Posts tagged ‘deaf’

‘Twas Once a Child

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My daughter, Marie, has reached adulthood, having graduated from a residential program that had services for both her deafness and her mental health issues. This is the age of worry for any parent, especially one with so many challenges.

When she came to live with us at the age of seven and we were told she was “just deaf”, we could not have properly prepared ourselves for the roller coaster ride of a life she, and we, would have. She was a wild child, blonde hair askew, eyes angry, mouth so hungry she would hoard food under her mattress. She was very angry she had been removed from her mother, (for doing unspeakable acts which shall remain unspoken.) Despite providing her with a healthy, well cared for childhood, Marie’s disposition had been preformed. She would lie, steal, beg strangers for money, and reject all of our efforts to parent her. A hug and a kiss would throw her into a fury. Discussing our parenting situation and our need to show her love, she reluctantly let us “fist bump” her. Years later she apologized and told us her birth mom made her promise not to hug or kiss us, and that we really wouldn’t be her parents. It took us many years of fist bumps before she would accept a hug, and many years more before she would let us kiss her. She is now a young adult, and freely hugs and kisses us if the mood suits her. She shows genuine affection and appreciation, the highest reward any parent could expect from an original wild child.

Although Marie can be very capable, she has been unable to live in a non-structured setting because of her unstable bouts with Post Traumatic Stress Disorder. For those unfamiliar with this life altering condition, it is experiencing horrific memories so acutely that one becomes “in the moment” of prior abuse, crazed eyes staring back as though at her accusers, ready to defend herself with flailing arms and legs and gnashing teeth. An ambulance ride to the hospital and sedation was the only thing that could bring her out of her experience. It has always been especially tear inducing, (for me,) when at the hospital, with her hand in restraints, she would wake from the sedation, look around, and finger spell (ASL) asking me where she was, having had no memory of the event. Next she would say her throat hurts, (from screaming, no doubt,) and ask for a Popsicle, which she would skillfully eat while still in restraints.

Marie is now formally an adult. A lot of planning has gone into finding an adult home for her, one that would be staffed 24 hours. My calling all possible supported living programs in our state began about a year and a half ago. With the dual diagnosis of deafness and mental illness, no program would accept her. Many of the programs who may have had prior experience in working with her, never even returned my calls.

After working closely with the Department of Developmental Disabilities, whose frustration and efforts equaled mine; they were able to establish a placement for her that has far surpassed our expectations through a program used to dealing with adults with more severe developmental disabilities. They had no prior experience with a young adult with both of Marie’s difficulties, but once they learned there was someone in such need, they stepped right up and took on the challenge.

Marie now lives in a cute, little house on a nice residential street. As described by those on the show “House Hunters”, this one would be described at “Retro”, with bright yellow tile, a front door carved with circles, and a front porch with wrought iron table and chairs. Neighbors bring over cookies and wave to each other on the street. There are three bedrooms in the house, and she is hoping that a housemate will join her soon. She insists that her house buddy like to watch scary movies, (VERY scary movies,) and, most of all, must not be allergic to pets. Marie has a guinea pig that is usually perched on her chest with both of her hands gently stroking the lucky animal, a calming activity that works for both her and Oreo, who is black with a white center, of course.

Marie is thrilled to be able to go shopping for food she likes, not necessarily the food I have cooked for her. She is no longer in school, so work activities will happily replace the classes with which she used to have such frustration. She has directly chosen the things that she would like to do during the day, throwing out suggestions I would have thought unobtainable.

Marie has always loved to ride horses but gets frustrated that when we go, her horse needs to be tethered to another due to her deafness. She recently began an activity at a horse farm that facilitates riding for children with disabilities. For such children, the riding is therapeutic, but the horse walks slowly. Marie’s job is going to be to trot the horses at the end of the day because the horses themselves get bored walking slowly. What better job than that for someone who loves to ride horses?

Marie’s penchant for all animals has earned her a spot working with “disenfranchised” cats and kittens, that is, homeless felines. She will clean the cages, feed them, and then “show them off” like Vanna White highlights the letters on “Wheel of Fortune”. Oreo will be jealous, I’m sure, so Marie will have to wash the cat scent off before she returns home.

At this point in her life, Marie is feeling very good about herself and her care for others. She has signed up for a Meals on Wheels route, and all of those hugs she didn’t give in her early years will undoubtedly be dispensed ten times over among her lunch recipients.

As a mom with a daughter for whom life experiences didn’t start out well, I am so thrilled that in her adult life she will be doing the things she enjoys with people who will support, encourage and appreciate her. What more could any parent ask for?

 

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To read our story raising Marie and her four siblings, please purchase my book, The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane. It is on sale on Amazon and Barnes and Noble. Thank you for your support!

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Time Flies in New Hampshire

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We went to New Hampshire a lot when the children were younger, staying in a tent and sitting around a blazing fire, roasting marshmallows and laughing. I loved poking at the fire, which I favored when traveling with my family. Finding a big “poking stick” was mandatory, a green one so the wood wouldn’t burn too fast.

Francis and Dinora were fine with a tent, but when Steven and another foster baby or two joined our family, we had to move up to renting a small “cabin in the woods”. We had tried tent camping with Steven, who displayed symptoms of ADHD from the moment he started to walk. A campsite was too inviting for him, and we spent the entire time chasing him from among and in the trees. Either that, or he would sit motionless, fascinated at wildlife, watching an ant hill for hours on end.

Our conquests of nature were invigorating. To see Ellis Falls, we had a spirited hike down into the woods to view the magnificent wall of falling water, sunlight brightly sprinkling off the cascade. Hiking back up was just enough to make us “feel the burn”. Even though it was a short distance, to us it simulated a hike up a long mountain, including the sense of euphoria when we reached the apex, (the parking lot with our car.)

The children liked Lower Falls best, an area where the water gushed over large rocks, smooth from the years of abrasion. It was fun to crawl among the rocks, often falling into the river, a cold and a welcome respite from the warm sun. When the children aged, they dared fate by sliding down the natural water slide into a small pool of water at the bottom. Hubby and I would bring a cooler of lunch and sit in webbed lawn chairs on the side, closely watching the antics of the children. Steven especially loved this area, as there were many potential wildlife attractions to keep his attention. One year, we hit it right at pollywog season, and Steven and his net were kept busy all day catching the amazing little squiggles of black, (which were, of course, set free before we left.)

We would often take the children out into the lake in our small motorboat. They would go tubing off the end, as Hubby would drive the boat back and forth forcing the tube to repeatedly cross over the wake. They would fish; catching huge, squirmy, samples of fish, which would be released back into the water. It was so funny if they caught a similar fish, thinking it was the same one, as though the bounty of fish in the water sat by just so that the worm could trick that same fish again. There was a small island where our boat would stop and tie up, allowing the children to enjoy a huge rope swing which would send them flying into the water. Joyous fun would be had by all.

The years have gone by and last weekend Marie came along to NH. Did she want to go out on the boat, go fishing, catch frogs from the nearby pond, or swim in the lake? No. Her choice, as was ours, was to lounge around and watch old DVDs. She and hubby especially like The Three Stooges as their brand of slapstick humor requires no ASL interpretation. I never heard so much laughter as last weekend, including a chuckle or two from myself. Then, having withdrawal from Wi Fi and “talking” to her friends, we drove Marie to Starbucks where she could order a smoothie and use the free Wi Fi while sitting in a comfy chair. As we drove away and left her there to go grocery shopping, I had a strong urge to join her instead of schlepping things around the grocery store. Keeping Hubby in mind, however, I was reluctant to say anything, knowing that he would be hurt if I chose Wi Fi over spending time picking out the gourmet ingredients he would use to prepare meals.

We were too lazy to start a fire at night, using the excuse that the mosquitoes would be awful and who wanted to put on the foul smelling spray to keep them away? Instead, we watched more Three Stooges and ate s’mores made in the microwave. Ah…New Hampshire never fails to entertain us. What a great family weekend!

 

Inconsiderate Moi

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Sometimes people are not thoughtful!  I am embarrassed to say that this category fits me.  Just in the past week, several mishaps have occurred which have demonstrated that my mind is just not aware of my surroundings all the time. Thoughts of life, work, and children, or just daydreams about what else I would love to be doing, (lounging on a beach in Florida, or getting a massage), have interfered with my ability to do 2 things at once.  That is, think while paying full attention to what is going on around me.

One day last week I joyfully went into the bakery to purchase Marie’s graduation cake.  Being thrilled with the way it came out, I felt lighter than air and, with a whiff of happiness, I opened the door to the bakery and let it close behind me, smacking an elderly woman with a huge tray of cookies, almost knocking her and the cookies over. Of course, I apologized immediately, but with the cake in my hand, I couldn’t offer much besides “I’m so sorry.”

Another morning, driving near the junior high school, my line of traffic was stopped so students could cross the street in the crosswalk. There were many students, and I was anxious that I would be late for work. With that single thought rattling in my brain, as soon as the students were safely across the street, my car lunged forward.  As I drove by, the crossing guard, who had not yet fully returned to the sidewalk on the other side or officially let traffic “go”, looked at me with anger and hatred.  Little ole me!  Hated by a crossing guard.  I’m so sorry, it was a mistake!

Then there was the time at the mall that Marie and I had to stop in our tracks so I could focus on what she was signing. There is the joke about a person who can’t walk and talk at the same time. For me it is I can’t walk and “listen”, (i.e. pay attention to interpret her signing) at the same time. This caused much annoyance from those behind us who were walking at the same rate of speed as we were with the purpose of getting somewhere. When we stopped suddenly, the pedestrian flow of traffic stopped, resulting in people bumping into each other, surely NOT a pleasant experience for them. Sorry gals and fellas, didn’t mean to do it. I tried to get Marie to wait to talk until we were somewhere less crowded, but she is a teenager and she has ADHD, so there wasn’t much hope for that.

The worst thing I did was on that rainy day last week when my car was whizzing (speed limit wise) down Warwick Avenue. Being careful to stay in my lane, my front tire hit a puddle and a deluge of water sprung into the air…and landed on a person who was standing at a bus stop, drenching them from head to toe. I was mortified, and too shocked to know what I should have done.  If that person is reading this, I am SOOOOOO sorry!

The only safe solution is for me to stop thinking unless I am safely seated and nothing is expected of me.  At all other times, my eyes will be on the environment, scanning for possible areas of disaster I could cause.

 

Best…day…EVER

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I was fortunate to be chosen to do a presentation at the National Foster Parents Conference in Orlando last week. Sponsored by my employer, two hours were spent educating professionals on the importance of recognizing and treating mental health issues in children as early as possible, including facilitating school support services such as Individual Education Plans. In an attempt to try to prevent additional mental health issues for undiagnosed teens, (such as depression, anxiety, suicide ideation, and eating disorders,) support and services for mental health issues need to start as early in childhood as possible.

In order to be able to socialize with other foster teens, I brought my daughter, Marie, with me, as it also coincided with her birthday. My presentation was well received, and Marie’s time went swimmingly; the teens congregated in the pool for volleyball, basketball and movie night. (They would have also played Marco Polo, but deferred to Marie’s deafness.)

The day after the conference was Marie’s birthday so she got to choose which Theme Park she wanted to go to, The Magic Kingdom. The last time I had been there was 20 years ago when we had a tragic visit with Steven for whom the park was a sensory nightmare. Since that time, and with 5 children, we had never been able to afford a trip back and the conference offered us the perfect opportunity.

Despite the fact it was Memorial Day weekend, one of the busiest days, and a bright and sunny 98 degrees, we had an amazingly awesome day. Marie was like a young child, soooooo excited about the sights. With a broad smile on her face all day, and lots of laughing and pointing at things she found especially funny, we had the BEST DAY EVER! With the use of the Fast Pass, (free) we were able to book the attractions so we generally only had a 5 to 10 minute wait. (It was astonishing to see how many people were willing to wait in the “stand by” line of 2 hours.)

Marie took pictures of EVERYTHING, including each and every country represented in “It’s a Small World”. (Being deaf, she wasn’t affected by the constant repetition of this song, which is cute for a few verses, but by the end of the ride can be almost unbearable.)

It was our lucky day because an ASL interpreter was provided for those attractions where listening was important; Country Bear Jamboree, Jungle Cruise, Monster’s Inc Comedy Show and so forth, making the attractions much more “attractive” to Marie.

In addition to the rides, Marie was super excited to see the Disney characters all over the park; Mickey and Minnie, Goofy, Cinderella and so forth. (She has pictures of each and every one of them.) She wanted to get pictures of the characters from The Incredibles, but they were leading dances in a dance area and people walking into the crowd to take pictures were not allowed. I told her she had to dance her way in, which she scoffed at. However, with the beats of the song flashed in bright lights all around, and desperate to take their pictures, her body started moving to the tune and she danced her way toward them. She soon was able to snap many “incredible” pictures of the characters as they interacted with her. She was so happy that when the dance ended, her body kept dancing, and danced all the way down Main Street.

Nothing was more amazing to her than the nighttime electric parade. It was comical to see her reaction to the brightly lit floats boarded by all of the Disney characters. As the characters waved into the crowd, Marie enthusiastically waved back, as though they were waving directly at her. “Wow! Look at THAT!” she kept signing to me, giggling.

Fireworks topped off the evening. Although Marie has seen fireworks before, none were as spectacular as when seen over the spires of Cinderella’s castle. Splashes and configurations of color decorated the sky. Even Marie went “ooooh! ahhhhh!” along with the crowd, and clapped heartily when they were finished.

On the ride back to the hotel, Marie gave me the biggest hug and kiss. “I am so lucky to have you for my mom. That was the best day of my life. Thank you for adopting me!” she signed. Yes, definitely the best day EVER!

 

Here a Friend, There a Happiness

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My daughter, Marie, was severely abused as a toddler and young child. She came to live with us at the age of 7 after being found wandering the streets barefoot at 2 am carrying her infant brother looking for formula for him. The effects of the abuse were immediately apparent. She couldn’t stand to be touched, and would cower under the table if she felt threatened. She was angry all of the time and refused all attempts at affection. (When she was with us for a few years, she finally allowed me to give her a “fist bump” as a way of showing my love for her, a love she certainly did not reciprocate because she didn’t know what love was.)

Posttraumatic stress episodes were explosive and frequent, and required restraints and hospitalization. She had superhuman strength while in the throws of PTSD, as I am sure the EMTs and firemen who came to transport her to the hospital can attest. She turned into a super kicking, screaming, biting and hitting machine, and it was amazingly frightening to see.   If put in clothe restraints, she would eat through the cloth like a ravenous wolf. The adult restraints were too large and a smaller hole would have to be cut to fit her slim wrists and ankles. She learned to bite the inside of her mouth to spit blood and they tried to put a mask on her, which she immediately sucked into her mouth and gagged on. At the hospital, she would get a shot of Haldol, go into a trance, and wake up questioning what happened. With her hands still restrained and unable to sign regularly, her little fingers would finger spell “Where am I? Why?”

The number of PTSD episodes have subsided to once every 6 months or so. She has learned to love and be loved by her family, and, fortunately, she is making tremendous progress. Marie is going to be 20 years old this month and still attending a specialized school where she can remain until she is 21.

Marie, citing her age that she is an adult, has come more into her own. On her own, she got a tattoo of a dolphin on the inside of her wrist. She loves dolphins since swimming with them at Discovery Cove on her 12th birthday. By choosing that particular tattoo, she reasoned she could look at the dolphin every time she gets upset and it would remind her of a happy time instead of the times she was abused. Like other young adults, she has colored her hair a mixture of blue and blonde, has a lip ring and likes to pick out her own clothes. Her newest adult adventure is finding a girlfriend; recently reconnecting with an amazing girl a few years older than her with whom she attended school many years ago. They have started hanging out and Marie is giddy with excitement. (Marie has never had a real friend of any kind before.)

Yesterday the 3 of us went to Dave and Buster’s at the mall. While Marie LOVES to play the games, sometimes the crowds overwhelm her and she gets anxious, moody and socially unresponsive. Her sweet friend, who does not know the extent of Marie’s early childhood abuse, kept asking her why she was mad at her, which eventually turned into a full blown argument in the car. By the time we got home, her friend was no longer talking to her and said she was never coming to see Marie again. Marie went down and sat on the wall overlooking the lake, her head drooping down. She texted me on her phone, “Help Me”. Joining her on the wall, I noticed she was crying, something I have never seen Marie do. The tears spilled out of her eyes and were running down her cheeks like an ever-flowing fountain. Her mouth was quivering and her sad eyes said it all. I hugged her and the tears turned more torrential. After a while she signed to me “She thinks I’m mad at her and that I have an attitude. I don’t know how to tell her.” Meaning she didn’t know how to tell her about her abuse and that sometimes it still affects the way she acts. She didn’t know how to tell her how much she loved her as a friend, her FIRST friend, and she didn’t want to hurt her, but sometimes she couldn’t control her emotions. She asked me to come with her to talk to her friend to help her explain.

Her friend was annoyed. Marie began about her family history and her friend said that SHE, too, had a mother addicted to drugs and that SHE, too, had been adopted. She said she learned to just “get over it” and why couldn’t Marie? With this criticism, Marie ran from the room and back to the wall by the lake. I explained that Marie had an extremely traumatic childhood, far and above just her mom doing drugs. I explained the hurt, the hospitalizations, and the challenging life she has endured. Her friend’s angry face softened with understanding. As I was talking, a tear slipped down her cheek and she got up and went down to the wall by the lake. When I looked out the window, they were both hugging and laughing.

I pray that Marie’s friend will continue to be her friend and accept her with all of her emotional baggage. It would take an amazing friend to do that, and I have a feeling she IS that amazing!

Little Boy Tadpoles

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Communicating with a daughter who is deaf can be particularly challenging, especially because my signing skills are not at her level I have always said, however, that I have enough signs for her to understand what I am saying.

For instance:
Marie loves camouflage shirts, pants and sweatshirts. One day she asked me why the clothing looked like leaves, and I told her it was made that way so people could hide in trees in the woods to shoot deer or other animals. As expected, her mouth opened wide and the surprise showed in her glinting blue eyes. SHOOT an animal? She would never do that! She thought for a minute and then told me she was going to say the leave shirt is for playing hide and seek in the woods and no one could find her. I tend to think they might be looking for her for a very long time…

Another time I had difficulty explaining things was when we were talking about sex. She wanted to know how women get pregnant. She knows about the mechanics of “sex”, (she was abused for years.) What she couldn’t understand was how the woman got pregnant. So, in my best non-professional way, (and I will skip over the highly graphic part) I told her that the male has tiny tadpoles which he shoots up to meet the females tiny eggs, then the two would get together and a baby would develop. Tiny tadpoles, huh? She looked at me quizzically. Tiny eggs? After a minute or two, she shrugged and accepted my explanation. However, when she was fishing recently in our backyard, she saw some tadpoles. And caught them. To give to a boy who might not have any…

To read about Marie’s traumatic early years with us, please purchase my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane on Amazon.

The Words Every Adoptive Mom Longs to Hear…

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Like most other adoptive parents, I adopted children because I, selfishly, wanted children. (My theory was if I had children to care for, I really didn’t have a lot of extra time to clean the house. I would rather care for a child than mop the floor…) An adoptive parent should never think their child who is adopted is beholden to them. The child didn’t choose to be born into their circumstances, and they certainly didn’t ask to be adopted. And I have had more than my share of emotionally unstable children, (aren’t all teenagers unstable anyway?) and never expected them to be happy about my choice to adopt them, (or at least not to express that feeling.)

But I was wrong. I went to Marie’s award ceremony at school today. Most parents didn’t go, it was during the day and I’m sure it was hard for them to get off work. It was hard for me to get off work, too, and I will have to work on the weekend to make up for it, but I went because I wanted to support Marie, who had been doing phenomenally in school. Marie didn’t know I was coming, and she was sooooooooo excited! She ran over, gave me a big, wet, on the lips kiss, and put her head on my shoulder while she hugged me tightly. She was genuinely happy to see me, (and not just because she knew I would take her out for ice cream after the ceremony.) She dragged me to all of her friends, and announced to them in American Sign Language something that made my heart stop and tears come to my eyes. She said, “This is my mom. She wasn’t my real mom when she adopted me when I was 7 years old, and at first I didn’t like her, but she made me feel safe and she gave me food and clothes. Now I love her very much and she is my real mom because now I have a happy life and I know I will have a happy future. And someday I will have babies and make her a grandmother!” I am her mom, indeed!

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To read about our traumatic early years together, please purchase my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane on Amazon.

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