Archive for the ‘special needs’ Category

With messy hair and an ear to ear grin

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One of my favorite cartoons as a child was The Jetsons. The portrayal of the future was colorful and amazing; cars flew around in the air and people chatted to each other on videophones.  Contemplating the “picture” phone, I shuddered with dismay.  I would NEVER want to talk to anyone on such a device, picturing myself answering with my hair askew, clothes rumpled and dirty dishes in the sink in the background.  If and when it was invented I would never use it, thank you anyway.  My regular phone would do just fine!

Who could have imagined then that one day we would chat on videophones as a normal part of life.  The first time it became significant to me was when my daughter who is deaf went away to school. Using a video monitor, we could chat in American Sign Language, which is SUCH a visual language.  Not only are the hand gestures important, but this special language includes facial and body gestures. For instance, she could sign “school okay”, with a facial grimace and thumbs down sign or with a smile that indicated “okay” was synonymous with “good”. Not to mention the fact that ASL is a visual language that cannot be conducted on a regular phone, and regular mom/daughter conversations would have been impossible. With modern technology, she can call anyone anywhere and an interpreter on her screen would interpret her words for the hearing person she called and sign back what the other person said.  Several times she has ordered pizza from Dominoes in this way, pleased with herself for her independence. She has had the great fortune of using this method for telephone communication during her lifetime.  How much more difficult would it have been had she lived 10, 20 years ago.

The other wonderful advantage of video chatting is being able to be a grandmother to my California son’s 2-year-old daughter.  We have been visiting with her by phone since she was about 6 months old.  I’d sing nursery rhymes and Papa would pretend to tickle her belly.  We were there as she developed, rejoicing in each new little trick she’d learn. When we see them twice a year at Christmas and for her birthday in May, Lailya readily runs into our arms for hugs, sticking her belly out so Papa can tickle it and sitting on my lap so the 3 Little Pigs story can be told in person. After all, she KNEW us because we graced her living room for games and songs every Sunday evening.

With my son being so far away, these visits were also parental support for him. He was very proud to be able to share his daughter with us, beaming with happiness when we told him what a great job he was doing as a dad and what an amazing daughter he has. He would ask our opinion on toilet training and how to get her to eat more vegetables. We were a family and chatting with him made the distance between us immaterial.

Now when I think back to the Jetsons and my aversion to using a video phone because my hair might be messy, I laugh.  Yes, this past Sunday, while singing, talking and laughing with Lailya and Francis, my hair WAS a mess.  I also had on a bathrobe because it was almost time for bed, (due to the 3-hour time difference between us.) With an ear to ear grin, enjoying our granddaughter’s antics, suddenly what we looked like wasn’t important at all.

What to Learn from Baby Birds

 

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I drive slowly down my street to get home, which includes an area of trees, wild grasses and the occasional soda can or lost piece of paper. It is usually a non-committal drive, with my head swirling with ideas and concerns, not paying attention to the road at all. Yesterday was different. In between the trees was a mother bird, brown breast with brown-flecked wings. 6 inches in front of her was her tiny twin, obviously her offspring. The little one was walking away from her, turning to look back every second or so. Her beak seemed to say, “Go on, little one,” as the tiny bird inched farther along from her mom. It was such a sweet situation to observe!

Of course, all parents have gone through the same thing, pushing our little ones out of the nest. It is an 18, (or 19 or 20) year push. Lessons start early. An infant learns that he can depend on us to meet his needs, and trust that we are there for him. As a toddler develops, he tries to stretch the boundaries, asserting his own will, sometimes throwing a tantrum. As parents, we teach him how to handle his frustration differently, diverting tantrums into learning experiences. We give him lots of choices so that he feels in control, and lots of activities that he can do independently, giving him that sense of self he so desperately needs to develop. When it is time for school, we send them off like mother birds, nudging them along towards independence. We smile, wave, and hide the tears as he goes off to school for the first time, making it a great independent experiment!

By our own modeling, we teach him to be considerate of others, to share, to accept and to encourage. It is by demonstrating the “do unto others” concept that he learns not only his own value, but the value of all human life.

My oldest son, Francis, a manager for a large tech company, goes out of his way to hire individuals with disabilities. He often remarks it is easy to overlook their capabilities when presented with their physical impairments. As a teen, he used to build houses for Habitat for Humanity and teach Sunday School. As a teen, my daughter, Dinora, raised money for the development of a soup kitchen in her native Guatemala, even visiting and working there herself when she graduated from college. Even now, as a successful make-up artist, she regularly sends them money. When younger, Steven, with the weight of all of his own problems, looked kindly upon others, volunteering to help people carry groceries or donating his precious change to someone in need. (I will never forget traveling the subway in Boston and he kept asking me for change to give to all of the musicians and beggars down in the tunnels. He was devastated when I ran out of money.) Angel, who currently works 2 jobs to pay for his car, continues to make time to work at a camp for children who are blind where he has volunteered since he was 14. And Marie, who has so many issues herself, takes pride in leading a young schoolmate with Down Syndrom to get his daily medication from the nurse. She is gentle and kind and considerate of his special needs.

As that mother bird nudged her birdling towards independence, we need to nudge our own children to care about others. The future of Peace depends upon it.

 

The Original Tiny House

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When our children were young, it was evident that we could not take Steven, with his autistic tendencies and severe sensory integration issues, on vacations to touristy hotels in unfamiliar areas. It only took us one trip to New Hampshire when he was a toddler to learn that his disability might be a hindrance for family fun and relaxation.

Never one to back down from a lifetime of vacations, hubby and I went up to NH a few weeks later to search for a home away from home in which Steven could be comfortable. We purchased a small cabin, one which would qualify to be a tiny house on Tiny House Hunters. It is cleverly designed, having 2 bedrooms. The “master” bedroom consists of a double bed inside 4 walls where one has to open the door outwards to crawl onto the bed. The second bedroom had 3 fashionable twin beds in bunked style, again accessed in the doorway. There is a tiny ladder to reach the 2nd and 3rd bunks. The tiny kitchen doesn’t matter because we usually grilled our food, and the tiny bathroom may have a bathtub in which I can’t sit up, but it is better than no bath at all.

This cabin has served our family well throughout the years with swimming, canoeing, fishing, frog catching, game playing and lots of family fun. It has never been as valuable as it has the past few years when hubby and I try to go up for monthly respite weekends. Life is so hectic and busy and often problematic having children with difficult issues that we literally count the days until we can once again relax in the woods; no cable tv, no wi fi, no telephone coverage, completely cut off from the outside world.

So it was that I relaxed this past weekend. Sitting on the deck, I sipped my tea and listened to the quietness. Every so often a bird would chirp, different birds, different chirps. I had never been interested in bird watching, but hearing the variety of peeps and tweets piqued my interest.

The snake that lived under the house was sunning itself on a nearby rock. Because Steven was a snake expert, I learned that it was not a dangerous snake, and would eat field mice that might otherwise invade our tiny house. I might prefer a cat, but a snake would do in a pinch.

The silence of the woods reminded me of meditation. My mind was calm and relaxed, free floating and super observant. The trees were all blanketed in dew, and thefat dewdrops hung from each leaf, defying gravity. I further noticed that on the end of each pine tree branch was new growth, poking out gently in a light green extension, a half inch or so long. Somehow I had never thought of trees growing, much less be able to witness it in action. The same flowers that we had planted at home without much success were growing like wild flowers at our retreat; large leaves everywhere, bright, vibrant flowers so tall and large that their stems were bent over with the weight.

It seemed like eternity, no thought of time or place, as I sat there and all my anxiety fell away and contentment filled its space. I was ready! I would “put my big girl panties on” and face the stress of the week ahead with courage, knowing that in another 29 days I could return to this place of peace.

 

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If you would like to read more about our family adventures, please purchase my book The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

Presented By a Cousin of Mine (what a great extended family I have!)

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