all, “middle class”…) In order to attempt to give them the best education to be able to succeed despite their disabilities, we subsequently have taken a large second mortgage on our home. And then a third… Hubby and I live “paycheck to paycheck”, as I am sure many parents of children with disabilities live.

But I digress…what I was saddest about is that Steven now has partial custody of a beautiful, vivacious daughter who is one year old. (Note to parents: make sure you talk OFTEN about birth control to your teenagers, especially your teenagers with disabilities…) He, and we, do not have any extra money to support her in the manner to which we are accustomed to supporting our children. With his Asperger’s (and extremely capable skills in caring for animals,) Steven is a doting dad. Not working, he has tons of time to spend with her and can generally be seen sitting on the floor of the living room playing with her interactively, rocking her for a nap, singing her nursery rhymes, or taking her in the large, fenced in back yard to swing and explore and play to her heart’s content. What he does not have is money to pay for her needs, and this breaks my heart. This morning, he asked if I have any “change” and if he can go look in the car if there are any quarters that have fallen behind the seat. At last count, he’d managed to scrape up $2.19.

Driving home today, I was stopped by the light near our house. On the corner is an ice cream stand where our family often used to take a walk for ice cream. The kiddos would giggle over whether they would get the chocolate jimmies or colored ones, (the sprinkles were free!) Today, I noticed the young man sitting on the picnic bench. Across from him was a stroller with a young girl in it. Both had tan skin and wild, curly black hair. Holding a small container of ice cream in his hand, he was using a spoon to feed her, laughing and playing the “airplane” game to put the ice cream in her mouth. She was giggling also, throwing her arms in the air as if to say “wheeeeeee!” after every spoonful. Steven exhibited pure happiness, that special kind of happiness a parent has for their child. They were joyful and the fact that she wore cheap diapers and wore hand me downs that didn’t always fit did not matter at all. Suddenly I felt a little bit better about not have any money, because Steven taught me today that money does not makes life purposeful, but it is love, which is free. Life is good!

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The Apple Tree: Raising 5 Kids With Disabilities and Remaining Sane
Authored by Linda Petersen
The link to the book:
https://www.createspace.com/5321986?ref=1147694&utm_id=6026

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