Posts tagged ‘parenting’

Password here, password there, passwords, passwords everywhere

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I would like to think it is not because of my age that passwords are wrecking havoc with my brain lately. It was fine in the beginning when only a few were needed. It would be the same unguessable but simple word, adding a sequential number if it had to be updated. All of sudden, a password is needed to access anything! Want to order a pizza? Want to shop online? Want to play a game? Want to check your spam e-mail? Want to get a haircut? Passwords needed.

When searching on-line, (using a password, of course,) I learned that the use of passwords is ancient. Knights would knock on the doors of castles and whisper the password of the day in order to save the damsel in distress. During prohibition, alcohol seekers would knock on a back room door in order to enter the forbidden world of drinking alcohol. Today we use a written form of the password in order to enter the secret lairs of the programs on our computer. They are used to authenticate that we are who we are.

These days, I don’t know if I am who I am. In addition to an explosion of additional sites needed one, the passwords have become increasingly complex. Some require a “special character”. Santa Claus? The Tooth Fairy? My Aunt Margaret who is very eccentric? Just WHAT type of special character are they talking about? They all require a distinct arrangement of numbers and letters, some capitalized, some not. The problem is that each site is different. I have several variations of my password, each one to fulfill different requirements. However, trying each variation gets me locked out for too many tries. Then I am stuck answering my “security questions”, another disaster in the making. I inevitably get the questions I don’t remember. “What is the name of your first pet?” I am 60 years old, I can’t remember back that far. “What is the name of your best friend?” The answer to that depends on when I answered the question…best friend 20 years ago? 10 years ago? Yesterday? “What was your first grade teacher’s name?” AGAIN, 55 years ago, DUH! So there I am, trying desperately to order something, or access something, or play something and I am locked out for too many tries and not knowing the answers to my security questions.

A statement on the web from lifehacker.com fits me perfectly: the best password is one you can’t remember, so write it down. My problem is, I can’t remember where I wrote it down!

 

The Hospital Vacation

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An unexpected vacation came my way last week via a trip to the local emergency room when I experienced severe pain radiating from my shoulder down to the tips of my puffy fingers. The ER receptionist immediately had me whisked away in a wheelchair for a cardiac work-up, (not a recommended way to beat the line, but it was nice not have to wait!) The orderly swished me by all the cubicles so fast I did not have time to be nosy and glance in to see what everyone else’s commotion was about. The thing about the ER is that is houses REAL people with all their unglamorous appeal. No high heels or make-up. Unruly hair which obviously had not seen a comb in some time. Morning crustiness still in the eyes, line of drool down the side of the mouth. Bra-less, face contorted into an ugly grimace of pain, posture slumped over..and that was just ME, I could only imagine what everyone else looked like!

Once admitted to the cardiac ward, the nurses got right to work hooking me up to all kinds of do dads and thing a ma jigs. Their cheerfulness belied the seriousness of their work. I was comforted not only by their reassurance but also by the toasty, warm blanket that soon enveloped my body. Once the morphine took away the pain, I was a happy camper and willing test participant. Wheee! Off with another orderly for another test. Lay still like a sardine in a tiny metal tube while it sounded like the room was crashing all around me? Piece of cake. Electrodes super glued to my breasts? No problem, I wasn’t using them anyway. X-rays this way and that? Show me how to pose. (Those 5 modeling classes I took as a gawky teen finally came in handy!) Then there was the added adventure of being maneuvered, gurney and all, back to my room, bumping in and out of the elevators, around other patients and gurneys, and trying to fit through slim doorways all the while piloted by friendly orderlies. It was reminiscent of trying to scooter through Disney World with my daughter last May, and I tried to hide my silly smile lest the orderly think I was not in my right mind. (And, yes, the morphine was still working.)

Once back in my room, taking my blood pressure and poking and prodding for blood tests and glucose monitoring became commonplace at any time of the day or night. What an amazing staff of nurses and CNAs whose job it was to wake me only to poke me with a needle to capture my blood, and to do it all pleasantly when I felt less than pleasant for them having to do it. Although I tried not to be too crabby at them, my roommates were often less inhibited and grumbling was commonplace. Still, the staff smiled and carried on with quiet reassurance, seemingly immune to the barrage of complaints.

The most exciting thing for me was “room service”. Yes, “room service”, just like in a fancy hotel! Armed with an actual menu, I called down to the kitchen and my custom order would find its way to my bedside table. How amazing! Being a person obsessed with food, this was the highlight of my vacation. (Well, that and not being home to have to clean my house.) I carefully selected each meal; scrumptious omelet with tomatoes and onions, muffins and fruit, macaroni and cheese and broccoli with custard pudding, pot roast with salad with cake for dessert! Yum! It all sounded as good as I am sure it tasted, IF I were ever able to eat it when it arrived! Unfortunately, my food delights were delivered while I was away for one test or another. Imagine…meals being interrupted by medical procedures! What kind of vacation is that? The nurses offered to heat it up for me or to get me something else, but this seemed to be a silly request with all the important medical stuff that they had to do. When they took their jobs, I am sure that “waitress” was not in the job description.

Fortunately, it was the kind of vacation where the primary focus was my health; where what was going on INSIDE my body was more important that what I put INTO my body. With the utmost professionalism, the staff were unwaveringly pleasant, reassuring and kind. My medical care was top notch, and I was soon sent on my way home with expert instructions for the next chapter in my medical care.

Nothing could beat my hospital “vacation”. Next time I really want something as frivolous as a hot meal, I will go to a restaurant!The

Kindness is Taught at Home

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The above picture is of my 2-year-old granddaughter cleaning a “boo boo” on her dog. She makes sympathetic eye contact with LuLu, calmly positions her nose with her hand, and gently wipes it with a sterile wipe. When she tries to put a band-aid on it, she wonders why it doesn’t stick on the fur like it sticks on her skin, but tries her best to get it to stay. After the dog’s medical care has been completed, she plants a light kiss on the “boo boo”, satisfied at a job well done.

Kindness is a trait best taught at home. Children learn to accept others based on how their parents accept others. If dad complains about “crazy Uncle Joe” and everyone in the family avoids Uncle Joe, they learn to be fearful of people with mental illness. If they see a person in a wheelchair while out on a walk, and their parents cross the street to be on the other side so they don’t have to walk near the wheelchair, it is inherently learned that they should be cautious of such people. Instead, they should walk right up to the person, making eye contact and smiling, commenting on what a great day it is to be out for a walk!

It is only through my fortunate life experience with a brother with multiple disabilities that my children have learned that people like “Uncle Curtis” are different than us, and therefore need understanding and acceptance. Any of them were comfortable with offering a guiding arm to sturdy and guide him to the most comfortable chair in the house and rush off to get him his treasured glass of Diet Coke. Sitting next to him during a meal, they would unabashedly take his plate to cut the food up into tiny pieces for him to be able to swallow. If they couldn’t understand what he was saying, they’d give him a pen and paper to write it down, (although it invariably said “Dite Cook” in his unsteady handwriting.)

A child living with compassion will not be a bully, and hopefully stand up for anyone being bullied. Living with compassion has stayed with my children into their adulthood, and they are now raising their own children to be caring and thoughtful of others, as evidence by my young granddaughter caring for her dog. What a beautiful life!

*****

To read more about our adventures as a family, please read my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

 

Luck? Fate? or Something Else?

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I am a Diet Coke fanatic.  (Before people start telling me that it isn’t healthy for me, I have to admit that it is stress relief to take a long, satisfying sip of an ice cold soda. It might not be healthy, but it has kept me alive and perky!) Being very short on money lately, and exhausted from working a long day, visions of Diet Coke floated in the air. While fishing out a one-dollar bill that desperately clung to life in the bottom of my purse, the van automatically found its way to the convenience store where a humongous drink of Diet Coke awaited me. I put my giant cup under the spigot and filled it to the brim, excited at the prospect of getting such a delight for only 89 cents! Looking up, the large soda sign smacked me in the face; this was not an “all sizes pay same price” kind of store, and a large soda was $1.49! My heart skipped a beat and actual tears of disappointment filled my eyes when I realized I didn’t have enough money to pay. At just that point, the store owner, half my age, struck up a conversation. “That’s a mighty big van out there, must be difficult for you to drive,” he said. “I have five kiddos and it fits our whole family,” I answered with my back to him, still contemplating my payment dilemma. “God bless you!” he said, “The drink is on me!” I turned around and smiled excitedly, thanking him. He could not have understood how much that gesture was such a blessing!

The truth is, our family car situation has been difficult lately.  My Acura ceased to function several weeks ago, and my husband’s work van, 17 years old, also died.  We had to resurrect our old, 12 passenger family van, switching a couple of bald tires off with newer tires from his work van.  Driving the rickety monstrosity was a challenge for me. It wobbled terribly, and I had to grip the steering wheel with 2 hands. I complained to hubby who brushed it off as being “old, what did I expect?” I drove it back and forth to work Monday and Tuesday, still cursing the challenging drive.  Tuesday eve, Steven called me frantically. A friend’s car had broken down near the Providence Place Mall, could I come pick them up? Annoyed about having to drive to Providence after working all day, I climbed into the van to begin the arduous task of maneuvering the eyesore onto the highway.  With the van waving back and forth, I had difficulty keeping it in one lane, but finally reached Steven and pulled to the side of the road near him.  His eyes bugged out as he ran to the back of the van. “Your TIRE is almost off!” he shouted, showing me where one lone lug nut, ready to fall off, had been holding it on. Just as he said that, the lug nut fell to the ground, rolled away and the tire fell sideways onto the ground!  I shrieked in horror and felt like vomiting when I realized what that meant; I had been driving it for 3 days with the tire ready to fall off! (It was Steven and his ADHD that changed the tires…I suspect he got distracted somehow and never finished putting that tire on correctly.) I not only had driven it for 3 days, but I managed to drive it ON THE HIGHWAY at a HIGH RATE OF SPEED to get to Steven. How lucky was I that is didn’t fall off while driving where not only I could have been killed, but I could have killed someone else? I shuddered with realization. It seemed like fate! Or luck? Or something else?

The Diet Coke and loose tire incidents may seem unrelated, but to me, both are an affirmation that luck does not come into play.  I like to think it was Divine intervention, a thought both heartwarming and reassuring.  A thought that always makes me smile…and so far has kept me alive!

 

Loosey Goosey with Einstein Hair

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     My body has not quite agreed with my no stress policy on life as the muscles in the back of my shoulder had started ache.  When I grit my teeth, the pain would shoot from my jaw down to my shoulder blade.) I thought this might be a good time to try a massage, something which I have always wanted but for which there was never an actual need.      

     With a Groupon coupon clutched firmly in my hand, I made my way through the front door of the Chinese spa. Chinese decorations and symbols adorned the walls, a gold and red cat with a wagging paw sat on the counter, and a petite woman in a kimono greeted me in words I could not quite understand.  With the coupon in her hand, I was reassured that she knew what I wanted; a deep tissue massage!

     Led into a small, dimly lit private room, a comfy massage table awaited me. I considered which end of the table to get on; one end had a place I later learned was for my face and the other end had a rolled towel which could loosely be construed as a pillow.  I took off my clothes, careful to leave my underwear on.  (My bra had to come off because fixing the muscle pain on my shoulder would be hindered by the strap.)  I sat in the middle of the bed, legs dangling off the side, sheet wrapped tightly around my body, awaiting the instructions the massage specialist would give me.  Another petite woman, she motioned toward the end of the table without the towel and I started to lay on my back with my head falling backwards.  She giggled a little, then motioned for me to turn over on my stomach.  OH!  So THAT’s how it works!

     It is incomprehensible to me how a woman with such tiny hands could invoke such muscle pain on me.  Every spot she touched hurt, but her delicate fingers kneaded the pain away.  It was both an excruciating and relaxing experience all at once.  When she finished with the bulk of my body, she pulled out my arm to massage.  “Reacts” she kept telling me, (which I proudly interpreted to mean “relax.”) As much as she tried to shake out my hand, my fingers remained stiffened as a board.  She giggled again, and after much coaxing on her part, my fingers finally loosened a little with the ends of them bent down into a claw shape. That was as close to relaxing my hand I was going to get!

     My favorite part was when she massaged my neck and head.  How I loved the feel of her fingers raking through my hair; firmly, therapeutically, amazingly! I knew that the oil she had on her hands would affect my hairstyle, but my mind was beyond rationalization at that point, enjoying the experience. I was disappointed when she stopped and left the room, saying something to me on the way out.  I thought the massage was over, so I stood up, naked, to get my clothes on.  Both of us screamed when she came back into the room!  She covered her mouth with one hand and squeezed her eyes shut, keeping a firm grip on the basket of hot rocks she was holding in her other hand.  “I thought it was over!” I told her as she sweetly said “no, no!” Climbing back on the table, she completed the massage with hot stones, stones so hot they seemed to burn my back through the sheet material and I wondered how she could possibly hold them in her tender, gentle hands. But, OH what a wonderful feeling, loosened muscles and warmth on my back.  It was a joyful experience! It was an experience for which I had waited my whole life!

      When she was finished, she clearly said “Bye bye” and we both giggled, knowing that it actually was time to get up and get dressed.  My limbs were floppy and lose as I awkwardly put my clothes on. I walked out of that room euphorically with a goofy smile on my face, all loosey goosey with my hair sticking out straight looking like Einstein’s.  I was so relaxed I didn’t even care!   

The Original Tiny House

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When our children were young, it was evident that we could not take Steven, with his autistic tendencies and severe sensory integration issues, on vacations to touristy hotels in unfamiliar areas. It only took us one trip to New Hampshire when he was a toddler to learn that his disability might be a hindrance for family fun and relaxation.

Never one to back down from a lifetime of vacations, hubby and I went up to NH a few weeks later to search for a home away from home in which Steven could be comfortable. We purchased a small cabin, one which would qualify to be a tiny house on Tiny House Hunters. It is cleverly designed, having 2 bedrooms. The “master” bedroom consists of a double bed inside 4 walls where one has to open the door outwards to crawl onto the bed. The second bedroom had 3 fashionable twin beds in bunked style, again accessed in the doorway. There is a tiny ladder to reach the 2nd and 3rd bunks. The tiny kitchen doesn’t matter because we usually grilled our food, and the tiny bathroom may have a bathtub in which I can’t sit up, but it is better than no bath at all.

This cabin has served our family well throughout the years with swimming, canoeing, fishing, frog catching, game playing and lots of family fun. It has never been as valuable as it has the past few years when hubby and I try to go up for monthly respite weekends. Life is so hectic and busy and often problematic having children with difficult issues that we literally count the days until we can once again relax in the woods; no cable tv, no wi fi, no telephone coverage, completely cut off from the outside world.

So it was that I relaxed this past weekend. Sitting on the deck, I sipped my tea and listened to the quietness. Every so often a bird would chirp, different birds, different chirps. I had never been interested in bird watching, but hearing the variety of peeps and tweets piqued my interest.

The snake that lived under the house was sunning itself on a nearby rock. Because Steven was a snake expert, I learned that it was not a dangerous snake, and would eat field mice that might otherwise invade our tiny house. I might prefer a cat, but a snake would do in a pinch.

The silence of the woods reminded me of meditation. My mind was calm and relaxed, free floating and super observant. The trees were all blanketed in dew, and thefat dewdrops hung from each leaf, defying gravity. I further noticed that on the end of each pine tree branch was new growth, poking out gently in a light green extension, a half inch or so long. Somehow I had never thought of trees growing, much less be able to witness it in action. The same flowers that we had planted at home without much success were growing like wild flowers at our retreat; large leaves everywhere, bright, vibrant flowers so tall and large that their stems were bent over with the weight.

It seemed like eternity, no thought of time or place, as I sat there and all my anxiety fell away and contentment filled its space. I was ready! I would “put my big girl panties on” and face the stress of the week ahead with courage, knowing that in another 29 days I could return to this place of peace.

 

*****

If you would like to read more about our family adventures, please purchase my book The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

Termites Aren’t so Bad

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My oldest son, Francis, was born “legally blind”. His visual acuity stabilized at 20/400. (In layman’s terms, what a fully sighted person could see 400 feet away, Francis could only see blurrily at 20 feet.) He used his hearing so well that it was easy to forget that he had impaired vision, but every now and then something humorous would happen to remind us!

One Friday night when he was about three years old, he entered the living room as my friend and I quietly sat amongst the pillows on the couch, munching away on buttered popcorn, and watching “Dallas” on television, (our ridiculously favorite TV show at the time.) He toddled toward where we sat and without hesitation climbed onto my friend’s lap.

“Why, HELLO there!” she exclaimed excitedly, since Francis had previously been very shy with her. He looked startled and then began to cry hysterically. He thought that he had crawled onto my lap! He could see well enough to distinguish that there were 2 figures on the couch, but was unable to focus on the differences of our faces. From that moment on, when he entered a room, he would say “Hi, mom!” and I would respond, “Hi, sweetie!” so he could tell from afar which figure I was. At the age of three he had already learned to make accommodations for his vision loss.

He made similar accommodations when he started. He loved going and had many playmates but seemed to develop a deep friendship with a little boy named Eddy, whom I had not yet met because his mom dropped him off at a later time. Francis would come home and tell me that he and Eddy played with blocks or outside in the playground or cleaned the hamster cage together. I was not only excited that he was actually telling me about his day at “school” but relieved that he was able to socialize and make friends.

One morning my lazy body did not want to get out of the comfy bed on time, so he was driven to school much later than usual. I accompanied him into the building and saw the entire class sitting on the floor listening to their teacher read a book. At first glance, the sea of toddlers looked like a blur of Caucasian, light haired children. Francis scanned the room with his limited vision, spotted Eddy, and walked over to sit down next to the only African-American child in the class. Francis was one smart kid…for his best friend he chose the classmate who was easiest to pick out!

Francis had a wonderful, normal nursery school experience, with one notable exception. The school invited an exterminator as a guest speaker who regaled the class about the abundance and peril of termites munching on the wood of houses. Francis came home terrified at the possibility of having them in our basement. I had never seen him so anxiety ridden and he developed problems falling asleep and nightmares. After about a week of this, I finally asked, “WHY are you so afraid of such tiny bugs?” He burst into fearful, explosive tears. “TINY????” he replied. “THEY ARE HUGE!”

Driving through Providence, RI, Francis had previously seen the only termite of his young life, the famous “Big Blue Bug” atop a building on Route 95, which is 928 times the size of a regular termite. No wonder he was so petrified! His understanding was that termites that large roamed throughout his basement and were eating his house! After I stopped laughing, it was explained to him that the Big Blue Bug by the side of the road was a joke and that termites are tiny. Then his dad and I took him downstairs, searched and confirmed that our house was, in fact, termite free. Happy dreams were his again.

 

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If you want to read about Francis’ hugely successful life, including skiing, captaining a sailboat, obtaining a Ph.D. from Cambridge University, and eventual career as a high level manager at a famous Silicon Valley computer company, please purchase my book, The Apple Tree: Raising 5 Kids with Disabilities and Remaining Sane through Barnes and Noble or Amazon.

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