Posts tagged ‘joy’

‘Twas Once a Child

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My daughter, Marie, has reached adulthood, having graduated from a residential program that had services for both her deafness and her mental health issues. This is the age of worry for any parent, especially one with so many challenges.

When she came to live with us at the age of seven and we were told she was “just deaf”, we could not have properly prepared ourselves for the roller coaster ride of a life she, and we, would have. She was a wild child, blonde hair askew, eyes angry, mouth so hungry she would hoard food under her mattress. She was very angry she had been removed from her mother, (for doing unspeakable acts which shall remain unspoken.) Despite providing her with a healthy, well cared for childhood, Marie’s disposition had been preformed. She would lie, steal, beg strangers for money, and reject all of our efforts to parent her. A hug and a kiss would throw her into a fury. Discussing our parenting situation and our need to show her love, she reluctantly let us “fist bump” her. Years later she apologized and told us her birth mom made her promise not to hug or kiss us, and that we really wouldn’t be her parents. It took us many years of fist bumps before she would accept a hug, and many years more before she would let us kiss her. She is now a young adult, and freely hugs and kisses us if the mood suits her. She shows genuine affection and appreciation, the highest reward any parent could expect from an original wild child.

Although Marie can be very capable, she has been unable to live in a non-structured setting because of her unstable bouts with Post Traumatic Stress Disorder. For those unfamiliar with this life altering condition, it is experiencing horrific memories so acutely that one becomes “in the moment” of prior abuse, crazed eyes staring back as though at her accusers, ready to defend herself with flailing arms and legs and gnashing teeth. An ambulance ride to the hospital and sedation was the only thing that could bring her out of her experience. It has always been especially tear inducing, (for me,) when at the hospital, with her hand in restraints, she would wake from the sedation, look around, and finger spell (ASL) asking me where she was, having had no memory of the event. Next she would say her throat hurts, (from screaming, no doubt,) and ask for a Popsicle, which she would skillfully eat while still in restraints.

Marie is now formally an adult. A lot of planning has gone into finding an adult home for her, one that would be staffed 24 hours. My calling all possible supported living programs in our state began about a year and a half ago. With the dual diagnosis of deafness and mental illness, no program would accept her. Many of the programs who may have had prior experience in working with her, never even returned my calls.

After working closely with the Department of Developmental Disabilities, whose frustration and efforts equaled mine; they were able to establish a placement for her that has far surpassed our expectations through a program used to dealing with adults with more severe developmental disabilities. They had no prior experience with a young adult with both of Marie’s difficulties, but once they learned there was someone in such need, they stepped right up and took on the challenge.

Marie now lives in a cute, little house on a nice residential street. As described by those on the show “House Hunters”, this one would be described at “Retro”, with bright yellow tile, a front door carved with circles, and a front porch with wrought iron table and chairs. Neighbors bring over cookies and wave to each other on the street. There are three bedrooms in the house, and she is hoping that a housemate will join her soon. She insists that her house buddy like to watch scary movies, (VERY scary movies,) and, most of all, must not be allergic to pets. Marie has a guinea pig that is usually perched on her chest with both of her hands gently stroking the lucky animal, a calming activity that works for both her and Oreo, who is black with a white center, of course.

Marie is thrilled to be able to go shopping for food she likes, not necessarily the food I have cooked for her. She is no longer in school, so work activities will happily replace the classes with which she used to have such frustration. She has directly chosen the things that she would like to do during the day, throwing out suggestions I would have thought unobtainable.

Marie has always loved to ride horses but gets frustrated that when we go, her horse needs to be tethered to another due to her deafness. She recently began an activity at a horse farm that facilitates riding for children with disabilities. For such children, the riding is therapeutic, but the horse walks slowly. Marie’s job is going to be to trot the horses at the end of the day because the horses themselves get bored walking slowly. What better job than that for someone who loves to ride horses?

Marie’s penchant for all animals has earned her a spot working with “disenfranchised” cats and kittens, that is, homeless felines. She will clean the cages, feed them, and then “show them off” like Vanna White highlights the letters on “Wheel of Fortune”. Oreo will be jealous, I’m sure, so Marie will have to wash the cat scent off before she returns home.

At this point in her life, Marie is feeling very good about herself and her care for others. She has signed up for a Meals on Wheels route, and all of those hugs she didn’t give in her early years will undoubtedly be dispensed ten times over among her lunch recipients.

As a mom with a daughter for whom life experiences didn’t start out well, I am so thrilled that in her adult life she will be doing the things she enjoys with people who will support, encourage and appreciate her. What more could any parent ask for?

 

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To read our story raising Marie and her four siblings, please purchase my book, The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane. It is on sale on Amazon and Barnes and Noble. Thank you for your support!

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Time Flies in New Hampshire

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We went to New Hampshire a lot when the children were younger, staying in a tent and sitting around a blazing fire, roasting marshmallows and laughing. I loved poking at the fire, which I favored when traveling with my family. Finding a big “poking stick” was mandatory, a green one so the wood wouldn’t burn too fast.

Francis and Dinora were fine with a tent, but when Steven and another foster baby or two joined our family, we had to move up to renting a small “cabin in the woods”. We had tried tent camping with Steven, who displayed symptoms of ADHD from the moment he started to walk. A campsite was too inviting for him, and we spent the entire time chasing him from among and in the trees. Either that, or he would sit motionless, fascinated at wildlife, watching an ant hill for hours on end.

Our conquests of nature were invigorating. To see Ellis Falls, we had a spirited hike down into the woods to view the magnificent wall of falling water, sunlight brightly sprinkling off the cascade. Hiking back up was just enough to make us “feel the burn”. Even though it was a short distance, to us it simulated a hike up a long mountain, including the sense of euphoria when we reached the apex, (the parking lot with our car.)

The children liked Lower Falls best, an area where the water gushed over large rocks, smooth from the years of abrasion. It was fun to crawl among the rocks, often falling into the river, a cold and a welcome respite from the warm sun. When the children aged, they dared fate by sliding down the natural water slide into a small pool of water at the bottom. Hubby and I would bring a cooler of lunch and sit in webbed lawn chairs on the side, closely watching the antics of the children. Steven especially loved this area, as there were many potential wildlife attractions to keep his attention. One year, we hit it right at pollywog season, and Steven and his net were kept busy all day catching the amazing little squiggles of black, (which were, of course, set free before we left.)

We would often take the children out into the lake in our small motorboat. They would go tubing off the end, as Hubby would drive the boat back and forth forcing the tube to repeatedly cross over the wake. They would fish; catching huge, squirmy, samples of fish, which would be released back into the water. It was so funny if they caught a similar fish, thinking it was the same one, as though the bounty of fish in the water sat by just so that the worm could trick that same fish again. There was a small island where our boat would stop and tie up, allowing the children to enjoy a huge rope swing which would send them flying into the water. Joyous fun would be had by all.

The years have gone by and last weekend Marie came along to NH. Did she want to go out on the boat, go fishing, catch frogs from the nearby pond, or swim in the lake? No. Her choice, as was ours, was to lounge around and watch old DVDs. She and hubby especially like The Three Stooges as their brand of slapstick humor requires no ASL interpretation. I never heard so much laughter as last weekend, including a chuckle or two from myself. Then, having withdrawal from Wi Fi and “talking” to her friends, we drove Marie to Starbucks where she could order a smoothie and use the free Wi Fi while sitting in a comfy chair. As we drove away and left her there to go grocery shopping, I had a strong urge to join her instead of schlepping things around the grocery store. Keeping Hubby in mind, however, I was reluctant to say anything, knowing that he would be hurt if I chose Wi Fi over spending time picking out the gourmet ingredients he would use to prepare meals.

We were too lazy to start a fire at night, using the excuse that the mosquitoes would be awful and who wanted to put on the foul smelling spray to keep them away? Instead, we watched more Three Stooges and ate s’mores made in the microwave. Ah…New Hampshire never fails to entertain us. What a great family weekend!

 

Best…day…EVER

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I was fortunate to be chosen to do a presentation at the National Foster Parents Conference in Orlando last week. Sponsored by my employer, two hours were spent educating professionals on the importance of recognizing and treating mental health issues in children as early as possible, including facilitating school support services such as Individual Education Plans. In an attempt to try to prevent additional mental health issues for undiagnosed teens, (such as depression, anxiety, suicide ideation, and eating disorders,) support and services for mental health issues need to start as early in childhood as possible.

In order to be able to socialize with other foster teens, I brought my daughter, Marie, with me, as it also coincided with her birthday. My presentation was well received, and Marie’s time went swimmingly; the teens congregated in the pool for volleyball, basketball and movie night. (They would have also played Marco Polo, but deferred to Marie’s deafness.)

The day after the conference was Marie’s birthday so she got to choose which Theme Park she wanted to go to, The Magic Kingdom. The last time I had been there was 20 years ago when we had a tragic visit with Steven for whom the park was a sensory nightmare. Since that time, and with 5 children, we had never been able to afford a trip back and the conference offered us the perfect opportunity.

Despite the fact it was Memorial Day weekend, one of the busiest days, and a bright and sunny 98 degrees, we had an amazingly awesome day. Marie was like a young child, soooooo excited about the sights. With a broad smile on her face all day, and lots of laughing and pointing at things she found especially funny, we had the BEST DAY EVER! With the use of the Fast Pass, (free) we were able to book the attractions so we generally only had a 5 to 10 minute wait. (It was astonishing to see how many people were willing to wait in the “stand by” line of 2 hours.)

Marie took pictures of EVERYTHING, including each and every country represented in “It’s a Small World”. (Being deaf, she wasn’t affected by the constant repetition of this song, which is cute for a few verses, but by the end of the ride can be almost unbearable.)

It was our lucky day because an ASL interpreter was provided for those attractions where listening was important; Country Bear Jamboree, Jungle Cruise, Monster’s Inc Comedy Show and so forth, making the attractions much more “attractive” to Marie.

In addition to the rides, Marie was super excited to see the Disney characters all over the park; Mickey and Minnie, Goofy, Cinderella and so forth. (She has pictures of each and every one of them.) She wanted to get pictures of the characters from The Incredibles, but they were leading dances in a dance area and people walking into the crowd to take pictures were not allowed. I told her she had to dance her way in, which she scoffed at. However, with the beats of the song flashed in bright lights all around, and desperate to take their pictures, her body started moving to the tune and she danced her way toward them. She soon was able to snap many “incredible” pictures of the characters as they interacted with her. She was so happy that when the dance ended, her body kept dancing, and danced all the way down Main Street.

Nothing was more amazing to her than the nighttime electric parade. It was comical to see her reaction to the brightly lit floats boarded by all of the Disney characters. As the characters waved into the crowd, Marie enthusiastically waved back, as though they were waving directly at her. “Wow! Look at THAT!” she kept signing to me, giggling.

Fireworks topped off the evening. Although Marie has seen fireworks before, none were as spectacular as when seen over the spires of Cinderella’s castle. Splashes and configurations of color decorated the sky. Even Marie went “ooooh! ahhhhh!” along with the crowd, and clapped heartily when they were finished.

On the ride back to the hotel, Marie gave me the biggest hug and kiss. “I am so lucky to have you for my mom. That was the best day of my life. Thank you for adopting me!” she signed. Yes, definitely the best day EVER!

 

I Know Why My Family Had To Travel

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I had always hated driving, which may have something to do with the fact that I traveled cross-country for most of my childhood years. My life lately includes a lot of it, with a granddaughter in Northern Massachusetts and a daughter attending school in Hartford. Surprisingly, I have learned to enjoy it! I find myself bopping away to music, using my right arm as a conductor’s baton, (one, two, three, four; the movements from music class carefully ingrained into me.) Worse yet, one can find me huskily singing along with great enthusiasm.

Taking non-highway routes as my father always did, the variations of scenery are fascinating. Children play on swings, grandmother sitting nearby, and clothes swing on a clothesline; do they use an old wood stove for cooking? Do they have an “icebox” instead of a refrigerator? Have I crossed over into the Twilight Zone? I remember driving through the same scenes as a child.

Many of the houses are memorable. One with natural wood and white shutters has a toddler standing in the window, waving, green curtains framing her. It is only after a few trips that I realize that that same child is always in the same position, waving, but wearing different clothing. It is not a child at all, but a doll that is lovingly cared for and placed in a prominent spot for all to see. Another red shuttered house has a flag waving on the front porch, a decoration to herald in the seasons and special occasions. With St. Patrick’s Day done and over, a Welcome Spring now blows in the wind. Driving, I take stock of such silly things as how much wood is piled in front of the lumber factory. (During the winter, the pile has diminished.) I was excited to drive by the nursery this spring.  During the winter after the holidays, it had withering Christmas Trees and wreaths, and was a  stark and unwelcome place. (The owners were probably enjoying sunny Florida.) Now, it is abloom with colors, flowers blazing in the sunlight, sunflowers winking at me, mums in pots and rose bushes awaiting planting.  Such a joyful place to drive by.

It was only as an adult that I realized that my dad and our family traveled so much because of his severe posttraumatic stress from the war. We criss-crossed the country, driving on the back roads. Driving hypnotized him into peace, keeping the awful memories at bay while experiencing the delightful ones of finding new places and exploring the many geographical areas of the country.

Driving the back roads has become more important to me now. No flash of highway exits and speeding cars, but leisurely driving through the countryside, relaxing my thoughts. Often, when observing the bright blue sky and puffy white clouds, the bright yellow sun will make its way down as a brilliant stream of light, and tears will inexplicably sting my eyes. Pure peace and joy. I have finally been able to fully understand the importance of traveling.

 

 

Please consider purchasing my book, The Apple Tree:  Raising 5 Kids with Disabilities and Remaining Sane.

Thank you for the support!

 

 

 

Luck? Fate? or Something Else?

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I am a Diet Coke fanatic.  (Before people start telling me that it isn’t healthy for me, I have to admit that it is stress relief to take a long, satisfying sip of an ice cold soda. It might not be healthy, but it has kept me alive and perky!) Being very short on money lately, and exhausted from working a long day, visions of Diet Coke floated in the air. While fishing out a one-dollar bill that desperately clung to life in the bottom of my purse, the van automatically found its way to the convenience store where a humongous drink of Diet Coke awaited me. I put my giant cup under the spigot and filled it to the brim, excited at the prospect of getting such a delight for only 89 cents! Looking up, the large soda sign smacked me in the face; this was not an “all sizes pay same price” kind of store, and a large soda was $1.49! My heart skipped a beat and actual tears of disappointment filled my eyes when I realized I didn’t have enough money to pay. At just that point, the store owner, half my age, struck up a conversation. “That’s a mighty big van out there, must be difficult for you to drive,” he said. “I have five kiddos and it fits our whole family,” I answered with my back to him, still contemplating my payment dilemma. “God bless you!” he said, “The drink is on me!” I turned around and smiled excitedly, thanking him. He could not have understood how much that gesture was such a blessing!

The truth is, our family car situation has been difficult lately.  My Acura ceased to function several weeks ago, and my husband’s work van, 17 years old, also died.  We had to resurrect our old, 12 passenger family van, switching a couple of bald tires off with newer tires from his work van.  Driving the rickety monstrosity was a challenge for me. It wobbled terribly, and I had to grip the steering wheel with 2 hands. I complained to hubby who brushed it off as being “old, what did I expect?” I drove it back and forth to work Monday and Tuesday, still cursing the challenging drive.  Tuesday eve, Steven called me frantically. A friend’s car had broken down near the Providence Place Mall, could I come pick them up? Annoyed about having to drive to Providence after working all day, I climbed into the van to begin the arduous task of maneuvering the eyesore onto the highway.  With the van waving back and forth, I had difficulty keeping it in one lane, but finally reached Steven and pulled to the side of the road near him.  His eyes bugged out as he ran to the back of the van. “Your TIRE is almost off!” he shouted, showing me where one lone lug nut, ready to fall off, had been holding it on. Just as he said that, the lug nut fell to the ground, rolled away and the tire fell sideways onto the ground!  I shrieked in horror and felt like vomiting when I realized what that meant; I had been driving it for 3 days with the tire ready to fall off! (It was Steven and his ADHD that changed the tires…I suspect he got distracted somehow and never finished putting that tire on correctly.) I not only had driven it for 3 days, but I managed to drive it ON THE HIGHWAY at a HIGH RATE OF SPEED to get to Steven. How lucky was I that is didn’t fall off while driving where not only I could have been killed, but I could have killed someone else? I shuddered with realization. It seemed like fate! Or luck? Or something else?

The Diet Coke and loose tire incidents may seem unrelated, but to me, both are an affirmation that luck does not come into play.  I like to think it was Divine intervention, a thought both heartwarming and reassuring.  A thought that always makes me smile…and so far has kept me alive!

 

Even the Wrong Way can Turn Out Right

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Even though our winter hasn’t been too bad in our neck of the woods, the lure to see a friend who lives in Florida was strong non-the-less. The day I left to visit her it was 57 degrees in RI, the same temperature it was in Tampa.
My first flight was to leave at a grueling 5:30 am, and I dutifully showed up at the airport at 4:00 am. The need for such an early arrival escaped me, as the airport seemed almost deserted except for the looooooong line of people waiting to check in at Southwest Airlines. Having printed my own boarding pass and with no luggage to check, I made my way to the security line where I was ushered into the ”pre-check” line generally reserved for the elderly and disabled. Miffed to be considered eligible for this line, I was also disappointed to miss the titillating experience of the full body x-ray machine, but keeping my shoes on was a good compromise.
Without much airplane booking experience, I had not realized that my first flight was a commuter flight to Detroit, which seemed to be a ridicules way to get to Florida from New England. The plane was pretty tiny on the outside, and seemed to be even smaller on the inside with a low ceiling and seats two by two on either side of the skinny aisle, through which I had to turn sideways to make it to my seat. Sitting next to a stranger, I had to keep my arms crossed at my chest in order to avoid touching his arm that had commandeered the arm rest. Positioning hardly mattered as, characteristically, I fell asleep as soon as the plane took off, getting nudged awake when we landed. Also characteristically, the next flight was taking off from a gate far, far away. As I watched others heading for their connections, women my age running clumsily, hair flying behind them, carry-on suitcase clunking along, I was grateful for my two hour layover. Slowly making my way along the “moving sidewalks”, it was enjoyable to just stand to the side and window shop the many stores along the concourse without moving a muscle. Who knew that Porsche sold suitcases and pocket books! The Dylan Candy Store looked like one big Hello Kitty ad. And if I wanted to buy golf pants, now would be the time to do so as the PGA Golf store had them for half price.
For the tunnel from one side of the airport to the other, I was pleasantly surprised by an unusual artistic endeavor. The walls of the long tunnel seemed to be made of stained glass with ever changing colors, synchronized to peaceful, beautiful music. As I rode on the walkway, my heart subconsciously rose and fell with the wave of the music, calming me throughout the long trek. This experience rivaled anything that could be found at Disney World or other Floridian tourist attractions. And it was found in Detroit! By the end of the tunnel, my heart was thankful for the amazingly emotional performance, and I was no longer upset that I had taken a commuter flight.

Ah…the Joys of Driving!

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When I was young, there were a few small amusement parks within a short drive. Ones where the “big” roller coaster had one big dip, nothing much else. And a carousel made in the 14th century, (or so it seemed judging by the music and the outdated horses.) My favorite ride was the “turnpike”. I would get into an impressive, albeit cheap imitation, of a real car. It had a real gas pedal and a real brake and a steering wheel that actually steered the car! (It also DIDN’T have a metal rod in the middle of the road to guide the driving, OR a seat belt!) I would proudly drive up and over the hills and around the bends, expertly stopping at the end without hitting the car in front of me. I had illusions of driving a “real” car when I was older.

And so it was with excitement that I agreed to go with Marie to drive a go cart. The same thing, right? Pretend little car. Gas, brake, steering wheel. Nice road to drive on, great memories!

I naively positioned myself down into the go cart, somewhat difficult to do because being limber is not one of my strong points. It took a while to put on the safety harness, which was invented by the same person who invented the Rubik’s cube. No matter what I did, I couldn’t get mine to fit until the embarrassing moment when the attendant helped make my harness larger to accommodate my…um…”assets”, (liabilities?)

Once properly positioned, I waved the thumbs up sign to my daughter who was in the car behind. I couldn’t turn around to see her, of course, being so strapped into the car not a muscle in my body would turn even a smidgen. But I heard Marie screech, letting me know she agreed it was a thumbs up situation.

Being first was amusing, because it took a while for me to push the gas pedal down hard enough to give the car gas. As everyone else anxiously waited behind me, I took off out of the gate at a crawl! As soon as I was on the “road”, hugging the right lane in fear, everyone else easily passed me.

This was SOOOO not the turnpike ride I remembered from my youth. It was very noisy and bumpy and the centrifugal force when turning corners necessitated me holding onto the steering wheel with all of my strength, (which got increasingly difficult as my hands started to sweat.) Worst of all, despite the restraints, my “assets” bounced up and down uncomfortably. The parents sitting in the viewing stands were silently laughing at me, of course. (It was at that point that I realized the PARENTS were WATCHING, not driving. Hmmmmm.)

Despite being the first one to take off, I was the last to arrive back at the gate. The final embarrassment was people watching as I tried to maneuver myself up and out of the car. An impossible task, until two of the attendants came over and took my hands and pulled me out.

Oh, no, not the turnpike ride of my youth. The whole thing was quite unsettling until I saw the joy on my daughter’s face, (and her laughter that she “beat me”.) She was thrilled that we had done it together. And it was worth every bumpy, humiliating moment.

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